Something old and and something new ... maybe

[Guest guest]

Hello All,

Long time no see... but still see familiar names here after a few years. Zavie

- what is my zero number again - I actually forgot - and I can't blame that on

interferon! hahaha! I think I'm #112 (aka Gale Woliver, way back then...)

Anyway, still on the Gleevec, wasn't supposed to live past 46 and just turned

the half a century mark last November... but... now

thinking about switching to Sprycel.

And before I make that decision - have to check with you guys first...

I've read a few good things just tonight.

whatcha think ? I do not want to lose my zero club status, you know. Gleevec

has been good to me for these last 9 years, but having a bit more edema,

achiness and weight gain (and don't tell me it's because I just turned 50 - or

I'll shoot ya!)

To your good marrow,

Gale Bacon (aka Woliver)

gleevec 400mgs, 9 years and counting

[Guest guest]

Dear Gale

it is so good to hear from you. our journey is very similar and we are both on

400 mg for more than 9 years now, and keeping our molecular remision.

I realy dont know what to tell you regarding the switch to sprycel. on one hand

i truly believe that winning horses should not be switched, and glivec surely

has been a winning horse for you. on the other hand you have to face the side

effects and deal with them on daily basis, so noone can give you an advise.

only one question to think about- one of sprycel side effects is plural

effusion. if you already suffer from stronger edema i will double check with my

dr why switch to sprycel and not tasigna for example?

i wish you good luck no matter which way you go

take care

Giora

[ ] Something old and and something new ... maybe

Hello All,

Long time no see... but still see familiar names here after a few years. Zavie

- what is my zero number again - I actually forgot - and I can't blame that on

interferon! hahaha! I think I'm #112 (aka Gale Woliver, way back then...)

Anyway, still on the Gleevec, wasn't supposed to live past 46 and just turned

the half a century mark last November... but... now

thinking about switching to Sprycel.

And before I make that decision - have to check with you guys first...

I've read a few good things just tonight.

whatcha think ? I do not want to lose my zero club status, you know. Gleevec

has been good to me for these last 9 years, but having a bit more edema,

achiness and weight gain (and don't tell me it's because I just turned 50 - or

I'll shoot ya!)

To your good marrow,

Gale Bacon (aka Woliver)

gleevec 400mgs, 9 years and counting

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The message was checked by ESET Smart Security.

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[Guest guest]

Hi Gale,

It is great to hear from you again, and your memory hasn't failed you. Your

Zero Club number is 112.

Before switching drugs, why not contact Dr. Talpaz to see if you qualify for

the Combo Trial to see if you can go off Gleevec completely.

Zavie

Zavie (age 71)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

Tel in FL: 561-429-5507

_____

From: [mailto: ] On Behalf Of

divergale

Sent: March-23-10 12:58 AM

Subject: [ ] Something old and and something new ... maybe

Hello All,

Long time no see... but still see familiar names here after a few years.

Zavie - what is my zero number again - I actually forgot - and I can't blame

that on interferon! hahaha! I think I'm #112 (aka Gale Woliver, way back

then...)

Anyway, still on the Gleevec, wasn't supposed to live past 46 and just

turned the half a century mark last November... but... now

thinking about switching to Sprycel.

And before I make that decision - have to check with you guys first...

I've read a few good things just tonight.

whatcha think ? I do not want to lose my zero club status, you know. Gleevec

has been good to me for these last 9 years, but having a bit more edema,

achiness and weight gain (and don't tell me it's because I just turned 50 -

or I'll shoot ya!)

To your good marrow,

Gale Bacon (aka Woliver)

gleevec 400mgs, 9 years and counting

[Guest guest]

Zavie do have dr. Talpez e-mail address

T

Sent from my Verizon Wireless BlackBerry

[ ] Something old and and something new ... maybe

Hello All,

Long time no see... but still see familiar names here after a few years.

Zavie - what is my zero number again - I actually forgot - and I can't blame

that on interferon! hahaha! I think I'm #112 (aka Gale Woliver, way back

then...)

Anyway, still on the Gleevec, wasn't supposed to live past 46 and just

turned the half a century mark last November... but... now

thinking about switching to Sprycel.

And before I make that decision - have to check with you guys first...

I've read a few good things just tonight.

whatcha think ? I do not want to lose my zero club status, you know. Gleevec

has been good to me for these last 9 years, but having a bit more edema,

achiness and weight gain (and don't tell me it's because I just turned 50 -

or I'll shoot ya!)

To your good marrow,

Gale Bacon (aka Woliver)

gleevec 400mgs, 9 years and counting

[Guest guest]

Dr. Moishe Talpaz

mtalpaz@...

734-764-8195

Zavie (age 71)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

Tel in FL: 561-429-5507

_____

From: [mailto: ] On Behalf Of

mtadros9@...

Sent: March-23-10 10:08 AM

CML Group

Subject: Re: [ ] Something old and and something new ... maybe

Zavie do have dr. Talpez e-mail address

T

Sent from my Verizon Wireless BlackBerry

[ ] Something old and and something new ... maybe

Hello All,

Long time no see... but still see familiar names here after a few years.

Zavie - what is my zero number again - I actually forgot - and I can't blame

that on interferon! hahaha! I think I'm #112 (aka Gale Woliver, way back

then...)

Anyway, still on the Gleevec, wasn't supposed to live past 46 and just

turned the half a century mark last November... but... now

thinking about switching to Sprycel.

And before I make that decision - have to check with you guys first...

I've read a few good things just tonight.

whatcha think ? I do not want to lose my zero club status, you know. Gleevec

has been good to me for these last 9 years, but having a bit more edema,

achiness and weight gain (and don't tell me it's because I just turned 50 -

or I'll shoot ya!)

To your good marrow,

Gale Bacon (aka Woliver)

gleevec 400mgs, 9 years and counting

[Guest guest]

Does anyone know if this trial is just for Gleevec users? 

From: Zavie <zmiller@...>

Subject: RE: [ ] Something old and and something new ... maybe

Date: Tuesday, March 23, 2010, 8:54 AM

 

Dr. Moishe Talpaz

mtalpazmed (DOT) umich.edu

734-764-8195

Zavie (age 71)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

4.0 log reduction Dec/09

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

Tel in FL: 561-429-5507

_____

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of

mtadros9comcast (DOT) net

Sent: March-23-10 10:08 AM

CML Group

Subject: Re: [ ] Something old and and something new ... maybe

Zavie do have dr. Talpez e-mail address

T

Sent from my Verizon Wireless BlackBerry

[ ] Something old and and something new ... maybe

Hello All,

Long time no see... but still see familiar names here after a few years.

Zavie - what is my zero number again - I actually forgot - and I can't blame

that on interferon! hahaha! I think I'm #112 (aka Gale Woliver, way back

then...)

Anyway, still on the Gleevec, wasn't supposed to live past 46 and just

turned the half a century mark last November... but... now

thinking about switching to Sprycel.

And before I make that decision - have to check with you guys first...

I've read a few good things just tonight.

whatcha think ? I do not want to lose my zero club status, you know. Gleevec

has been good to me for these last 9 years, but having a bit more edema,

achiness and weight gain (and don't tell me it's because I just turned 50 -

or I'll shoot ya!)

To your good marrow,

Gale Bacon (aka Woliver)

gleevec 400mgs, 9 years and counting