Update on Seraj.

[Guest guest]

Hello all.

I am going to go see Serajs ped and see if she can shed some light on

this, I called her office and left a message about the whole testing

they did. Hopefully she can get the results and I can look at them.

I'm sure she may want to refer me to a immunologist, we have at least

4 that I saw that take his insurance that are in the city we live. If

anyone knows a really immunologist in Topeka Kansas, I would love

some recommendations, I am very hesitent when it comes to getting

docs. You never know who is going to fight to find the answer or

someone that is going to look at me like I am wasting my time and

throw lame excuses in my face about why he was so sick so many times.

If the answer doesn't fit the question I am going to keep looking, I

have to be mmy sons voice.

My sons ped I know won't give up, she is great she is the one that

suspected something might be wrong.

Does anyone know what blood tests they are suppose to run?

If I can get a list of that then I might be able to determine if they

ran the right tests or any of them.

As always this group has been a godsend to me. I really appreciate

all the advice and friendliness that is here.

Even my own family wants to take the test results and I think that I

am going to far, so when I can't get any support from them,I reach

out to you guys and I find the support I need.

This group is awesome.

Thanks again.

.

Mom 2 Seraj (16 months old, struggling to get a diagnosis that makes

sense)