Infusion Log

June 19, 2008

is going for his first IVIG tomorrow - and I before I spend hours

setting one up, I'm wondering if any of you have a Excel Spreadsheet for an

Infusion Log that I could use. I have the sample from IDF but I'd still

have to set one up on Excel...

Any last minute tips for tomorrow ?

Thanks,

Kim, mom to (6) with Hyper IgE (Job Syndrome)

June 19, 2008

Make sure they run the product *slow*. Talk with the nurses. I can't stress

that enough.

On the log, add a " comment " section where you can write notes about exactly

where he was stuck, adverse reactions, etc.

Infusion Log

is going for his first IVIG tomorrow - and I before I spend hours

setting one up, I'm wondering if any of you have a Excel Spreadsheet for an

Infusion Log that I could use. I have the sample from IDF but I'd still

have to set one up on Excel...

Any last minute tips for tomorrow ?

Thanks,

Kim, mom to (6) with Hyper IgE (Job Syndrome)

June 20, 2008

I do 's infusion log through a medical organizer through the

hospital. It looks like this: (Just to give you some ideas)

IVIG: 23. 11/13/2007 Gamunex 6 grams in 60mls lot# 26N8VJ1, 26N8822.

BMA/B and labs, right ear check for infection r/t foul drainage

wt 14.2kg, 97/58, Took about 4 or 5 pokes to get IV placed, ended up

in left foot, BMA/B went well with propofol and fentanyl, Has right

ear infection with missing ear tube per Patsy, zithromax RX, F/U with

Dr E and ENT to replace tube, Got tylenol and IV hydrocortione &

benadryl & zofran prior to infusion, Rate 4,6ml/hr X 1hr until 8ml/hr

then same. HR increased to 140-150bpm so did not increase to 10ml/hr.

3 hrs into infusion stomach distended, c/o HA, Got IV benadryl and

tyl half way thru, Got IV zofran & hydrocort aterwards. Took 9hrs to

infuse, acting miserable the last 3hrs of the infusion. Flushed

cheeks and warm to touch but no fever at end. Lots of N/V overnight

and next day. Diarrhea for 2 days afterwards, low grade temp, lack of

energy and appetite x 2 days.

Hope this helps alittle.

Proud Mom of 4: with a possible immune problem now too

3yr old : PID~combine immune deficiency and etc...

5yr old : allergies, chronic sinusitis, one enlarge tonsil

7yr old Noah: asthma, ADD

9yr old Hannah: asthma, allergies, urinary reflux, T & A

www.caringbridge. org/visit/ matthewmichael

> >

> > is going for his first IVIG tomorrow - and I before I

spend

> hours

> > setting one up, I'm wondering if any of you have a Excel

> Spreadsheet for an

> > Infusion Log that I could use. I have the sample from IDF but

I'd

> still

> > have to set one up on Excel...

> >

> > Any last minute tips for tomorrow ?

> >

> > Thanks,

> >

> > Kim, mom to (6) with Hyper IgE (Job Syndrome)

> >

>

June 20, 2008

Holy cow ! My infusion logs are boring compared to that! Your poor

little guy!

My infusion log looks like this:

6/16/08 20 grams gammunex. I ALWAYS write down the lot number (Important)

5 cc saline flush (write down lot number) followed by 5 cc dextrose flush (lot

number again). Gammunex Ramped from 20 to 50cc/hr. Flush again with dextrose

and saline.

On an infusion log, even though the infusions center should keep the lot

numbers....it may not always happen. The infusion center we used did not keep

them....then one day I told them what I put in my log and they said " h, that's a

good idea " and started keeping the stickers after that. There are always two

stickers on IVIG bottles.....one goes to the infusion nurse and you SHOULD be

able to keep the other. Stick in it the log book next to your report. ALSO,

this past year, there were recalls on BOTH heparin and saline preloaded

flushes....both commonly used during IVIG. I think it is also important to keep

the lot numbers of those. Knowing that both were used on me, when the recall

came out, I was unable to get an answer from the infusion center if the lot

numbers recalled were in their possession. Now that I infuse both my children

and myself at home, I know that I have the numbers and the specialty drug

company I use has the numbers.

And then do write down anything odd....how he felt. As a mom of two children

.....all 3 of us having combined immune deficiency, I have the unique ability to

know what they are going through. Most parents of PIDD children do not know. I

wanted to say something about the way 's son feels during/after IVIG.

None of the immunos have ever explained this to me.....the nurses seem to not

know that it even happens.....but IVIG makes you feel run down and generally

" yucky " about half way through. You get flushed....you feel like your blood

pressure has risen when it has not. The nurses told me it was the premed....I

don't use premeds at all anymore and I still feel really yucky about half way

through. But it goes away by the time I am done or there about. So when your

kids get cranky during their infusion../......it is because they feel horrible.

I don't think anyones kids escape this. Runnin my IV much slower now (they ran

it at 380cc/hr in the infusion center, I run it at home now at 50cc/hr) helps a

TON! Many of the side effects of IVIG can be averted by slowing it down. For

me, the nurses in the center were not patient enough to wait for the 9 hours it

took to infuse at the slower rate (hence doing it at home).

Anyway.....not sure that helps anyone.

Terri

Re: Infusion Log