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Which is why pellets are not an option for so many.

Blue Cross pays my TRT (cypionate and HCG), with a fairly cheap

copay. Androgel was much more expensive copay. I believe my copay is

10% of the drugs retail price. I really have no interest in pellets,

but it would be interesting to see how much Blue Cross would pay

towards that. It would depend largely on whether the doctor was on

network or not.

On Dec 18, 2007, at 3:51 PM, ernestnolan wrote:

> If I had to pay it myself it would cost about $450/visit three times a

> year or $1350/year. Gasoline for 800 miles for each round trip is

> another cost for me.

>

> In major cities the doctor cost is much more.

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Excessive high T may not be " toxic " but it's not desirable. Excess T

leads to excess E2 conversion, acne, aggression, etc, etc. Maybe not

likely to get adverse effects like that from any competently installed

pellets, but the problem with pellets is that once they're in, you're

stuck with all the side effects of whatever does (too high or too low)

that they implanted amount might cause.

You've been a passionate proponent of pellets for the several years

I've been in the group here, and I'm glad to know of the option, but I

think very few will find them as pleasing an option as you do.

On Dec 18, 2007, at 4:37 PM, ernestnolan wrote:

> High T is not toxic. It could be adjusted with the next set of pellets

> with no problem. Have you heard of this before?

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Yes I have taken a lot of shots from the group about my willingness to

promote pellets.

I also take issue when some one makes a negative comment that seems

not to matter much.

If the pellets dissolve over 4 months, the rare dosage will no longer

be a problem. During that time the conversion of high T to E2 is

probably not a problem. Conversion to E2 is supposed to be more

related to surges of T like high dose shots weekly or several weeks

apart. The pellets dissolve at a constant rate, 24/7 and the patient

rarely has any E2 conversion problems. I have no idea what product is

related to the agression you mention.

Regarding high T causing problems, in only 4 months this should not be

a problem. Too high a dose from pellets has not been mentioned as a

negative in any literature I have read. If you know of an article on

this subject, let me know.

More complaints about not enough T being offered is a big complaint

because the doctor is taking his dosing instructions from

pharmaceutical reps or instructions on the box. Those doctors with

experience understand higher doses are essential.

I do not want to antagonize anyone. The costs can be reasonable if you

can find the few doctors I mentioned. When more doctors become

available competition will hopefully make the fees more reasonable.

ernestnolan

>

> > High T is not toxic. It could be adjusted with the next set of pellets

> > with no problem. Have you heard of this before?

>

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Hi,

Isn't this comment a little off base.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

One other thing about pellets, some of us are NOT RICH, nor were we

born with a silver spoon in our mouth.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I am going to have to take a part time job at Home Depot to make ends

meet as the big wonderful company I worked for just raised the medical

insurance $140./month for retirees.

I drive a 10 year old compact car not a Lexus.

I'll try harder not to upset anyone here as I'm really trying to help

others find a good product.

ernestnolan

> >

> > > I am amazed so many are willing to put up with the regular grind to

> > > get the therapy of daily creams or bi-weekly shots when the

choice of

> > > pellets is available which lasts with no patient involvement for 4

> > > months.

> >

> >

> >

>

>

>

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Your right nolan there are a lot of guys on pellets and doing dam good my wifes

cousn is on them and his Dr. is here in MI. I am going to look him up he gives

him enough pellets to last him 4 months and the poor guy has MS to add to it.

Lets not get nev. about this what works for one may not be good for the other.

I hear if you having trouble with your blood getting to thick on gels or shots

pellets works better.

ernestnolan <ernestnolan@...> wrote: Yes I have taken a lot of

shots from the group about my willingness to

promote pellets.

I also take issue when some one makes a negative comment that seems

not to matter much.

If the pellets dissolve over 4 months, the rare dosage will no longer

be a problem. During that time the conversion of high T to E2 is

probably not a problem. Conversion to E2 is supposed to be more

related to surges of T like high dose shots weekly or several weeks

apart. The pellets dissolve at a constant rate, 24/7 and the patient

rarely has any E2 conversion problems. I have no idea what product is

related to the agression you mention.

Regarding high T causing problems, in only 4 months this should not be

a problem. Too high a dose from pellets has not been mentioned as a

negative in any literature I have read. If you know of an article on

this subject, let me know.

More complaints about not enough T being offered is a big complaint

because the doctor is taking his dosing instructions from

pharmaceutical reps or instructions on the box. Those doctors with

experience understand higher doses are essential.

I do not want to antagonize anyone. The costs can be reasonable if you

can find the few doctors I mentioned. When more doctors become

available competition will hopefully make the fees more reasonable.

ernestnolan

>

> > High T is not toxic. It could be adjusted with the next set of pellets

> > with no problem. Have you heard of this before?

>

Co-Moderator " Don't believe anything you hear and only half of what you see. "

Phil

---------------------------------

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I certainly wasn't taking a shot at you. I specifically said I

appreciate your pointing them out as an option.

T is T...whatever form you take it in. Excess T will lead to excess

E2 unless some proactive action (DIM, Arimidex, etc) is taken. That's

just reality. I got excess E2 conversion from Androgel, and that's

certainly as stable a dosing protocol as pellets if you're consistent

in the application.

I have no literature to support what I am about to say, but you will

never convince me that if the standard dose of pellets is 10 pellets

(?) and the doctor mistakenly puts in 15 pellets that the patient

isn't going to suffer some side effects. Such a statement defies all

logic, and all that we have experienced with other forms of TRT.

I think what got people going in the first place was their perception

from your original post that you were basically saying anyone who

doesn't use pellets should have their head examined. Yes, that's not

what you wrote, and I am sure not what you meant, but I think that was

the perception.

As stated in a previous posting, I personally appreciate that you keep

reminding us of an option that most don't know about or consider, and

encourage everyone to consider and recognize that there are as many

valid and effective dosing and delivery methods for TRT as there are

people. All of us need different amounts, in different forms and

different support chemicals to achieve optimum health. Criticizing

other's methods in negative absolute terms can never be good for the

conversation.

On Dec 19, 2007, at 2:50 PM, ernestnolan wrote:

> Yes I have taken a lot of shots from the group about my willingness to

> promote pellets.

>

> I also take issue when some one makes a negative comment that seems

> not to matter much.

>

> If the pellets dissolve over 4 months, the rare dosage will no longer

> be a problem. During that time the conversion of high T to E2 is

> probably not a problem. Conversion to E2 is supposed to be more

> related to surges of T like high dose shots weekly or several weeks

> apart. The pellets dissolve at a constant rate, 24/7 and the patient

> rarely has any E2 conversion problems. I have no idea what product is

> related to the agression you mention.

>

> Regarding high T causing problems, in only 4 months this should not be

> a problem. Too high a dose from pellets has not been mentioned as a

> negative in any literature I have read. If you know of an article on

> this subject, let me know.

>

> More complaints about not enough T being offered is a big complaint

> because the doctor is taking his dosing instructions from

> pharmaceutical reps or instructions on the box. Those doctors with

> experience understand higher doses are essential.

>

> I do not want to antagonize anyone. The costs can be reasonable if you

> can find the few doctors I mentioned. When more doctors become

> available competition will hopefully make the fees more reasonable.

>

> ernestnolan

>

>

>>

>>> High T is not toxic. It could be adjusted with the next set of

>>> pellets

>>> with no problem. Have you heard of this before?

>>

>

>

>

>

>

>

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  • 1 year later...
Guest guest

Hi jill,

He sounds quite promising- others have had far worse

reactions from docs!! Are you going back in another 6 weeks for

retesting- doc should be aiming for TSH of around1.0 so it does sound if

that he has the right idea ( 90% of healthy folk have a TSH of

around1.0) Then if at that level you still feel awful, then ask to see

endo with a view to Armour- no point in being difficult unnecessarily-

after all T4 may suit you.

Subject: latest results

Hi all,

hope you are all having a great time in this lovely weather...!!

Ok here goes, went to docs today to get results of bloods taken a

fortnight ago.

TSH 4.0 (0.0 -4.0)

T4 16 (4.0-24.0)

that was all was done, and docs says endo wants me to be on lower end of

TSH scale so increased my LT to 75mcg a day from 50mcg, and the bloods

were taken 6 weeks on 50mcg daily.

Bye for now

Luv

Jill

X

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Guest guest

Hi jenny,

yes I am , and docs want results before see endo at end of july. I posted the

other day saying had a flood in house 2 days after got results and having quite

a stressful time. Was looking for some advice whether to go back to doc and see

if anything could be done as don't want health compromised by the stress even

though am trying to stay calm as possible, or because only increased LT last

week shouldn't push it, was maybe thinking along T3 route or another supplement,

I already take selenium,ACId Extra, NAE (1), 1000mg vitc, 1000iuvitd, and 1000mg

omega3/6, and mulitivit with probiotic.

The advice to to supress TSH came from endo not doc, and had actuallu had to

push for a referral to endo in first place and employ some nepotism, as I have a

friend whos hubbie is a consultant where endo works. the first I mentioned TPA

was last week when got latest results and he was very sceptical as say and

didn't want me brainwashed against T4/LT.

Jill

Xx

>

> Hi jill,

> He sounds quite promising- others have had far worse

> reactions from docs!! Are you going back in another 6 weeks for

> retesting- doc should be aiming for TSH of around1.0 so it does sound if

> >

> Subject: latest results

>

>

>

>

> Hi all,

>

>

> Ok here goes, went to docs today to get results of bloods taken a

> fortnight ago.

>

> TSH 4.0 (0.0 -4.0)

> T4 16 (4.0-24.0)

>

> that was all was done, and docs says endo wants me to be on lower end of

> TSH scale so increased my LT to 75mcg a day from 50mcg, and the bloods

> were taken 6 weeks on 50mcg daily.

>

> Bye for now

> Luv

> Jill

> X

>

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Guest guest

Hi jill,

Best to give T4 a proper chance- if they will increase dosage

reasonably fast as it will be easier for you if the simple route works.

I know it's difficult, but increasing too quickly may stress the heart

so they tend to go slowly, or the results can be awful.

If you are thinking of another supplement I would consider zinc as it is

low in the soils of the UK and vital for conversion of T4 to T3. many

multivits don't contain the full 15 mg and make sure you are getting

copper too as these work together- Holland and Barrett do a combo.

Subject: Re: latest results

Hi jenny,

yes I am , and docs want results before see endo at end of july. I

posted the other day saying had a flood in house 2 days after got

results and having quite a stressful time. Was looking for some advice

whether to go back to doc and see if anything could be done as don't

want health compromised by the stress even though am trying to stay calm

as possible, or because only increased LT last week shouldn't push it,

was maybe thinking along T3 route or another supplement, I already take

selenium,ACId Extra, NAE (1), 1000mg vitc, 1000iuvitd, and 1000mg

omega3/6, and mulitivit with probiotic.

The advice to to supress TSH came from endo not doc, and had actuallu

had to push for a referral to endo in first place and employ some

nepotism, as I have a friend whos hubbie is a consultant where endo

works. the first I mentioned TPA was last week when got latest results

and he was very sceptical as say and didn't want me brainwashed against

T4/LT.

Jill

Xx

>

> Hi jill,

> He sounds quite promising- others have had far worse

> reactions from docs!! Are you going back in another 6 weeks for

> retesting- doc should be aiming for TSH of around1.0 so it does sound

if

> >

> Subject: latest results

>

>

>

>

> Hi all,

>

>

> Ok here goes, went to docs today to get results of bloods taken a

> fortnight ago.

>

> TSH 4.0 (0.0 -4.0)

> T4 16 (4.0-24.0)

>

> that was all was done, and docs says endo wants me to be on lower end

of

> TSH scale so increased my LT to 75mcg a day from 50mcg, and the bloods

> were taken 6 weeks on 50mcg daily.

>

> Bye for now

> Luv

> Jill

> X

>

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

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  • 10 months later...
Guest guest

Hi All

Diagnosed in Nov '05 and classed as high risk (though I was told yesterday

that's normal), my BCR-ABL results before the last test were 0.001 (on

diagnosis 375%!) How many log reduction is that?! :-). Yesterday it was

confirmed that no CML cells were detected - PCRU! I'm in a state of

conservative shock. Also, my Glivec trough levels have been over 2,500

(normal level is 1,000), so they're going to take a blood test and see if I

can now come down to 400mg. I've been on 600mg for the past 7 months, prior

to that 800mg since diagnosis.

I was hoping to try the Tasigna trial at RMH but my doctors laughed

yesterday saying " why would you want to do that with these results? " I'm not

eligible anyway.

I've got a list of side effects as long as my arm and beyond, but I am truly

grateful to all the doctors for their research prior to Dr Druker, Dr Druker

himself of course who will remain my hero, my own doctors, and ALL you guys

for listening to all my whinges in the past.

I know Glivec can bounce around a bit but even this little bit of joy feels

SOOOOOOOOO good.

Hugs and kisses to you all,

Jackie

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database 5045 (20100420) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset.com

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database 5045 (20100420) __________

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Guest guest

Congratulations Jackie! That is wonderful news! :-)

RE: [ ] Latest results

 

Hi All

Diagnosed in Nov '05 and classed as high risk (though I was told yesterday

that's normal), my BCR-ABL results before the last test were 0.001 (on

diagnosis 375%!) How many log reduction is that?! :-). Yesterday it was

confirmed that no CML cells were detected - PCRU! I'm in a state of

conservative shock. Also, my Glivec trough levels have been over 2,500

(normal level is 1,000), so they're going to take a blood test and see if I

can now come down to 400mg. I've been on 600mg for the past 7 months, prior

to that 800mg since diagnosis.

I was hoping to try the Tasigna trial at RMH but my doctors laughed

yesterday saying " why would you want to do that with these results? " I'm not

eligible anyway.

I've got a list of side effects as long as my arm and beyond, but I am truly

grateful to all the doctors for their research prior to Dr Druker, Dr Druker

himself of course who will remain my hero, my own doctors, and ALL you guys

for listening to all my whinges in the past.

I know Glivec can bounce around a bit but even this little bit of joy feels

SOOOOOOOOO good.

Hugs and kisses to you all,

Jackie

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset.com

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset.com

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Guest guest

CONGRATS AND BLESSINGS!!!

Jo-Dee

From: bethgalliart@... <bethgalliart@...>

Subject: Re: [ ] Latest results

Date: Wednesday, April 21, 2010, 9:16 AM

 

Congratulations Jackie! That is wonderful news! :-)

RE: [ ] Latest results

 

Hi All

Diagnosed in Nov '05 and classed as high risk (though I was told yesterday

that's normal), my BCR-ABL results before the last test were 0.001 (on

diagnosis 375%!) How many log reduction is that?! :-). Yesterday it was

confirmed that no CML cells were detected - PCRU! I'm in a state of

conservative shock. Also, my Glivec trough levels have been over 2,500

(normal level is 1,000), so they're going to take a blood test and see if I

can now come down to 400mg. I've been on 600mg for the past 7 months, prior

to that 800mg since diagnosis.

I was hoping to try the Tasigna trial at RMH but my doctors laughed

yesterday saying " why would you want to do that with these results? " I'm not

eligible anyway.

I've got a list of side effects as long as my arm and beyond, but I am truly

grateful to all the doctors for their research prior to Dr Druker, Dr Druker

himself of course who will remain my hero, my own doctors, and ALL you guys

for listening to all my whinges in the past.

I know Glivec can bounce around a bit but even this little bit of joy feels

SOOOOOOOOO good.

Hugs and kisses to you all,

Jackie

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset. com

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset. com

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Guest guest

Congratulations J;ackie

T

Sent from my Verizon Wireless BlackBerry

Re: [ ] Latest results

Date: Wednesday, April 21, 2010, 9:16 AM

 

Congratulations Jackie! That is wonderful news! :-)

RE: [ ] Latest results

 

Hi All

Diagnosed in Nov '05 and classed as high risk (though I was told yesterday

that's normal), my BCR-ABL results before the last test were 0.001 (on

diagnosis 375%!) How many log reduction is that?! :-). Yesterday it was

confirmed that no CML cells were detected - PCRU! I'm in a state of

conservative shock. Also, my Glivec trough levels have been over 2,500

(normal level is 1,000), so they're going to take a blood test and see if I

can now come down to 400mg. I've been on 600mg for the past 7 months, prior

to that 800mg since diagnosis.

I was hoping to try the Tasigna trial at RMH but my doctors laughed

yesterday saying " why would you want to do that with these results? " I'm not

eligible anyway.

I've got a list of side effects as long as my arm and beyond, but I am truly

grateful to all the doctors for their research prior to Dr Druker, Dr Druker

himself of course who will remain my hero, my own doctors, and ALL you guys

for listening to all my whinges in the past.

I know Glivec can bounce around a bit but even this little bit of joy feels

SOOOOOOOOO good.

Hugs and kisses to you all,

Jackie

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420)__________

The message was checked by ESET NOD32 Antivirus.

http://www.eset. com

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420)__________

The message was checked by ESET NOD32 Antivirus.

http://www.eset. com

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Guest guest

GREAT NEWS, CONGRATULATIONS!! Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: mtadros9@... <mtadros9@...>

Subject: Re: [ ] Latest results

" CML Group " < >

Date: Wednesday, April 21, 2010, 1:43 PM

 

Congratulations J;ackie

T

Sent from my Verizon Wireless BlackBerry

Re: [ ] Latest results

groups (DOT) com

Date: Wednesday, April 21, 2010, 9:16 AM

 

Congratulations Jackie! That is wonderful news! :-)

RE: [ ] Latest results

 

Hi All

Diagnosed in Nov '05 and classed as high risk (though I was told yesterday

that's normal), my BCR-ABL results before the last test were 0.001 (on

diagnosis 375%!) How many log reduction is that?! :-). Yesterday it was

confirmed that no CML cells were detected - PCRU! I'm in a state of

conservative shock. Also, my Glivec trough levels have been over 2,500

(normal level is 1,000), so they're going to take a blood test and see if I

can now come down to 400mg. I've been on 600mg for the past 7 months, prior

to that 800mg since diagnosis.

I was hoping to try the Tasigna trial at RMH but my doctors laughed

yesterday saying " why would you want to do that with these results? " I'm not

eligible anyway.

I've got a list of side effects as long as my arm and beyond, but I am truly

grateful to all the doctors for their research prior to Dr Druker, Dr Druker

himself of course who will remain my hero, my own doctors, and ALL you guys

for listening to all my whinges in the past.

I know Glivec can bounce around a bit but even this little bit of joy feels

SOOOOOOOOO good.

Hugs and kisses to you all,

Jackie

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420)__ ________

The message was checked by ESET NOD32 Antivirus.

http://www.eset. com

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420)__ ________

The message was checked by ESET NOD32 Antivirus.

http://www.eset. com

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Guest guest

Congratulation Jackie, you need to celebrate your good results

T

Sent from my Verizon Wireless BlackBerry

RE: [ ] Latest results

Hi All

Diagnosed in Nov '05 and classed as high risk (though I was told yesterday

that's normal), my BCR-ABL results before the last test were 0.001 (on

diagnosis 375%!) How many log reduction is that?! :-). Yesterday it was

confirmed that no CML cells were detected - PCRU! I'm in a state of

conservative shock. Also, my Glivec trough levels have been over 2,500

(normal level is 1,000), so they're going to take a blood test and see if I

can now come down to 400mg. I've been on 600mg for the past 7 months, prior

to that 800mg since diagnosis.

I was hoping to try the Tasigna trial at RMH but my doctors laughed

yesterday saying " why would you want to do that with these results? " I'm not

eligible anyway.

I've got a list of side effects as long as my arm and beyond, but I am truly

grateful to all the doctors for their research prior to Dr Druker, Dr Druker

himself of course who will remain my hero, my own doctors, and ALL you guys

for listening to all my whinges in the past.

I know Glivec can bounce around a bit but even this little bit of joy feels

SOOOOOOOOO good.

Hugs and kisses to you all,

Jackie

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset.com

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset.com

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Guest guest

________________________________

From: " mtadros9@... " <mtadros9@...>

CML Group < >

Sent: Mon, April 26, 2010 10:49:54 PM

Subject: Re: [ ] Latest results

Congratulation Jackie, you need to celebrate your good results

T

Sent from my Verizon Wireless BlackBerry

RE: [ ] Latest results

Hi All

Diagnosed in Nov '05 and classed as high risk (though I was told yesterday

that's normal), my BCR-ABL results before the last test were 0.001 (on

diagnosis 375%!) How many log reduction is that?! :-). Yesterday it was

confirmed that no CML cells were detected - PCRU! I'm in a state of

conservative shock. Also, my Glivec trough levels have been over 2,500

(normal level is 1,000), so they're going to take a blood test and see if I

can now come down to 400mg. I've been on 600mg for the past 7 months, prior

to that 800mg since diagnosis.

I was hoping to try the Tasigna trial at RMH but my doctors laughed

yesterday saying " why would you want to do that with these results? " I'm not

eligible anyway.

I've got a list of side effects as long as my arm and beyond, but I am truly

grateful to all the doctors for their research prior to Dr Druker, Dr Druker

himself of course who will remain my hero, my own doctors, and ALL you guys

for listening to all my whinges in the past.

I know Glivec can bounce around a bit but even this little bit of joy feels

SOOOOOOOOO good.

Hugs and kisses to you all,

Jackie

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset. com

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 5045 (20100420) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset. com

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  • 9 months later...

Hi dolly, Are you taking any T4, or are you just on the T3? That is still a tiny doseand you're only half way up the range, so it's a pity you are having tolerance problems. How about zinc and selenium- most folk in the UK are short of these as they are low in our soils, so well worth supplementing while you try to increase your iron- but at least that is heading in the right direction- can your endo not talk to the haematologist- or maybe he knows him already??? > thyroid treatment > From: dollymedlock@...> Date: Thu, 3 Feb 2011 11:38:39 +0000> Subject: Latest Results> > I have been on first 5mcg T3 daily for three weeks from 4 December and then 2 x 5mcg daily since 24 December. I can't seem to get any higher at the moment, without experiencing high levels of anxiety and paranoia, which I can well do without.> > Seeing consultant on Monday – results are in, with November 2010 results in brackets:> > TSH (0.35-6) 2.59 (3.18)> T4 (9-26) 10.4 (13)> T3 (2.8-7) 4.1> > Ferritin (15-150) 40 (36)> B12 (191-663) 887 (745)> Folate (3.8-16) 13.3 (7.7)> > I am still only taking one ferrous fumarate tablet a day, which is all my stomach will tolerate and in eleven months my ferritin has risen from 16 to 40, so I still have a long way to go. I reckon that will take another year at least. Iron therapy is available to me, even though the endo has put me forward for it before, because the head haematologist doesn't know the difference between Hb and ferritin! I was told by the endo that if I could get iron injections any other way from someone I trust, then I should do so. Have not found anyone who can help because of the availability of the product.> > B12 goes up and down depending on how often I take a supplement. If I take one every day my level goes up to about 1200 and the GP gets nervous. Folate has leapt up, having previously been in a steady decline for over a year. I have not been supplementing.> > TSH has come down a bit, but not as much as I had hoped. T4 is down, which I believe is to be expected with T3. I had my bloods done on Monday at 0800 and had not taken any T3 since Sunday morning, so that may explain why that reading is not higher. Did I do the right thing?> > > D> > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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nudge

>

> I have been on first 5mcg T3 daily for three weeks from 4 December and then 2

x 5mcg daily since 24 December. I can't seem to get any higher at the moment,

without experiencing high levels of anxiety and paranoia, which I can well do

without.

>

> Seeing consultant on Monday – results are in, with November 2010 results in

brackets:

>

> TSH (0.35-6) 2.59 (3.18)

> T4 (9-26) 10.4 (13)

> T3 (2.8-7) 4.1

>

> Ferritin (15-150) 40 (36)

> B12 (191-663) 887 (745)

> Folate (3.8-16) 13.3 (7.7)

>

> I am still only taking one ferrous fumarate tablet a day, which is all my

stomach will tolerate and in eleven months my ferritin has risen from 16 to 40,

so I still have a long way to go. I reckon that will take another year at least.

Iron therapy is available to me, even though the endo has put me forward for it

before, because the head haematologist doesn't know the difference between Hb

and ferritin! I was told by the endo that if I could get iron injections any

other way from someone I trust, then I should do so. Have not found anyone who

can help because of the availability of the product.

>

> B12 goes up and down depending on how often I take a supplement. If I take

one every day my level goes up to about 1200 and the GP gets nervous. Folate

has leapt up, having previously been in a steady decline for over a year. I

have not been supplementing.

>

> TSH has come down a bit, but not as much as I had hoped. T4 is down, which I

believe is to be expected with T3. I had my bloods done on Monday at 0800 and

had not taken any T3 since Sunday morning, so that may explain why that reading

is not higher. Did I do the right thing?

>

> Don't feel as good as I did a couple of weeks ago – the aches and pains are

creeping back and the unrefreshing sleep, but I will keep trying to work at an

increase.

>

> Does anyone have any comments?

>

> D

>

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