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I have been sent home numerous times when I have had

meningitis. The last time, in December 98, they sent

me home three times even though I was projectile

vomiting, terrible pain. Hubby finally got po'd and

insisted they do something. Now mind you, I have had

meningitis five times, I probably know more about the

disease then they do (in fact I know I do, I've made

myself an expert) but they found it hard to believe

that anyone could have meningitis again. DUH!!!! I'd

just as soon die as go to the ER.

=====

searching for Deborah

dob 1/14/57 in nna, Fl

Relinquished in Chicago, 1961

brother and 5 other siblings searching

Half-sib found 1-16-00!

__________________________________________________

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Terri wrote:

I have been sent home numerous times when I have hadmeningitis... I have had meningitis five times, I probably know more about the disease then they do (in fact I know I do, I've made myself an expert) but they found it hard to believe that anyone could have meningitis again. DUH!!!! I'd just as soon die as go to the ER.

Dear Terri,

When I had meningitis the second time my doctors freaked out, because

they thought the I had a VIRAL sort of meningitis the first time and one

isn't supposed to get a viral meningitis more than once. All they really

knew the first time was that it was non-bacterial in nature (aseptic). Little

did any of us know then that mine were caused by the Sarcoidosis I have.

I've also been sent home a few times because my white cell count in my spinal fluid was not

abnormal. One time was May 1, 1994, and I've had a non-stop headache since

that day (my headache will be 7 years old next week and it will be in the

second grade next fall).

I've since learned that the "chronic recurrent Sarcoid meningitis" I

have can be triggered by ANY sort of virus (i.e. cold or flu). So if I get

exposed to a virus, it can trigger a meningitis attack all over again, but

it won't show in my spinal fluid. One time, an asshole resident actually

laughed when they got the results of my spinal. He thought it was funny

that all I had was "a flu bug." I'd like to shove his head where the sun

don't shine.

So now, I always have a good supply of pain meds on hand so that if this

happens again I will try to manage the pain at home for as long as possible

before I resort to the ER because I've had 10 spinals already (plus 12 epidurals)

and I'm in no hurry for #11, and that's what will happen first if I show

up in an ER with "possible aseptic meningitis." But if I get up to 4 of

the 6 symptoms I get, I'm going because by then I'll be too sick to stay

at home and my wife isn't all that nurturing. No knock on her, but she's

raised her 2 kids and she's just not into nursing someone again. Plus, we

have a pretty good health plan through her work, so why not take advantage

of it?

I guess the one and only advantage to being a Stay-At-Home-Sick-Guy is

that I'm not around people that have kids in school and such that bring their

colds and flus to the office. Not being around people means I'm not around

the viruses either. It's the only upside, believe me.

Take good care, everyone.

Love and hugs,

ie B

fbertaud@...

=====searching for Deborah dob 1/14/57 in nna, FlRelinquished in Chicago, 1961brother and 5 other siblings searchingHalf-sib found 1-16-00!__________________________________________________

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  • 8 years later...
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Dear ,

I have not seen a " nice ER " yet. The triage nurses get really rattled and

are taxed to the max with patients. Sometimes they don't know who to take first

- who is worse off?

Sometimes they write the pain is on the opposite side. I wouldn't want t heir

job. I have been in ER when they took me in first and other times when I was

last. If you are having pain in your chest, you come before everyone else,

unless they are bleeding to death. The nurses keep calm and I want them to be

strong, because if they start falling to pieces, so will the patients. I have

seen patients screaming in pain with a broken leg and kidney stones, but they

are not a priority if someone is having a stroke or heart attack or mortally

wounded. I don't know how they can do their jobs with all that carnage and

people wanting to know why someone went in ahead of them. I just thank goodness

they are there for us. I have found that the cases depicted on TV pretty much

are like in real life. Most hospitals hire a staff of medical personell under

contract and teaching hospitals have interns and residents for the most part and

that is where we clash. I have come toe to toe with some of the " doctors " for

myself as well as for family members, only to return home to my own hospital. I

know your transition will be smooth as a cucumber. LOL

Hands & hearts,

Lottie Duthu

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hahahahahaha -- now THAT is what I call a reality check!

Thank you Lottie.

On Wed, Mar 24, 2010 at 10:28 PM, Lottie Duthu <lotajam@...> wrote:

>

>

> Dear ,

> I have not seen a " nice ER " yet. The triage nurses get really rattled and

> are taxed to the max with patients. Sometimes they don't know who to take

> first - who is worse off?

> Sometimes they write the pain is on the opposite side. I wouldn't want t

> heir job. I have been in ER when they took me in first and other times when

> I was last. If you are having pain in your chest, you come before everyone

> else, unless they are bleeding to death. The nurses keep calm and I want

> them to be strong, because if they start falling to pieces, so will the

> patients. I have seen patients screaming in pain with a broken leg and

> kidney stones, but they are not a priority if someone is having a stroke or

> heart attack or mortally wounded. I don't know how they can do their jobs

> with all that carnage and people wanting to know why someone went in ahead

> of them. I just thank goodness they are there for us. I have found that the

> cases depicted on TV pretty much are like in real life. Most hospitals hire

> a staff of medical personell under contract and teaching hospitals have

> interns and residents for the most part and that is where we clash. I have

> come toe to toe with some of the " doctors " for myself as well as for family

> members, only to return home to my own hospital. I know your transition will

> be smooth as a cucumber. LOL

> Hands & hearts,

> Lottie Duthu

>

>

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