Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Congrats on getting to school today but don’t overdo just to go or you can make it worse later on. From: [mailto: ] On Behalf Of ash_cat_girl Sent: Thursday, May 03, 2007 3:32 PM Subject: YEAH!!!! today was my frist day back to school after 2 or3 mounths of homebounding and i was spose to try going hafe days at frist but i deside i want to try and go full days so i went and luckly i made it throu the day all my mom had to do was bring me some medcen becuas i was in pain the nurce asked me if i need to go home but i want to finsh the day and i did yeah ashley ploy. age 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Congratulations . I remember going back to school after being on homebound it was kind of rough. Just remember to take it easy. I pushed myself back into full days (of course I was a junior in high school at the time) and ended up flaring really bad after a month, luckily it was summer, but it basically ruined the summer for me. Don't push yourself too hard! But good job on getting back to school!! Lots of Love (Juvenile Ankylosing Spondylitis, 22) --- ash_cat_girl <ash_cat_girl@...> wrote: > > today was my frist day back to school after 2 or3 > mounths of > homebounding and i was spose to try going hafe days > at frist but i > deside i want to try and go full days so i went and > luckly i made it > throu the day all my mom had to do was bring me some > medcen becuas i was > in pain the nurce asked me if i need to go home but > i want to finsh the > day and i did yeah > > ashley > > ploy. age 13 > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 : Great job going to school all day! Please remember not to push too hard. Beth & Hannah, 10, unspecified arthritis; asthma; gerd; migraines Sending prayers & happy thoughts, Beth :-) YEAH!!!! today was my frist day back to school after 2 or3 mounths ofhomebounding and i was spose to try going hafe days at frist but ideside i want to try and go full days so i went and luckly i made itthrou the day all my mom had to do was bring me some medcen becuas i wasin pain the nurce asked me if i need to go home but i want to finsh theday and i did yeahashleyploy. age 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 , That is exciting that you made it thru your first full day. Aundrea is also back full-time. There are only a few weeks left of school. I hope that you are able to enjoy the end of year festivities. sonia (aundrea 11 systemic jra/gerd)- -- In , " ash_cat_girl " <ash_cat_girl@...> wrote: > > > today was my frist day back to school after 2 or3 mounths of > homebounding and i was spose to try going hafe days at frist but i > deside i want to try and go full days so i went and luckly i made it > throu the day all my mom had to do was bring me some medcen becuas i was > in pain the nurce asked me if i need to go home but i want to finsh the > day and i did yeah > > ashley > > ploy. age 13 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 that is incredible news. I am so happy for you that you made it back to school and you made it a full day. Congrats!!!!!!!!!!!!!!!!!!!!!! DonnaSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Good for you! Just keep your thoughts positive and you can do anything you want to do. Remember one day at a time. ((((HUGS))))ash_cat_girl <ash_cat_girl@...> wrote: today was my frist day back to school after 2 or3 mounths ofhomebounding and i was spose to try going hafe days at frist but ideside i want to try and go full days so i went and luckly i made itthrou the day all my mom had to do was bring me some medcen becuas i wasin pain the nurce asked me if i need to go home but i want to finsh theday and i did yeahashleyploy. age 13 Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 YES!!! On Mon, Mar 22, 2010 at 11:54 AM, ROBERTA DOYLE <rcd1929@...>wrote: > > > > I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > > a ( Bobby ) Doyle, dob 12/17/29 > Brecksville, Ohio, USA > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.017 > 11/2009 PCR 0.034 > #840 Zavie's Zero Club > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 YES!!!!!!!!!!!!!!!!!!!!!! Sharon Re: [ ] YEAH!!!! YES!!! On Mon, Mar 22, 2010 at 11:54 AM, ROBERTA DOYLE <rcd1929@...>wrote: > > > > I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > > a ( Bobby ) Doyle, dob 12/17/29 > Brecksville, Ohio, USA > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.017 > 11/2009 PCR 0.034 > #840 Zavie's Zero Club > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 whohooooo !!!!!!!!!!!!!!!!! From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] YEAH!!!! " " < > Date: Monday, March 22, 2010, 11:54 AM Â I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!! !!!!!!!!! !!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Congrats!! _____ From: ROBERTA DOYLE [mailto:rcd1929@...] Sent: Monday, March 22, 2010 2:54 PM Subject: [ ] YEAH!!!! I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 GOD IS GOOD ALL THE TIME! ALL THE TIME GOD IS GOOD!!!! Jo-Dee From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] YEAH!!!! " " < > Date: Monday, March 22, 2010, 6:54 PM  I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!! !!!!!!!!! !!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 What wonderful news!!! Yeah!! ________________________________ From: ROBERTA DOYLE <rcd1929@...> < > Sent: Mon, March 22, 2010 1:54:23 PM Subject: [ ] YEAH!!!!  I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!! !!!!!!!!! !!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Bobby, i am sooooooooooo happy for you certainly waited long enough, keep up the good work. Esther > > > I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > > a ( Bobby ) Doyle, dob 12/17/29 > Brecksville, Ohio, USA > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.017 > 11/2009 PCR 0.034 > #840 Zavie's Zero Club > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Woo hoo!! Fabulous. We celebrate and fight on! Virginia Garner Fellow Longtermer Diagnosed 1997 Gleevec Phase 1 Trial Swallowed first Gleevec pills (STI 571) April 19, 1999 PCRU for 2 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Way to go Bobby. I am so happy for you Yeaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!. Eva From: ROBERTA DOYLE Sent: Monday, March 22, 2010 2:54 PM Subject: [ ] YEAH!!!! I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 > > > I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > > a ( Bobby ) Doyle, dob 12/17/29 _______________________________ OMG Bobby......that is amazing! This has got to be a great drug......getting an old timer like you to PCRU.......and also dealing with the dreaded T315i mutation. It is beginning to sound like this might be the best CML drug yet developed. It has been announced that there will be phase 3 trials starting sometime this year, summer or fall........and that is the last stop before FDA approval. What did Dr. Talpaz have to say about you? and this drug so far? Party on!!!! C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Hi a: This is fantastic news, and you have been such a inspiration to try new treatments. This will give so much hope and positive thinking to others. Celebrate and Thank God!!!!!!!!!!!! > > > I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > > a ( Bobby ) Doyle, dob 12/17/29 > Brecksville, Ohio, USA > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.017 > 11/2009 PCR 0.034 > #840 Zavie's Zero Club > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 O!!! YIPPEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: March-22-10 2:54 PM Subject: [ ] YEAH!!!! I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 YEAH!!! Sends a tingle down my spine, I am SO happy for you!!! Huge smiles. You have been an inspiration to all of us, now it's YOUR turn!!!! Hugs and kisses xoxoxo Jackie _____ From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: Tuesday, 23 March 2010 5:54 AM Subject: [ ] YEAH!!!! I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Hi Bobby, What fabulous and deserving news! I am so happy for you, to know for the first time you are " safe " in your CML journey and bring so much hope to all those other survivors out there who are hanging in there. Regards, From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: Tuesday, 23 March 2010 5:54 AM Subject: [ ] YEAH!!!! I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Heartiest congratulations, Bobby! Now would be the time to get a magnum of chamnpagne to go with that crown and sceptre. All the best, Loewenkamp [ ] YEAH!!!! I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 YEE HAWW! CONGRATULATIONS! WOO HOOOOO!!!!! [ ] YEAH!!!! Â I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2010 Report Share Posted March 23, 2010 Great news. Happy for you. Ceil dx 6/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2010 Report Share Posted March 23, 2010 Congratulations, Bobby!!! You're really a shining light to all and your beam is brightest more than ever. You deserve every great blessing :-) Cheers! Aimee A. Sent from my iPod On Mar 23, 2010, at 2:54 AM, ROBERTA DOYLE <rcd1929@...> wrote: I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2010 Report Share Posted March 23, 2010 Bobby... Sending congratulations and best wishes on this great occasion...you are indeed a CML warrior - and great things come to those who wait! You are an inspiration to all here... Cheryl > > > I AM PCRU FOR THE FIRST TIME EVER !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > > a ( Bobby ) Doyle, dob 12/17/29 > Brecksville, Ohio, USA > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.017 > 11/2009 PCR 0.034 > #840 Zavie's Zero Club > > > Quote Link to comment Share on other sites More sharing options...
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