Re: Thanks for responses

October 14, 2002

I wish you all the best. Sometimes boss' can be jerks without compassion.

Have a nice day hugs & giggles

January 6, 2005

----- Original Message -----

From: " " <mitchell.ok@...>

>

>...do you think 100 mg. minocycline twice a day is enough?

>

It can be too much. Dr. Coker-Vann, Research Director for Dr. Brown's

Arthritis Institute at the time of his death, says the reproduction cycle of

the organisms thought responsible for these diseases varies between 24 and

48 hours so it is recommended pulse therapy be used - like Monday Wednesday

and Friday. To take more is usually not necessary and only makes the

patient that much more uncomfortable. We need to remember that the therapy

has to be tailored to each individual patient.

The new Marshall Protocol calls for dosing of minocycline at the start of

only 25 mg. every 48 hours with increases of only 25 mg.at a time (maximum

100 mg.) to make sure the Herxheimer reaction is not more than you want to

tolerate. http://autoimmunityresearch.org/phase1.pdf

Ethel

January 6, 2005

Hi Ethel,

I am wondering if it is OK to take prednisone(steroid) with minocycline to

reduce the pain from Hex?

Jintae

Re: rheumatic thanks for responses

----- Original Message -----

From: " " <mitchell.ok@...>

>

>...do you think 100 mg. minocycline twice a day is enough?

>

It can be too much. Dr. Coker-Vann, Research Director for Dr. Brown's

Arthritis Institute at the time of his death, says the reproduction cycle of

the organisms thought responsible for these diseases varies between 24 and

48 hours so it is recommended pulse therapy be used - like Monday Wednesday

and Friday. To take more is usually not necessary and only makes the

patient that much more uncomfortable. We need to remember that the therapy

has to be tailored to each individual patient.

The new Marshall Protocol calls for dosing of minocycline at the start of

only 25 mg. every 48 hours with increases of only 25 mg.at a time (maximum

100 mg.) to make sure the Herxheimer reaction is not more than you want to

tolerate. http://autoimmunityresearch.org/phase1.pdf

Ethel

To unsubscribe, email: rheumatic-unsubscribeegroups

------------------------------------------------------------------------------

January 6, 2005

Hi Jintae,

If you will read the FAQ on www.rheumatic.org, you will find small doses

(not more than 10 mg.) of prednisone are sometimes used to reduce the

effects of a Herx. Taking prednisone has serious drawbacks so I'd rather

see the patient try other things first like cut back on the antibiotic until

the Herx lessens, take the Epsom salts/hydrogen peroxide baths, infrared

saunas, digestive enzymes between meals, cod liver oil, etc.

Also the importance of eating a healthy diet, drinking LOTS of water to

flush out the toxins, and detoxing the body must not be overlooked.

Ethel

Re: rheumatic thanks for responses

>

> ----- Original Message -----

> From: " " <mitchell.ok@...>

>

> >

> >...do you think 100 mg. minocycline twice a day is enough?

> >

> It can be too much. Dr. Coker-Vann, Research Director for Dr. Brown's

> Arthritis Institute at the time of his death, says the reproduction cycle

> of

> the organisms thought responsible for these diseases varies between 24

> and

> 48 hours so it is recommended pulse therapy be used - like Monday

> Wednesday

> and Friday. To take more is usually not necessary and only makes the

> patient that much more uncomfortable. We need to remember that the

> therapy

> has to be tailored to each individual patient.

>

> The new Marshall Protocol calls for dosing of minocycline at the start of

> only 25 mg. every 48 hours with increases of only 25 mg.at a time

> (maximum

> 100 mg.) to make sure the Herxheimer reaction is not more than you want

> to

> tolerate. http://autoimmunityresearch.org/phase1.pdf

>

> Ethel

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

> ------------------------------------------------------------------------------

>

January 6, 2005

Ethel and Group,

Actually I am looking for an infrared sauna for my wife. Can anyone recommend a

good quality infrared sauna with a credible company?

Thanks,

Jintae

Re: rheumatic thanks for responses

>

> ----- Original Message -----

> From: " " <mitchell.ok@...>

>

> >

> >...do you think 100 mg. minocycline twice a day is enough?

> >

> It can be too much. Dr. Coker-Vann, Research Director for Dr. Brown's

> Arthritis Institute at the time of his death, says the reproduction cycle

> of

> the organisms thought responsible for these diseases varies between 24

> and

> 48 hours so it is recommended pulse therapy be used - like Monday

> Wednesday

> and Friday. To take more is usually not necessary and only makes the

> patient that much more uncomfortable. We need to remember that the

> therapy

> has to be tailored to each individual patient.

>

> The new Marshall Protocol calls for dosing of minocycline at the start of

> only 25 mg. every 48 hours with increases of only 25 mg.at a time

> (maximum

> 100 mg.) to make sure the Herxheimer reaction is not more than you want

> to

> tolerate. http://autoimmunityresearch.org/phase1.pdf

>

> Ethel

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

------------------------------------------------------------------------------

>

January 6, 2005

Jintae, you can make an inexpensive infrared sauna. Instructions can be found

at www.mercola.com or www.drlwilson.com. My husband made one for us using 4

bulbs to adjust for the size of the area we use it in. I have pictures of it I

can forward upon request.

Ethel

http://www.drlwilson.com/articles/sauna_therapy.htm#encplans

Electric Light Sauna Plans

The electric light sauna described here performs very well and is inexpensive.

One mounts the lamps on a piece of wood and places the unit in a small closet or

other enclosure. The ceiling needs to be 6 foot or less and the area about 4

foot x 4 foot, small enough to contain the heat.

If the area is larger, one will need more lamps or a small

space heater to make sure the space heats up to about 115 degrees. One can

easily add a false ceiling of cardboard, plywood or even cloth to a closet and

partition the closet if needed. Click here to view a photo of an electrical

unit that can be mounted in a small closet or bathroom area.

Materials. The piece of wood can be veneer, plywood, masonite or solid wood

about 12 inches high and 24 inches wide. If it is necessary to absolutely avoid

all outgassing, use a 12 inch wide shelf board of pine, birch or some other

wood.

One will need three 250-watt, red infrared heat lamps. I

prefer General Electric, , Westinghouse or SLi lamps. Sylvania and

Feit recently changed the filament design on their lamps, and they focus energy

excessively for some people. Lamps are sold at hardware stores. The lamps must

be the red type. Do not use clear heat lamps as their spectrum is not correct.

Also needed are three flush-mount bulb sockets. Large plastic

or porcelain sockets can only be wired from the back. Drilling the holes will be

more work. Smaller flush mount sockets are available that can be wired from the

front.

Also needed is fifteen feet of heavy lamp cord, a medium duty

male wall plug, 12 3/4-inch wood screws and 4 large washers, an electrical box

for the switch, a SPST switch and switch cover plate. Optional is a switch-timer

instead of a switch. Also needed is a 7-amp fuse and fuse holder, and a piece

of 1/2-inch mesh hardware cloth about 15 x 32 inches. This will form a

protective screen so that nothing touches the hot bulbs.

Construction. Mount the sockets to the board or enclosure in a

triangle shape. The top socket is centered while the two bottom sockets are 8

inches below and 9.5-10 inches apart. When you mount the electrical unit, the

lower sockets are to be at abdomen height when sitting down, about 28 inches

from the floor. The top socket is centered at chest height, about 36 " from the

floor. Click here to view a diagram of the basic lamp layout.

The preferred location of the switch is in one of the upper corners above the

bulbs if one places the sockets on a board. If one builds an enclosure, the

switch can go on another wall, away from the bulbs. Wire the sockets in parallel

so one bad bulb wonít disable the unit.

For the protective screen, the hardware cloth will be bent into a C shape with

1inch flanges at each end. Bend the 32-inch piece of mesh 90 degrees at 1 inch.

Make another 90 degree bend at 9 inches, another at 23 inches and another at

31inches. This should form a C shape with 1 inch flanges at each end for

fastening to the wood with four wood screws and large washers, two on the bottom

and two on top.

Mounting and Ventilation. Secure the unit it so it will not fall

over. Ventilating the sauna is helpful. If building an enclosure, leave a 1-2

inch opening across the top at the front and back.

Enclosures. These can be of wood, glass or even cardboard. No special materials

are required because the temperature stays mild. Build the enclosure about 4

feet by 4 feet by 6 feet high. The heat may dissipate if the space is too large.

A sauna cabinet where oneís head remains outside is helpful for claustrophobics

but less effective. Exposing the head to far-infrared radiation is most

desirable.

Siding made of cedar or fir is a popular sauna material. Tongue-and-groove

siding slides into a frame and few nails are required. Walls can be built as

modules, then screwed together. Cedar gives off terpenes that may affect

chemically sensitive individuals. Redwood may also outgas.

Plywood will work, since the enclosure stays relatively cool. It is less

recommended for the chemically sensitive due to the glue it contains. One may

use glass for one wall. Glass reflects far infrared energy and avoids a

claustrophobic feeling but single-pane glass is a poor insulator. Less expensive

enclosure options are cardboard boxes or blankets. Tape or staple together two

refrigerator boxes. To use blankets, build a frame of wood and hang blankets

over the frame.

Cautions. Observe all cautions as with any electrical appliance

exposed to heat and moisture. Do not touch bulbs during use, or let water,

sweat, towels or anything touch them. Accidents can happen in saunas. Always

move slowly and carefully. Never allow young children to play in or use the

sauna unaccompanied. I cannot be responsible for misuse of the sauna or poor

construction. For more information, see the 125-page Manual of Sauna Therapy.

Sauna Frame Enclosure Plans

An excellent inexpensive enclosure suitable for

apartments and portable use consists of a frame over which one places blankets,

a cloth drop cloth or fabric. The following design requires no special skills or

tools. The frame parts cost less than $30.00. Click here to view a photo of

the enclosure frame.

Materials. The frame requires five 10-foot sticks of the thicker (SCH 40, 480

PSI) 3/4-inch white PVC pipe. Also required are four 3/4-inch PVC T-connectors

and eight 3/4-inch PVC elbows. One will need four 3/4-inch pipe clamps and

eight machine screws and nuts to fasten the clamps to the lamp unit. PVC cement

is not needed.

One may cover the frame with two queen or king-size

blankets, fabric such as fleece, flannel or velour, a large cloth painter's drop

cloth, quilts, comforters or canvas. I do not recommend an aluminum-coated

material. Also needed are clothes pins to hold the blankets or fabric in place

and a small stool or chair without a back to sit on. The stool or chair may be

any type. The bottom of the sauna does not get too hot. Painted surface is

okay, as is metal, plastic or wood. Raw wood is cleanest, although new wood

stools are often coated or treated with chemicals. Tools required are a hack saw

or pipe cutter to cut PVC pipe, tape measure and a rubber hammer to tap pieces

together if they are stiff. No PVC glue is needed.

The enclosure is designed to be connected to a board

made of solid wood, plywood, masonite or other material about 24 inches wide and

12 inches high. The board has the lamp sockets and switch mounted as described

in Appendix I. One forces the PVC frame to narrow where it connects to the

board. It will flare out and become wider as one moves away from the board.

The design shown is five feet high, high enough for most people.

Enclosure Assembly. Cut the PVC pipe into four 5-foot

sections, six 4-foot sections and four 3-inch sections. Assemble as shown in

the photo of the completed unit. Push pipe sections into the connectors and use

a rubber hammer to gently tap the pipe firmly into the connectors. Assembling

the unit on a hard floor will help, as one can place the pipe on the floor when

tapping them with a hammer. No cement should be necessary unless pipe is very

loose in the connectors. The order of assembly of the sections does not matter.

Secure a board about 24 inches wide containing the lamp

sockets to the PVC frame with four 3/4-inch pipe clamps. The frame will bend to

accommodate the size of the board. This in fact adds rigidity to the structure.

The lamp height will be adjustable by moving the board up or down along the

vertical PVC pipe sections. The upper lamp should be at chest height when

sitting and the lower lamps at abdomen height.

When assembly is complete, cover with two or more large

blankets, fleece, quilts, comforters or heavy fabric overlapping at the far end

to create a convenient entrance. Add a bench to sit on, a towel or two to

cover the floor, screw in the three lamps and the sauna should be ready for use.

Warnings: Be sure to have a guard in front of the

lamps and that fabric or blankets are 12 inches or more from the heat lamps to

avoid a fire hazard. Pull blankets or fabric tight near the lamps so it does

not hang loosely near the lamps. Avoid leaving the lamps on when no one is

present.

Re: rheumatic thanks for responses

>

> ----- Original Message -----

> From: " " <mitchell.ok@...>

>

> >

> >...do you think 100 mg. minocycline twice a day is enough?

> >

> It can be too much. Dr. Coker-Vann, Research Director for Dr. Brown's

> Arthritis Institute at the time of his death, says the reproduction cycle

> of

> the organisms thought responsible for these diseases varies between 24

> and

> 48 hours so it is recommended pulse therapy be used - like Monday

> Wednesday

> and Friday. To take more is usually not necessary and only makes the

> patient that much more uncomfortable. We need to remember that the

> therapy

> has to be tailored to each individual patient.

>

> The new Marshall Protocol calls for dosing of minocycline at the start of

> only 25 mg. every 48 hours with increases of only 25 mg.at a time

> (maximum

> 100 mg.) to make sure the Herxheimer reaction is not more than you want

> to

> tolerate. http://autoimmunityresearch.org/phase1.pdf

>

> Ethel

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

------------------------------------------------------------------------------

>

April 17, 2008

Dear ,

The manometry isn't comfortable, the doctor who gave it to me at UCLA was excellent and she mentioned that almost all "us" achalasia patients regurged on her. That made me much more comfortable as she had a gown thing over me and had the pan ready. When I had one later at Cedars that doctor didn't have a pan and I kept asking for it because I just knew I would need it, he wasn't nearly as good at giving the test I thought. It is not fun, but also not a huge deal, the good thing is that when it is over there are no after-effects like there are with surgery. It doesn't last that long and just close your mind and get it over with. Whatever you regurg isn't smelly anyway, not like normal people. Wear older clothes, take chap stick and try to relax. It doesn't hurt, just the gag reflex, as I remember, but it is a strong reflex. The regurg junk is just white foam stuff anyway. Apparently those who don't have achalasia don't seem to regurg as the Cedars doctor resisted getting the pan right away.

Sandy>> Thanks to those of you who responded to my question about the endoscopy. Knowing what to ask, what to ask for, and what to expect helps to greatly reduce the stress level for me.> > _____________________________________________________________> Taking a trip? Click here to compare hotel rates and find a great deal.> http://thirdpartyoffers.juno.com/TGL2121/fc/Ioyw6i3nLmLmeDY8EnM2Tn3iweEpasT1vdO7ImYOv1VvEOoUXtOTJS/>

April 17, 2008

, Sandy

Just shows how different we all are and how A effects us in different ways as I didnt regurge at all during my manometry although I thought it a possiblilty and asked for the pan to be safe.

I am also still amazed at how well my surgery has gonme so far - its as if I have never had the problem - can eat absolutly anything and dont need loads of drink to help it along - its marvelous.

Andy

Yorkshire, England.

On 17/04/2008, toomuchclutter <sandycarroll@...> wrote:

Dear ,

The manometry isn't comfortable, the doctor who gave it to me at UCLA was excellent and she mentioned that almost all " us " achalasia patients regurged on her. That made me much more comfortable as she had a gown thing over me and had the pan ready. When I had one later at Cedars that doctor didn't have a pan and I kept asking for it because I just knew I would need it, he wasn't nearly as good at giving the test I thought. It is not fun, but also not a huge deal, the good thing is that when it is over there are no after-effects like there are with surgery. It doesn't last that long and just close your mind and get it over with. Whatever you regurg isn't smelly anyway, not like normal people. Wear older clothes, take chap stick and try to relax. It doesn't hurt, just the gag reflex, as I remember, but it is a strong reflex. The regurg junk is just white foam stuff anyway. Apparently those who don't have achalasia don't seem to regurg as the Cedars doctor resisted getting the pan right away.

Sandy

>> Thanks to those of you who responded to my question about the endoscopy. Knowing what to ask, what to ask for, and what to expect helps to greatly reduce the stress level for me.> > _____________________________________________________________

> Taking a trip? Click here to compare hotel rates and find a great deal.> http://thirdpartyoffers.juno.com/TGL2121/fc/Ioyw6i3nLmLmeDY8EnM2Tn3iweEpasT1vdO7ImYOv1VvEOoUXtOTJS/

>

April 19, 2008

Astrid,

thanks for your email, although I, like many, dont post as much as I did I am still here on a daily basis and will pop up when I think I have someting to add or can give support.

I am really enjoying the kennels. Will email off the group.

Andy

On 19/04/2008, Astrid Bonemeijer <astrid_bonemeijer@...> wrote:

Hi Andy,

Thanks for posting this message! This is what we all aim for and your post will be an enormous support for those considering to have surgery or not. Most of the time, we tend to post when things are bad, which is logical, but still....... Thanks for staying tuned in!

Love, Astrid

PS: those dogs at the shelter are very lucky to have you to walk them!!

Re: Re: thanks for responses

, Sandy

Just shows how different we all are and how A effects us in different ways as I didnt regurge at all during my manometry although I thought it a possiblilty and asked for the pan to be safe.

I am also still amazed at how well my surgery has gonme so far - its as if I have never had the problem - can eat absolutly anything and dont need loads of drink to help it along - its marvelous.

Andy

Yorkshire, England.

On 17/04/2008, toomuchclutter <sandycarroll@ charter.net> wrote:

Dear ,

The manometry isn't comfortable, the doctor who gave it to me at UCLA was excellent and she mentioned that almost all " us " achalasia patients regurged on her. That made me much more comfortable as she had a gown thing over me and had the pan ready. When I had one later at Cedars that doctor didn't have a pan and I kept asking for it because I just knew I would need it, he wasn't nearly as good at giving the test I thought. It is not fun, but also not a huge deal, the good thing is that when it is over there are no after-effects like there are with surgery. It doesn't last that long and just close your mind and get it over with. Whatever you regurg isn't smelly anyway, not like normal people. Wear older clothes, take chap stick and try to relax. It doesn't hurt, just the gag reflex, as I remember, but it is a strong reflex. The regurg junk is just white foam stuff anyway. Apparently those who don't have achalasia don't seem to regurg as the Cedars doctor resisted getting the pan right away.

Sandy

>> Thanks to those of you who responded to my question about the endoscopy. Knowing what to ask, what to ask for, and what to expect helps to greatly reduce the stress level for me.> > ____________ _________ _________ _________ _________ _________ ____

> Taking a trip? Click here to compare hotel rates and find a great deal.> http://thirdpartyof fers.juno. com/TGL2121/ fc/Ioyw6i3nLmLme DY8EnM2Tn3iweEpa sT1vdO7ImYOv1VvE OoUXtOTJS/

>

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

March 13, 2010

ATTABOY!

On Sat, Mar 13, 2010 at 11:10 AM, claudemirtavares <sito3@...>wrote:

>

> Wow! I am surprised with all the responses, and I am blessed to belong to

> this site. I want to thank everyone of you, for your display of love for me.

> I'm definitely not alone with my condition. I didn't take Gleevec for the

> past 2 weeks, and I took one yesterday after listening to your responses. I

> mentioned that the bone marrow can reconstruct itself, because I've read of

> people who have cured themselves of cancer through alternative medicine (

> shark liver oil, curcumin, vegan diet, etc.) I'm going to continue taking

> Gleevec, but I am going to have a serious talk to my oncologist about my

> fatigue and possible switch to another medication.

>

> Claude

> DX CML Oct. 2007

> Gleevec and in remission

>

March 13, 2010

I was happy to hear your decision,,,we need you here with us!!

Sharon T

Re: [ ] Thanks for responses

ATTABOY!

On Sat, Mar 13, 2010 at 11:10 AM, claudemirtavares <sito3@...>wrote:

>

> Wow! I am surprised with all the responses, and I am blessed to belong to

> this site. I want to thank everyone of you, for your display of love for

me.

> I'm definitely not alone with my condition. I didn't take Gleevec for the

> past 2 weeks, and I took one yesterday after listening to your responses.

I

> mentioned that the bone marrow can reconstruct itself, because I've read

of

> people who have cured themselves of cancer through alternative medicine (

> shark liver oil, curcumin, vegan diet, etc.) I'm going to continue taking

> Gleevec, but I am going to have a serious talk to my oncologist about my

> fatigue and possible switch to another medication.

>

> Claude

> DX CML Oct. 2007

> Gleevec and in remission

>

March 15, 2010

I am glad y decide to stay w gleevec for now. T

Sent from my Verizon Wireless BlackBerry