: CML - Pregnancy

[Guest guest]

Hi

A number of women have had successful pregnancy - but this is not for the faint

hearted.

Many have had tricky pregnancies. Most pregnancies the CML patient is the woman

herself.

Many of the gals have waited until they are PCRU and have had interferon thru

the pregnancy - which is

also not for the faint hearted and have had side effects as do all drugs. For

the guys many of their partners

have had successful pregnancies and a number have continued to add to their

families. CML women though

is a big call.

LLS (July 2009) were publishing 2 x CML Booklets for Pregnancy - you may like to

contact LLS and discuss

to get a copy for your research - Listed below

One of my dear friends (who has CML) was diagnosed with CML while 8 weeks

pregnant. She was advised

to abort but decided to continue with the pregnancy. She was also on interferon

during the pregnancy and

had a ceaser for the birth which was bought on early and then after delivery -

within 24 hours was onto glivec.

She has not got down to PCRU as yet and that will be coming up to CML of 2

years this June 2010. She is

had her medication increased twice - and mutation testing etc. Within the next 3

month period if her % does

not go down then onto the next drug perhaps. So you may wonder - did she

sacrifice her long term health for

a successful pregnancy. She has now 4 children - a great life - and a wonderful

family but at a cost.

I would suggest that you have quite a few discussions with your CML specialist,

and a number of the same

discussions with the very best obsterician / gyno that you can find. Then you

have to ask the question of both

professionals - will they care share your treatment. To have a pregnancy with

CML you need the best medicos

to look after you.

At least then - you have all the base information and examples from others, to

forward with a decision of pregnancy.

Cheers

Sue (Aussie)

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Information from the LLS e-newsletter (July 2009)

Small article on CML and pregnancy

Chronic Myelogenous Leukemia (CML) .

There is increasing interest in pregnancy among younger women with CML who are

in stable remission and in ongoing treatment with Gleevec.

In July 2009, LLS will publish two updated CML booklets that include information

about CML and pregnancy.

Early reports of stopping treatment in order to get pregnant were discouraging,

with relapse nearly certain, but further study has given new hope that women

with CML who want to become pregnant can be better managed with lower risk to

both mother and child.

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For those with CML who are discussing pregnancy,

The below link is anothers' perspective and experience with CML and pregnancy

http://edition.cnn.com/2009/HEALTH/10/29/pregnant.cancer/index.html

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Hope these help - Sue (Aussie)

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