Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 Hi everyone, Good day. I'm Aimee from the Manila, Philippines. Last February 7, 2010, Aia, our 18 year old daughter (eldest of our 2 girls), was diagnosed with CML- accelerated (now at chronic) phase. Like everyone else here at the onset, our family has been so blown away and very downhearted by the turn of events. We initially just went to her Pediatrician that weekend to have a follow-up check why she was experiencing edema in her ankles (on and off for 2 months) and her abdomen got somehow distended (became evident to us in the last days of January). She was admitted and was supposed to be worked up for suspected Nephritis but BOOM! came the CML diagnosis a day after admission. She spent 2 weeks at the hospital and was put on hydroxyurea, allopurinol, and sultamicillin. She underwent BMA, where one of the 2 tests confirmed it is CML. We're waiting for the result of the other one. She lost a lot of weight during confinement with a week of nausea, vomiting and high fever. We're home now and she's feeling and looking much better and moving about normally but she had to refrain from school to avoid meantime. She has no pain, no discomfort, thank God. She's still on hydroxyurea and allopurinol. She has weekly tests to monitor her blood statistics especially the WBC. She started with 343,000K (2/06/10) and as of now it's at 78,000K (3/04/10). Still very high but we're glad it is going down. Her oncologist/hematologist already told us that Aia will be put on Glivec once her blood stats are more ideal. Being new here, (i joined over the weekend) there are a lot of CML jargons and medical terms that I still do not understand but I find comfort knowing we are not alone in this fight and seeing that a lot of you here have gone more than 5 years and living normal lives gives my family strength and hope. I still have so much to say and ask but I don't know where to start. To be honest, I can't even bring myself to read much on CML- maybe not at this point. My husband does all the reading and research and just tells me what is necessary to know. Hopefully I will be able to gain full understanding of CML soonest. I've immersed myself in prayers and I'm holding on to my faith. My daughter is on high spirits and keeps a very positive outlook. We hope we can keep her feeling that way. God bless all of you here... all the high hopes and love, Aimee Alvarez Manila, Philippines Quote Link to comment Share on other sites More sharing options...
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