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BMT & GVHD

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I went from doing great to blast crisis. I started having rib pain after hiking

the

Grand Canyon for a Leukemia fund raiser. I thought it was just due to the

heavy pack, but no so. I am treated at City of Hope and they immediately put

me on Tasigna which at the time was not FDA approved.

________________________________

Dear ,

You have really been through the mill, but congratulations on remaining PCRU,

you have come a long way from blast crisis. After that, you suffered bone

necrosis and joint replacement. That's a lot to be on anyone's plate. I'm sure

you really do enjoy your grandchilden, as there were times when you thought you

might never live to be a

grandmother. I have seven grandchildren and my life was so much richer for

having

had them in the family. We were fortunate enough to spend a lot of quality time

with them and they still talk about our times together. You are right, we do

support our members, no matter what their decision is. Good luck to you and may

you remain PCRU for the duration.

Hands & hearts,

Lottie Duthu

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