RE: Re: 10+ list

[Guest guest]

Hi ,

There are indeed many more in the 10+ club.

I did a quick scan in my Zero Club list and found 107 CMLers whose diagnosis

is 10 + years. The numbers will grow very quickly. Gleevec was FDA apptoved

less than 10 years ago.

Zavie

Zavie (age 71)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

Tel in FL: 561-429-5507

_____

From: [mailto: ] On Behalf Of

hey00nanc

Sent: March-26-10 2:48 PM

Subject: [ ] Re: 10+ list

--- In groups (DOT) <mailto:%40> com, nchando@...

wrote:

> One thing: I was surprised that the 10+ list wasn't longer. Are there

> others we've known online who haven't made it?

___________________________

Hi , NY,

Yes there are definitely others...some are on other cml lists, like:

Jerry Mayfield

Sharon Ann

Jody Capik

and many of the healthy old timers, especially who's first medication did

the trick for them, are not active on lists anymore...they have moved on.

Gale, you just recently posted, was one of them.

PS Hi Gale.....I will post you a note when I have a bit more time. I have

just moved on to Tasigna (my 3rd drug). On Jerry's list there has been quite

a bit of discussion about the trials to get off drugs, combining with

Peg-inf.....I guess the dose is so low and only once a week, that it is not

very noticeable for many. There is also someone who has a running blog about

his experience....The CML Kid. And Cheryl-Ann from Montreal has experience

with it also. I guess now I don't have to write you another note.

C. (Maui Nanc)