Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Zavie, before you say anything please DO look up EGCG on the internet. It's not a product, it's a natural chemical found in green tea. Wikipedia is a good place to start (http://en.wikipedia.org/wiki/EGCG). And yes, there are websites selling EGCG extracts and advertising green tea as containing powerful antioxidant, a catechin called EGCG with all the advertising blah,blah around it and those will come up in searches first, quite as expected any commercial site would. One needs to go deeper to find out about what's done on scientific level. It takes hours of browsing internet to find a valuable information. not just a pile of nonsense or another shop selling something. Just about anything goes in this internet jungle and try to sieve out something that is really genuine. We can't be ignorant about alternative medications just because doctors prescribe pills made in laboratories, sold by companies (I won't even discuss the monetary side of this business). I made my choice to start drinking green tea to see what happens, in case it helps (AND IT DID!) out of necessity to save my baby from being born prematurely (either by caesarian or through birth induction). I am fully aware of lack of enough scientific evidence in this area (for the EGCG to actually be able to treat leukemia of any kind) and I know there were no trials done with real people like for gleevec or other drugs and experiments that were done on effectiveness of EGCG were performed in petri dishes so far. Still I gave it a try. In the end it's just a natural green tea drink, it doesn't hurt to try it anyway. I'm very happy with my choice so far and I hope it will prove to be the solution if not the cure. I'd rather be drinking green tea till I'm old enough to die (sometime around 2074 when I hit 100) than count Christmases with CML on gleevec, complaining about side effects and wondering if I suddenly become resistant to it etc. You all know that. I can't even express how much I want it to work long term. It's only been just over 3 months since I was diagnosed at 22 weeks of my 4th pregnancy and I'm still stunned at what has been avoided. I'll repeat myself: as of today (29th of Jan 2010) I'm 38 weeks pregnant waiting to give birth to my baby and why is that almost a miracle? I was told my baby will have to be delivered by caesarian at around 30 weeks so I can start gleevec. Instead I've been drinking green tea 3 to 4 times each day since we discovered on the internet it might help reduce wbc count. I had no idea it would actually do it! My doctors want to deliver me and I'm almost fighting with them to leave me alone to enjoy my last days of pregnancy, birth (ideally a home birth) and then the baby herself. There is a lot of panic around me from medical staff to the extent that I started avoiding them. As an example, my belly measured 31 weeks when I was 36 weeks pregnant and despite my saying I've always had small belly in each of my previous pregnancies I was immediately sent to hospital for check-up. Another time babies heart beat was just on the top end and wasn't calming down for a duration of 2 minutes midwife was monitoring and again I had to go to hospital for check-up. Both times everything was absolutely fine. Next thing my obstetrician wants to deliver me like now, because she's pressured from hematology unit and I get phone calls from them (that is hematology nurse, not maternity nurse or a doctor) scaring me that me and my baby might be in danger (just a guess or an opinion, not a fact!) if I leave it any longer, while my obstetrician said she's all fine (I've had my last scan done on tuesday 26th, 3 days ago) and I'm fine as far as I'm concerned. They've never had a pregnant woman with CML before in Shrewsbury Hospital and they look at me as high risk pregnancy and birth. I wish somebody just done some research, phone calls or something and left me alone to be. I'd be first in hospital if there was a serious worry. I do rely on my own intuition in life and especially in this situation I found myself in, suddenly, unexpectedly and unwillingly (I mean CML, not the pregnancy). I've got 3 kids already and I would not risk my life and I will not risk my life if it proves that EGCG in green is not working in the long run. In the meantime all I can do is report on my progress. I came across some awful websites trying to sell magic, amazing, unbelievable etc. remedies for cancer for 100's of dollars and those are the crooks to be avoided. They prey on people who have nothing else to left but look for witchcraft solutions in desperation. Thankfully CML patients are not in this category, but still I will consider gleevec and other similar drugs just a one notch better choice than death from CML. A choice I was sure I will have to make. As long as I can avoid it I will. The rest is to be seen and I don't know where it goes but I'm going there. Zavie, can you please ask the doctors you mentioned if they are aware of any scientific research about EGCG? They should really know about the medical studies done in this area. Click here: http://www.medicalnewstoday.com/articles/151479.php and read for yourself first. My blog http://onephotographaday.wordpress.com/pregnancy-and-cml/ From: Zavie Sent: Friday, January 29, 2010 4:37 AM Subject: RE: [ ] Re: Apricot kernels Hi Tracey, If green tea, apricot kernals, or any substance was a cure for CML, the doctors (Dr. Druker, Dr. Talpaz, Dr. Goldman, etc) would be the first to embrace it. They are in the business of finding a cure for cancer. It is pure propaganda by those trying to promote their own remedy without any independent studies. I recall that Dr. Talpaz was the man who pioneered the use of Interferon Alpha for CML. Once Gleevec was shown to be a much better and safer drug for the treatment of CML, he immediately switched to prescribing Gleevec to his patients. If anyone would show him that green tea, apricot kernals or snake oil cured CML he would be the first to embrace it and switch his patients to it. I never see any scientific data they these compounds actually work. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: [mailto: ] On Behalf Of traceyincanada Sent: January-28-10 9:58 PM Subject: [ ] Re: Apricot kernels I've never heard of it and don't think the explanation for the " cover up " sounds logical at all. Governments are fed up with paying for expensive, over priced drugs, to the point where some are refusing coverage completely. We see this in the UK with Tasigna and Sprycel. Incidentally, I've never seen any government advertise or promote any drug. What possible gain would a government have to promote drugs that are bankrupting them? Tracey > > Has anyone heard of apricot kernels as being a cure? > > I've read that doctors swear on them, but they won't publish something so > simple because of government red tape - the government(s) spends billions of > dollars every year promoting expensive and hard drugs, it would be > embarrassing for such a simple thing to be a cure. > > > > Jackie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Dear , Let me give you my best advice for someone in your situation. Go see a CML specialist who is experienced in treating CML and has experience in treating and guiding CML patients through a pregnancy. It is clear to me that your present doctors and hospital facility lack this experience. I can't believe that your doctor wants you to have a cesaerian just to start Gleevec right away. You owe this to your family and your unborn child. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: [mailto: ] On Behalf Of d'Araille Sent: January-29-10 8:11 AM Subject: [ ] EGCG Green Tea Zavie, before you say anything please DO look up EGCG on the internet. It's not a product, it's a natural chemical found in green tea. Wikipedia is a good place to start (http://en.wikipedia <http://en.wikipedia.org/wiki/EGCG> ..org/wiki/EGCG). And yes, there are websites selling EGCG extracts and advertising green tea as containing powerful antioxidant, a catechin called EGCG with all the advertising blah,blah around it and those will come up in searches first, quite as expected any commercial site would. One needs to go deeper to find out about what's done on scientific level. It takes hours of browsing internet to find a valuable information. not just a pile of nonsense or another shop selling something. Just about anything goes in this internet jungle and try to sieve out something that is really genuine. We can't be ignorant about alternative medications just because doctors prescribe pills made in laboratories, sold by companies (I won't even discuss the monetary side of this business). I made my choice to start drinking green tea to see what happens, in case it helps (AND IT DID!) out of necessity to save my baby from being born prematurely (either by caesarian or through birth induction). I am fully aware of lack of enough scientific evidence in this area (for the EGCG to actually be able to treat leukemia of any kind) and I know there were no trials done with real people like for gleevec or other drugs and experiments that were done on effectiveness of EGCG were performed in petri dishes so far. Still I gave it a try. In the end it's just a natural green tea drink, it doesn't hurt to try it anyway. I'm very happy with my choice so far and I hope it will prove to be the solution if not the cure. I'd rather be drinking green tea till I'm old enough to die (sometime around 2074 when I hit 100) than count Christmases with CML on gleevec, complaining about side effects and wondering if I suddenly become resistant to it etc. You all know that. I can't even express how much I want it to work long term. It's only been just over 3 months since I was diagnosed at 22 weeks of my 4th pregnancy and I'm still stunned at what has been avoided. I'll repeat myself: as of today (29th of Jan 2010) I'm 38 weeks pregnant waiting to give birth to my baby and why is that almost a miracle? I was told my baby will have to be delivered by caesarian at around 30 weeks so I can start gleevec. Instead I've been drinking green tea 3 to 4 times each day since we discovered on the internet it might help reduce wbc count. I had no idea it would actually do it! My doctors want to deliver me and I'm almost fighting with them to leave me alone to enjoy my last days of pregnancy, birth (ideally a home birth) and then the baby herself. There is a lot of panic around me from medical staff to the extent that I started avoiding them. As an example, my belly measured 31 weeks when I was 36 weeks pregnant and despite my saying I've always had small belly in each of my previous pregnancies I was immediately sent to hospital for check-up. Another time babies heart beat was just on the top end and wasn't calming down for a duration of 2 minutes midwife was monitoring and again I had to go to hospital for check-up. Both times everything was absolutely fine. Next thing my obstetrician wants to deliver me like now, because she's pressured from hematology unit and I get phone calls from them (that is hematology nurse, not maternity nurse or a doctor) scaring me that me and my baby might be in danger (just a guess or an opinion, not a fact!) if I leave it any longer, while my obstetrician said she's all fine (I've had my last scan done on tuesday 26th, 3 days ago) and I'm fine as far as I'm concerned. They've never had a pregnant woman with CML before in Shrewsbury Hospital and they look at me as high risk pregnancy and birth. I wish somebody just done some research, phone calls or something and left me alone to be. I'd be first in hospital if there was a serious worry. I do rely on my own intuition in life and especially in this situation I found myself in, suddenly, unexpectedly and unwillingly (I mean CML, not the pregnancy). I've got 3 kids already and I would not risk my life and I will not risk my life if it proves that EGCG in green is not working in the long run. In the meantime all I can do is report on my progress. I came across some awful websites trying to sell magic, amazing, unbelievable etc. remedies for cancer for 100's of dollars and those are the crooks to be avoided. They prey on people who have nothing else to left but look for witchcraft solutions in desperation. Thankfully CML patients are not in this category, but still I will consider gleevec and other similar drugs just a one notch better choice than death from CML. A choice I was sure I will have to make. As long as I can avoid it I will. The rest is to be seen and I don't know where it goes but I'm going there. Zavie, can you please ask the doctors you mentioned if they are aware of any scientific research about EGCG? They should really know about the medical studies done in this area. Click here: http://www.medicaln <http://www.medicalnewstoday.com/articles/151479.php> ewstoday.com/articles/151479.php and read for yourself first. My blog http://onephotograp <http://onephotographaday.wordpress.com/pregnancy-and-cml/> haday.wordpress.com/pregnancy-and-cml/ From: Zavie Sent: Friday, January 29, 2010 4:37 AM groups (DOT) <mailto:%40> com Subject: RE: [ ] Re: Apricot kernels Hi Tracey, If green tea, apricot kernals, or any substance was a cure for CML, the doctors (Dr. Druker, Dr. Talpaz, Dr. Goldman, etc) would be the first to embrace it. They are in the business of finding a cure for cancer. It is pure propaganda by those trying to promote their own remedy without any independent studies. I recall that Dr. Talpaz was the man who pioneered the use of Interferon Alpha for CML. Once Gleevec was shown to be a much better and safer drug for the treatment of CML, he immediately switched to prescribing Gleevec to his patients. If anyone would show him that green tea, apricot kernals or snake oil cured CML he would be the first to embrace it and switch his patients to it. I never see any scientific data they these compounds actually work. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of traceyincanada Sent: January-28-10 9:58 PM groups (DOT) <mailto:%40> com Subject: [ ] Re: Apricot kernels I've never heard of it and don't think the explanation for the " cover up " sounds logical at all. Governments are fed up with paying for expensive, over priced drugs, to the point where some are refusing coverage completely. We see this in the UK with Tasigna and Sprycel. Incidentally, I've never seen any government advertise or promote any drug. What possible gain would a government have to promote drugs that are bankrupting them? Tracey > > Has anyone heard of apricot kernels as being a cure? > > I've read that doctors swear on them, but they won't publish something so > simple because of government red tape - the government(s) spends billions of > dollars every year promoting expensive and hard drugs, it would be > embarrassing for such a simple thing to be a cure. > > > > Jackie > > > > Quote Link to comment Share on other sites More sharing options...
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