Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 Giora, Zavie - good to hear from you - thanks for the info! giora - a trip to Israel is still on my 'bucket list'! Zavie - I still have the envelope from your christmas card years back - it inspired my neices to learn calligraphy! I have a lot of catching up to do - Sprycel, Tasigna, and now Ariad on the horizon... we actually have CHOICES. God what a miracle! Is there actually a possibility of going med free??? !!! I'll definitely check with Dr. Talpaz. Interferon, way back when, gave me a partial remission prior to Gleevec - went from 98% bad cells down to 12% bad cells in the first 8 months (before the side effects kicked in), then it took more and more interferon (up to 9 mil units daily) and my bad cells rose back up to 48% when I took my first dose of Gleevec. I was one of the lucky ones who got to CCR in ~6 months. This combo trial is definitely worth checking out. It looks like the combo trial might be low dose interferon (curious how much an how often) combined with Gleevec. I'll see what Talpaz can offer. But has anyone gone off Gleevec entirely and kept their remission? The combo trials sound like a 'Put the rat ears on again' time. A bit risky.... but then... someone has to go first, right? I've been so busy working and helping to raise money for LLS that I haven't had time to see where the money is going! So glad I checked back in. I can't tell you how happy I am to see '10 year anniversaries' here! Yippeeeee! More later, Gale Quote Link to comment Share on other sites More sharing options...
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