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Weaning off steroids

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Theresa,

Well, Reagon woke up this morning and said she was so dizzy she

couldn't walk down the stairs after she got up..then within 30 minutes

of being up and around spiked a fever. Thank goodness today is a day

to get steroids for her, so I immediately gave them to her. She laid

down and rested for awhile and now is up coloring and seems to feel

better. If I make it to Friday for IVIG and a big dose of steroids

without having a nervous breakdown it will be a miracle. I am hoping

that once the steroids kick in she will be much better. If not, I'm

not sure what I'll do because her pulmonologist office is closed on

Wed. I really want to talk to her immunologist on Fri. about this

weaning process, so far her pulmonologist has been calling all the

shots and I'd like to get a second opinion.

Thanks agian for the info. and I am definetely going to have her levels

checked on Friday!

Becki

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