Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 , Everyone is trained differently but... We clean the top of the vial with alcohol, put ~10 cc air into a 2.5 g vial with a 18 gauge needle/syringe, and then turn the vial upsidedown, and gently pull IgG into our syringe. (I've found that the generic tegaderm that comes with our needles is different form the branded tegaderm. We've used plastic wrap for EMLA when her skin is irritated and can't use tegaderm during infusion -- we use the stretchy hypafix tape but there are many other choices as well.) Maybe home health could help? They've sent us a 1 g vial replacement in the past -- when we had a spill due to product (tubing) failure. Let them know about the defective spike -- dig up the lot number. In the worst scenario, I'd document what happened. With IgG levels that solid, it's hard to imagine an immediate problem -- but I'd definitely let doc know. ________________________________ From: <bluetaelon@...> Sent: Saturday, November 22, 2008 12:05:56 AM Subject: oh no! Defective spike caused drug to spill! This has been a bad week for infusion, we tried infusing on schedule Monday and something was wrong with the new tagaderms, they didn't stick very well and they caused dd to claw at her skin to the point of bleeding from itching so I couldn't apply the emla. Its been one thing after another as to why we didn't get to infuse again until tonight, got the emla applied and was ready. Tried to pull the drug out of the vial and the drug came shooting out of the 2nd port on the spike! We ended up loosing 6ml out of 25. We were supposed to infuse last night then again on Monday to catch up and get us back on schedule. Last night's infusion didn't happen but tonight we finally managed it:) Now I worry though, we lost 6 ml and were 4 days late infusing. DD's IGG was almost 1300 a couple weeks ago so her numbers are staying up so were good there but do I really need to worry? Everyone is out for the next week for the holiday so there's no one to call. 8 CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Hi , It should not be a problem. 1300 should carry her over. Remember you will be infusing again in a week so she should maintain. They actually just lowered my sons dose because he was 1300 as well. Even though he has gained wt 50lbs and 5 inches in the past 90 days. I have had weeks like you are saying as well as my son REFUSES to let me do his infusions. BARBIE ________________________________ From: <bluetaelon@...> Sent: Saturday, November 22, 2008 2:05:56 AM Subject: oh no! Defective spike caused drug to spill! This has been a bad week for infusion, we tried infusing on schedule Monday and something was wrong with the new tagaderms, they didn't stick very well and they caused dd to claw at her skin to the point of bleeding from itching so I couldn't apply the emla. Its been one thing after another as to why we didn't get to infuse again until tonight, got the emla applied and was ready. Tried to pull the drug out of the vial and the drug came shooting out of the 2nd port on the spike! We ended up loosing 6ml out of 25. We were supposed to infuse last night then again on Monday to catch up and get us back on schedule. Last night's infusion didn't happen but tonight we finally managed it:) Now I worry though, we lost 6 ml and were 4 days late infusing. DD's IGG was almost 1300 a couple weeks ago so her numbers are staying up so were good there but do I really need to worry? Everyone is out for the next week for the holiday so there's no one to call. 8 CVID Quote Link to comment Share on other sites More sharing options...
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