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Re: Tenth Anniversary

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Thanks Lottie,

The real hell was interferon, it is still no cakewalk but is a lot better. It is

great to see so many of the old timers doing well on the new drugs. When we were

diagnosed the average life span was 3 to 5 years without a transplant. I have

been lucky that Gleevec has worked well for me and really believe a cure is not

far off.

Take care,

In , " Lottie Duthu " <lotajam@...> wrote:

>

> Whooooo Hooooooo, on your 10th anniversary, sorry you have to relive your

nightmare in hell again, but the good part is you got past that and you are

still with us. If anyone else is celebrating their 10th anniversary, I am

keeping tabs. I know I don't have everyone, but I would like to if you will

just let me know. We just heard from one of our older CML generation, Virginia

Garner, she's put in her 10+ years, but she is still out there raising money for

LLS, it's not holding her back. So there is life after CML and as we have said

many times, there are worse things than CML when you look around.

Congratulations to everyone who will be hitting the 10-year mark and beyond this

year.

>

> I have a friend who had CLL not once but twice and she wrote me today to tell

me her husband just died of multiple cancers that had metasacized. When I met

her, she had shaved her head for a friend who was on chemo, so she lost her hair

3 times. We are having such good reports from patients in Bobby's trial, it is

more encouraging all of the time. One more cheer for and I'm going to bed.

Nite -Boy.

> Hands & hearts,

> Lottie

>

>

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