Re: another 10 yr. anniversary

[Guest guest]

Hi Ruth,  well you have been to hell and back a couple of times. 

Congratulations on your 10th year anniversary, I will keep you and your sister

in my prayers, and have a great party, you certainly deserve it. Blessings,

Bobby

a ( Bobby ) Doyle, dob 12/17/29

Brecksville, Ohio, USA

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.017

11/2009 PCR 0.034

#840 Zavie's Zero Club

From: marcon <marcon@...>

Subject: [ ] another 10 yr. anniversary

Date: Tuesday, March 23, 2010, 11:41 PM

 

To All

I, too, have a 10-yr. anniversary that I mark on the 1st day

of spring. That was pretty much my diagnosis date. At the

1-yr. mark I started my own tradition of passing out

carnations to friends at this time in March. It made me feel

good & I was amazed at how happy people were to get this

simple flower & to be happy for me. 10 years ago I was on

this site every night. My fear was so great that I couldn't

do without the stories of others. I was a lurker for a long

time. Now I'm again a lurker--still buoyed by the stories of

others and the hope that goes out to all who come to this

supportive cml community.

This year--on April 24th--I'm having a huge party to

celebrate 10 yrs. of life after leukemia. (9yrs. of

remission) We're having an open house at a banquet room in

the town(PA) Symphony Orchestra building. There will be

flowers, piano music, drinks and h'ors d'ouvres and cookies,

lots of cookies, and carnations for guests to take home. All

my children--4- -and their spouses--2-- and 4 beautiful

grandchildren can be there plus my sister & 2 brothers and a

great number of friends because I'm lucky enough to have a

great number of friends.

The recent tough times will recede for the day. I had sugery

on March 16th to remove a mass from my kidney. The dr. had a

great description of the procedure: said the mass was like a

golf ball setting on a tee & all he had to do was a chip

shot. I love it when they think the job is easy. He took

about 5% of the kidney; high chance of malignancy but said

the magic word " cure " for the surgical result. I'm

progressing steadily in a recovery that should take 1 month.

Am still on vicodin but I do well on it and think I can make

the switch to extra-strength tylenol after the weekend.

Yesterday's news was that my sister has small cell lung

cancer. Devasting. Today's news is that the cancer is

limited to one lung & is responsive to treatment. Dazzlingly

Optimistic. Her dr. is optimistic. I told her that one of

her jobs is to make her dr. happy.

Signing off and wishing you all good things as you maintain

good health or walk the path to it. Wish you could all be at

my party. I'll be thinking of you--honest.

Best regards,

Ruth Marcon

dx March 2000

'mini' bmt July 2000

dli Oct. 2000

declared failed bmt

gleevec Nov. 2000

pcru Aug. 2001

We are not a perfect family but we circle the wagons when we

must. They're circled. And we have great hope that all will

be well.

[Guest guest]

Dear Ruth,

Thanks so much for sharing your story...the good and the bad - you are an

inspiration to those like my who are newly diagnosed and on this board everyday

as I am - sometimes I lurk and sometimes I participate...congratulations on your

" anniversary " and how wonderful an idea to celebrate life!

All the best for your continued success and prayers for your sister and your

family...what a great analogy - circling the wagons!

Cheryl

>

> To All

>

> I, too, have a 10-yr. anniversary that I mark on the 1st day

> of spring. That was pretty much my diagnosis date. At the

> 1-yr. mark I started my own tradition of passing out

> carnations to friends at this time in March. It made me feel

> good & I was amazed at how happy people were to get this

> simple flower & to be happy for me. 10 years ago I was on

> this site every night. My fear was so great that I couldn't

> do without the stories of others. I was a lurker for a long

> time. Now I'm again a lurker--still buoyed by the stories of

> others and the hope that goes out to all who come to this

> supportive cml community.

>

> This year--on April 24th--I'm having a huge party to

> celebrate 10 yrs. of life after leukemia. (9yrs. of

> remission) We're having an open house at a banquet room in

> the town(PA) Symphony Orchestra building. There will be

> flowers, piano music, drinks and h'ors d'ouvres and cookies,

> lots of cookies, and carnations for guests to take home. All

> my children--4--and their spouses--2--and 4 beautiful

> grandchildren can be there plus my sister & 2 brothers and a

> great number of friends because I'm lucky enough to have a

> great number of friends.

>

> The recent tough times will recede for the day. I had sugery

> on March 16th to remove a mass from my kidney. The dr. had a

> great description of the procedure: said the mass was like a

> golf ball setting on a tee & all he had to do was a chip

> shot. I love it when they think the job is easy. He took

> about 5% of the kidney; high chance of malignancy but said

> the magic word " cure " for the surgical result. I'm

> progressing steadily in a recovery that should take 1 month.

> Am still on vicodin but I do well on it and think I can make

> the switch to extra-strength tylenol after the weekend.

> Yesterday's news was that my sister has small cell lung

> cancer. Devasting. Today's news is that the cancer is

> limited to one lung & is responsive to treatment. Dazzlingly

> Optimistic. Her dr. is optimistic. I told her that one of

> her jobs is to make her dr. happy.

>

> Signing off and wishing you all good things as you maintain

> good health or walk the path to it. Wish you could all be at

> my party. I'll be thinking of you--honest.

>

> Best regards,

>

> Ruth Marcon

>

> dx March 2000

> 'mini' bmt July 2000

> dli Oct. 2000

> declared failed bmt

> gleevec Nov. 2000

> pcru Aug. 2001

>

>

>

> We are not a perfect family but we circle the wagons when we

> must. They're circled. And we have great hope that all will

> be well.

>

[Guest guest]

Congratulation Ruth Enjoy life as you such a great support from family and

friends. Have a great party.

T

Sent from my Verizon Wireless BlackBerry

[ ] another 10 yr. anniversary

To All

I, too, have a 10-yr. anniversary that I mark on the 1st day

of spring. That was pretty much my diagnosis date. At the

1-yr. mark I started my own tradition of passing out

carnations to friends at this time in March. It made me feel

good & I was amazed at how happy people were to get this

simple flower & to be happy for me. 10 years ago I was on

this site every night. My fear was so great that I couldn't

do without the stories of others. I was a lurker for a long

time. Now I'm again a lurker--still buoyed by the stories of

others and the hope that goes out to all who come to this

supportive cml community.

This year--on April 24th--I'm having a huge party to

celebrate 10 yrs. of life after leukemia. (9yrs. of

remission) We're having an open house at a banquet room in

the town(PA) Symphony Orchestra building. There will be

flowers, piano music, drinks and h'ors d'ouvres and cookies,

lots of cookies, and carnations for guests to take home. All

my children--4--and their spouses--2--and 4 beautiful

grandchildren can be there plus my sister & 2 brothers and a

great number of friends because I'm lucky enough to have a

great number of friends.

The recent tough times will recede for the day. I had sugery

on March 16th to remove a mass from my kidney. The dr. had a

great description of the procedure: said the mass was like a

golf ball setting on a tee & all he had to do was a chip

shot. I love it when they think the job is easy. He took

about 5% of the kidney; high chance of malignancy but said

the magic word " cure " for the surgical result. I'm

progressing steadily in a recovery that should take 1 month.

Am still on vicodin but I do well on it and think I can make

the switch to extra-strength tylenol after the weekend.

Yesterday's news was that my sister has small cell lung

cancer. Devasting. Today's news is that the cancer is

limited to one lung & is responsive to treatment. Dazzlingly

Optimistic. Her dr. is optimistic. I told her that one of

her jobs is to make her dr. happy.

Signing off and wishing you all good things as you maintain

good health or walk the path to it. Wish you could all be at

my party. I'll be thinking of you--honest.

Best regards,

Ruth Marcon

dx March 2000

'mini' bmt July 2000

dli Oct. 2000

declared failed bmt

gleevec Nov. 2000

pcru Aug. 2001

We are not a perfect family but we circle the wagons when we

must. They're circled. And we have great hope that all will

be well.

[Guest guest]

Hi Ruth,

I'm glad to hear of your 10-year anniversary. Now let's go for 10 more and a

cure.

M

Bellevue, Wa

>

> To All

>

> I, too, have a 10-yr. anniversary that I mark on the 1st day

> of spring. That was pretty much my diagnosis date. At the

> 1-yr. mark I started my own tradition of passing out

> carnations to friends at this time in March. It made me feel

> good & I was amazed at how happy people were to get this

> simple flower & to be happy for me. 10 years ago I was on

> this site every night. My fear was so great that I couldn't

> do without the stories of others. I was a lurker for a long

> time. Now I'm again a lurker--still buoyed by the stories of

> others and the hope that goes out to all who come to this

> supportive cml community.

>

> This year--on April 24th--I'm having a huge party to

> celebrate 10 yrs. of life after leukemia. (9yrs. of

> remission) We're having an open house at a banquet room in

> the town(PA) Symphony Orchestra building. There will be

> flowers, piano music, drinks and h'ors d'ouvres and cookies,

> lots of cookies, and carnations for guests to take home. All

> my children--4--and their spouses--2--and 4 beautiful

> grandchildren can be there plus my sister & 2 brothers and a

> great number of friends because I'm lucky enough to have a

> great number of friends.

>

> The recent tough times will recede for the day. I had sugery

> on March 16th to remove a mass from my kidney. The dr. had a

> great description of the procedure: said the mass was like a

> golf ball setting on a tee & all he had to do was a chip

> shot. I love it when they think the job is easy. He took

> about 5% of the kidney; high chance of malignancy but said

> the magic word " cure " for the surgical result. I'm

> progressing steadily in a recovery that should take 1 month.

> Am still on vicodin but I do well on it and think I can make

> the switch to extra-strength tylenol after the weekend.

> Yesterday's news was that my sister has small cell lung

> cancer. Devasting. Today's news is that the cancer is

> limited to one lung & is responsive to treatment. Dazzlingly

> Optimistic. Her dr. is optimistic. I told her that one of

> her jobs is to make her dr. happy.

>

> Signing off and wishing you all good things as you maintain

> good health or walk the path to it. Wish you could all be at

> my party. I'll be thinking of you--honest.

>

> Best regards,

>

> Ruth Marcon

>

> dx March 2000

> 'mini' bmt July 2000

> dli Oct. 2000

> declared failed bmt

> gleevec Nov. 2000

> pcru Aug. 2001

>

>

>

> We are not a perfect family but we circle the wagons when we

> must. They're circled. And we have great hope that all will

> be well.

>