Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Hi , I'm from your neighboring state of IOWA. I also had the T315I mutation and am in the Ariad trial. You are going to Ann Arbor for the trial? That's great. I hope you get to meet Bobby and Len if she's there when you are. I have not had the opportunity to meet Bobby (face to face :-) ) but you will love her company. Best to you in the trial. I take 15mg also and have been doing really well with minimal side effects. I have developed ceo but that could be due to forced menopause too. I'm 49 and had my ovaries removed a couple years ago. God's Blessings. Jackie S. dx 4/14/04 ________________________________ From: ROBERTA DOYLE <rcd1929@...> Sent: Sun, February 7, 2010 8:47:38 PM Subject: Re: [ ] Ariad Trial DO YOU HAVE A FAX? I CAN FAX YOU MY CALENDER FOR THE FIRST COUPLE OF WEEKS OF THE TRIAL AND YOU WILL KNOW EXACTLY WHAT TO EXPECT. IF NOT, I WILL JUST TYPE IT OUT FOR YOU. a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: karenlinscott <karenlinscott> Subject: [ ] Ariad Trial groups (DOT) com Date: Sunday, February 7, 2010, 9:56 AM On Friday I found out I have the T315i mutation. I met with Dr. Talpaz and will be starting the Ariad trial ASAP. I was dx 8/05 and Gleevec worked for 4 years but recently went on Sprycel which was not effective. Any others on this trial to offer support and information? Thank you! Quote Link to comment Share on other sites More sharing options...
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