Re: I really am a special case LOL

March 19, 2010

Wow, a 3% log reduction is great, congrats!Â do you mind sharing your diet and

excercise program as I have been carrying the same 40 lb gain from the meds.

From: thornton_cheryl <thornton_cheryl@...>

Subject: [ ] I really am a " special case " LOL

Date: Friday, March 19, 2010, 1:25 PM

Â

Hello All!

I met with the transplant Dr. in Hamilton and my local Dr. this week and wanted

to give you an update...

Transplant Dr. is thinking that I was diagnosed incorrectly in blast crisis and

is not convinced I need to go to transplant.. when I met with the local Dr.

today and told her this she said maybe it's time to get some really experienced

eyes looking at your case...she is emailing Dr. Cortes to get a consultation on

this as she has never had anyone present in blast crisis - and neither has Dr.

Lipton in Toronto who I saw back in January...I had some questions for her

regarding my case and she really couldn't answer them...she also told me that

she was going to do a write up on my case and present it at the European

Hematological conference coming up soon, in the hopes that someone somewhere has

dealt with a case like this...

However, in the meantime I received the results of my PCR test done on Feb.11th

- I have had a 2.82 log reduction (in only 2 months on Gleevec) and my local Dr.

was very pleased with this - as was I...she said I was probably at a 3 log

reduction by now - and she is petitioning for approval to have my pcr tests done

every 6 weeks instead of every 3 months since my case is so " special "

I am grateful that the Gleevec continues to work its miracles and pray that it

continues... I am doing well, feeling good, and have lost almost 30 pounds so

far on my new diet and exercise regimen...

Hoping all is well with everyone!

Cheryl

March 19, 2010

Yes please share your exercise and diet plan.I need it!!!

_____

From: [mailto: ] On Behalf Of mary

mary

Sent: Friday, March 19, 2010 1:45 PM

Subject: Re: [ ] I really am a " special case " LOL

Wow, a 3% log reduction is great, congrats! do you mind sharing your diet

and excercise program as I have been carrying the same 40 lb gain from the

meds.

From: thornton_cheryl <thornton_cheryl@ <mailto:thornton_cheryl%40.ca>

.ca>

Subject: [ ] I really am a " special case " LOL

groups (DOT) <mailto:%40> com

Date: Friday, March 19, 2010, 1:25 PM

Hello All!

I met with the transplant Dr. in Hamilton and my local Dr. this week and

wanted to give you an update...

Transplant Dr. is thinking that I was diagnosed incorrectly in blast crisis

and is not convinced I need to go to transplant.. when I met with the local

Dr. today and told her this she said maybe it's time to get some really

experienced eyes looking at your case...she is emailing Dr. Cortes to get a

consultation on this as she has never had anyone present in blast crisis -

and neither has Dr. Lipton in Toronto who I saw back in January...I had some

questions for her regarding my case and she really couldn't answer

them...she also told me that she was going to do a write up on my case and

present it at the European Hematological conference coming up soon, in the

hopes that someone somewhere has dealt with a case like this...

However, in the meantime I received the results of my PCR test done on

Feb.11th - I have had a 2.82 log reduction (in only 2 months on Gleevec) and

my local Dr. was very pleased with this - as was I...she said I was probably

at a 3 log reduction by now - and she is petitioning for approval to have my

pcr tests done every 6 weeks instead of every 3 months since my case is so

" special "

I am grateful that the Gleevec continues to work its miracles and pray that

it continues... I am doing well, feeling good, and have lost almost 30

pounds so far on my new diet and exercise regimen...

Hoping all is well with everyone!

Cheryl

March 19, 2010

Cheryl,

Sure hope the Drs can sort this all out and that it isn't as bad as they

thought it may be..Congrats on the weight loss.I will keep you in my thoughts

and prayers.

SharonS

>

> Hello All!

>

> I met with the transplant Dr. in Hamilton and my local Dr. this week and

wanted to give you an update...

>

> Transplant Dr. is thinking that I was diagnosed incorrectly in blast crisis

and is not convinced I need to go to transplant..when I met with the local Dr.

today and told her this she said maybe it's time to get some really experienced

eyes looking at your case...she is emailing Dr. Cortes to get a consultation on

this as she has never had anyone present in blast crisis - and neither has Dr.

Lipton in Toronto who I saw back in January...I had some questions for her

regarding my case and she really couldn't answer them...she also told me that

she was going to do a write up on my case and present it at the European

Hematological conference coming up soon, in the hopes that someone somewhere has

dealt with a case like this...

>

> However, in the meantime I received the results of my PCR test done on

Feb.11th - I have had a 2.82 log reduction (in only 2 months on Gleevec) and my

local Dr. was very pleased with this - as was I...she said I was probably at a 3

log reduction by now - and she is petitioning for approval to have my pcr tests

done every 6 weeks instead of every 3 months since my case is so " special "

>

> I am grateful that the Gleevec continues to work its miracles and pray that it

continues...I am doing well, feeling good, and have lost almost 30 pounds so far

on my new diet and exercise regimen...

>

> Hoping all is well with everyone!

>

> Cheryl

>

March 19, 2010

Cheryl,

Wow! You're right...you are special! I am so happy to hear that it seems

likeÂ Gleevec is doing the trick and that there may be a different direction in

your treatment! You must feel like you've been on the wildest rollercoaster on

the planet after the past few months.

Best wishes,

Beth

[ ] I really am a " special case " LOL

Â

Hello All!

I met with the transplant Dr. in Hamilton and my local Dr. this week and wanted

to give you an update...

Transplant Dr. is thinking that I was diagnosed incorrectly in blast crisis and

is not convinced I need to go to transplant..when I met with the local Dr. today

and told her this she said maybe it's time to get some really experienced eyes

looking at your case...she is emailing Dr. Cortes to get a consultation on this

as she has never had anyone present in blast crisis - and neither has Dr. Lipton

in Toronto who I saw back in January...I had some questions for her regarding my

case and she really couldn't answer them...she also told me that she was going

to do a write up on my case and present it at the European Hematological

conference coming up soon, in the hopes that someone somewhere has dealt with a

case like this...

However, in the meantime I received the results of my PCR test done on Feb.11th

- I have had a 2.82 log reduction (in only 2 months on Gleevec) and my local Dr.

was very pleased with this - as was I...she said I was probably at a 3 log

reduction by now - and she is petitioning for approval to have my pcr tests done

every 6 weeks instead of every 3 months since my case is so " special "

I am grateful that the Gleevec continues to work its miracles and pray that it

continues...I am doing well, feeling good, and have lost almost 30 pounds so far

on my new diet and exercise regimen...

Hoping all is well with everyone!

Cheryl

March 20, 2010

As far as my diet goes...I drink alot of water - 10-12 glasses per day and I try

to stay away from high sodium things - I'm eating high fibre cereal for

breakfast with fruit in between if need be...low sodium soup and crackers for

lunch...for dinner 3 oz of meat, lots of veggies and more water...I don't do

desserts anymore - the occasional low sodium nacho chip with homemade guacamole

is my treat...for exercise - I am doing 40/day of either treadmill or

aerobics...

Cheryl

>

> From: thornton_cheryl <thornton_cheryl@...>

> Subject: [ ] I really am a " special case " LOL

>

> Date: Friday, March 19, 2010, 1:25 PM

>

> Â

>

> Hello All!

>

> I met with the transplant Dr. in Hamilton and my local Dr. this week and

wanted to give you an update...

>

> Transplant Dr. is thinking that I was diagnosed incorrectly in blast crisis

and is not convinced I need to go to transplant.. when I met with the local Dr.

today and told her this she said maybe it's time to get some really experienced

eyes looking at your case...she is emailing Dr. Cortes to get a consultation on

this as she has never had anyone present in blast crisis - and neither has Dr.

Lipton in Toronto who I saw back in January...I had some questions for her

regarding my case and she really couldn't answer them...she also told me that

she was going to do a write up on my case and present it at the European

Hematological conference coming up soon, in the hopes that someone somewhere has

dealt with a case like this...

>

> However, in the meantime I received the results of my PCR test done on

Feb.11th - I have had a 2.82 log reduction (in only 2 months on Gleevec) and my

local Dr. was very pleased with this - as was I...she said I was probably at a 3

log reduction by now - and she is petitioning for approval to have my pcr tests

done every 6 weeks instead of every 3 months since my case is so " special "

>

> I am grateful that the Gleevec continues to work its miracles and pray that it

continues... I am doing well, feeling good, and have lost almost 30 pounds so

far on my new diet and exercise regimen...

>

> Hoping all is well with everyone!

>

> Cheryl

>

March 21, 2010

Thanks Jackie!

It is wonderful to know that I have almost gotten to MMR when my local Dr.

didn't think I'd even get to CCR...and this quickly too - which makes me think

that maybe I could have been put on a lower dose, but we shall see...I think it

will be good that more experienced eyes will be taking a look at my case - if

nothing else just to confirm that my Dr. is on the right page with

treatment...if we still need to proceed to BMT than that's what I will do, but

for now I'm just grateful to be feeling good, because we all know how quickly

that can change...I'm so thankful for Gleevec and the people who made it their

lives mission to get this medicine out there for us and to all those who are

searching for a cure...the last few months have certainly been a roller-coaster

ride - especially for me in a car that seems to be moving at a faster rate than

those around me...

Keep your fingers crossed that I continue to do well on the Gleevec and that

these new " eyes " will be able to tell us more about my case.

Blessings to you,

Cheryl

>

> Dear Cheryl,

> Yeaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa!!!! That is great news. Dr Cortes is out

of the country until Tuesday, but rest assured he will get back to your doctor

as soon as he can. He is very prompt on email replies. This is exciting for you

and I am so happy. You have been through a terrible scare. At least you have

the necessary steps done if a BMT is needed. It always pays to be prepared.

>

> God Bless you,

> Jackie S.

>

> ________________________________

> From: thornton_cheryl <thornton_cheryl@...>

>

> Sent: Fri, March 19, 2010 3:25:40 PM