Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Just wanted to let you guys know....we followed up with pulmonary since when we came off the antibiotics, not even 24 hrs later she was sick again wheezing, congestion, cough, ears, even had another blue, cyanotic spell...ugh!! She'll stay on the antibiotics she's on and after she finishes she'll go on another antibiotic for a month. If it doesn't work they'll have to put her back to sleep and do another bronchoscopy. Her immunologist agrees with the plan and also wanted some more blood drawn, so we had that done too...more IG's and some kind of lymphocyte markers. I just don't understand...her doc's are wonderful and honest and great...we're so blessed to have found them...they've both been honest and have said to be prepared for a very rough winter...hopefully it won't be as bad as the last one....we lived in the hospital for a long time... My daughter who has hypogammaglobulinemia, tcell deficiency, and PID also requires a Gtube (feeding tube, she refuses to eat)...does anyone elses immune deficient children require or have ever required a feeding tube...? Kymberlie Quote Link to comment Share on other sites More sharing options...
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