Re: bmb news / change in protocol?

[Guest guest]

Congratulations Jen!

 

 

I visited my Dr a week ago.  He indicated that the protocol for strong

responders was changing and that he would no longer be performing a BMB on me. 

He also tol me he would reduce my PCR testing down to 2 times a year vs 4 times

a year.  

 

Has onyone else got this feedback from their Drs?

 

I have been PCR-U for at least 2 years.

 

thanks

From: <jms30@...>

Subject: [ ] bmb news

Date: Wednesday, March 24, 2010, 2:32 PM

 

Hi all! I haven't been on in awhile. I had a bmb in Feb. It took 5 attempts and

they were only able to get a small sample, no fluid. They ran the tests. The

molecular test came back great. But they were unable to run the cytogenetics. So

I had another bmb 3 weeks ago. This time they were able to get fluid on the

first attempt! I was very grateful. I got the call last week that it was

negative for ph+. Yay!

Jen

[Guest guest]

Hi,

My doctor is moving me to twice a year ... slowly. I'm from the old school

where BMBs every 3 months was the normal. I have consented to once every 4

months.

Zavie

Zavie (age 71)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

Tel in FL: 561-429-5507

_____

From: [mailto: ] On Behalf Of Mr

Stickel

Sent: March-25-10 6:42 AM

Subject: Re: [ ] bmb news / change in protocol?

Congratulations Jen!

I visited my Dr a week ago. He indicated that the protocol for strong

responders was changing and that he would no longer be performing a BMB on

me. He also tol me he would reduce my PCR testing down to 2 times a year vs

4 times a year.

Has onyone else got this feedback from their Drs?

I have been PCR-U for at least 2 years.

thanks

--- On Wed, 3/24/10, <jms30@... <mailto:jms30%40att.net> >

wrote:

From: <jms30@... <mailto:jms30%40att.net> >

Subject: [ ] bmb news

groups (DOT) <mailto:%40> com

Date: Wednesday, March 24, 2010, 2:32 PM

Hi all! I haven't been on in awhile. I had a bmb in Feb. It took 5 attempts

and they were only able to get a small sample, no fluid. They ran the tests.

The molecular test came back great. But they were unable to run the

cytogenetics. So I had another bmb 3 weeks ago. This time they were able to

get fluid on the first attempt! I was very grateful. I got the call last

week that it was negative for ph+. Yay!

Jen

[Guest guest]

Hi Chris: They changed my protocol quite a few years ago. I do my regular

blood work every 3months, and I get my PCR done every 6 months. I do not get a

BMB. My Oncologist told me that he could see from my blood work if a BMB was

indicated. This has been my plan of treatment now for 5 years since I became

PCRU. My oncologist retired this past year, and I am in the process of looking

for a new doctor.

I was just turned over to the doctor who took over, and do not feel a connection

with this guy.

I even checked with Dr. Druker to get his response. He agreed with my former

Oncologist that you can tell by the blood work and PCR how things are going, and

only if he saw changes he would recommend a BMB at this point. I have to see

what this new doctor will think.

I probably would be getting the BMB, if I was not PCRU.

>

>

> From: <jms30@...>

> Subject: [ ] bmb news

>

> Date: Wednesday, March 24, 2010, 2:32 PM

>

>

>  

>

>

>

> Hi all! I haven't been on in awhile. I had a bmb in Feb. It took 5 attempts

and they were only able to get a small sample, no fluid. They ran the tests. The

molecular test came back great. But they were unable to run the cytogenetics. So

I had another bmb 3 weeks ago. This time they were able to get fluid on the

first attempt! I was very grateful. I got the call last week that it was

negative for ph+. Yay!

>

> Jen

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I follow the same regime –

Sharon T

_____

From: [mailto: ] On Behalf Of A

Sent: Thursday, March 25, 2010 7:16 AM

Subject: Re: [ ] bmb news / change in protocol?

Hi Chris: They changed my protocol quite a few years ago. I do my regular

blood work every 3months, and I get my PCR done every 6 months. I do not get

a BMB. My Oncologist told me that he could see from my blood work if a BMB

was indicated. This has been my plan of treatment now for 5 years since I

became PCRU. My oncologist retired this past year, and I am in the process

of looking for a new doctor.

I was just turned over to the doctor who took over, and do not feel a

connection with this guy.

I even checked with Dr. Druker to get his response. He agreed with my former

Oncologist that you can tell by the blood work and PCR how things are going,

and only if he saw changes he would recommend a BMB at this point. I have to

see what this new doctor will think.

I probably would be getting the BMB, if I was not PCRU.

>

>

> From: <jms30@...>

> Subject: [ ] bmb news

> groups (DOT) <mailto:%40> com

> Date: Wednesday, March 24, 2010, 2:32 PM

>

>

> Â

>

>

>

> Hi all! I haven't been on in awhile. I had a bmb in Feb. It took 5

attempts and they were only able to get a small sample, no fluid. They ran

the tests. The molecular test came back great. But they were unable to run

the cytogenetics. So I had another bmb 3 weeks ago. This time they were able

to get fluid on the first attempt! I was very grateful. I got the call last

week that it was negative for ph+. Yay!

>

> Jen

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Thanks! I have had 3 bmb's. My initial one with diagnosis. The last 2 were my " 6

month " check. I have been told I should not need another one unless my PCR goes

up. I have my bloodwork done every 3 months currently which includes a PCR. That

may change if things continue to look good.

>

>

> From: <jms30@...>

> Subject: [ ] bmb news

>

> Date: Wednesday, March 24, 2010, 2:32 PM

>

>

>  

>

>

>

> Hi all! I haven't been on in awhile. I had a bmb in Feb. It took 5 attempts

and they were only able to get a small sample, no fluid. They ran the tests. The

molecular test came back great. But they were unable to run the cytogenetics. So

I had another bmb 3 weeks ago. This time they were able to get fluid on the

first attempt! I was very grateful. I got the call last week that it was

negative for ph+. Yay!

>

> Jen

>

>

>

>

>

>

>

>

>

>

>

>