Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Im nervous!! at IVIG yesterday, we got the news our ID dr feels the kids are stable enough to trial off for the summer(at least). We were supposed to try it last summer, but they were too sick. Then we were going to try it in April, but they were just having so much trouble with asthma, and Savannahs lung function is still really, really low, so we waited till school was out and the weather is warmer. Im really nervous....but it is a nice thought to not plan summer fun around infusion days. I hope it goes okay.....Savannahs excited, she is SO DONE w/ drs and everything to do with them since her surgery! ps....we did an ultrasound yesterday, jsut to make sure that lump under/around the incision wasnt an abcess....its not. The surgeon feels its forming scar tissue, it just looks a lot worse than it really is, bc she is so awfully skinny, its sticks way out. He says if she were a bit more filled out, it wouldnt be so noticeable. Plus, she's lost another four lbs since surgery. We're so glad its not infected! she's looking forward to getting started with summer fun. valarie mom to three w/cvid Quote Link to comment Share on other sites More sharing options...
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