Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 --- Im so sorry! I hope she starts to get better now that she has been on IVIG longer. I hope you are home for the holidays, too!! I know it sucks to be admitted on special days. (why do kids always get sickest on special days? HOW does that happen?lol) valarie In , " kymberlietyson " <kymberlietyson@...> wrote: > > Hi, > This is the first chance I've been able to write anything. Cambrie went > back into the hospital on Sunday. She had four cyanotic, blue choking > spells in one day and wasn't recovering. Her lungs were full of fluid > and pus causing her trachea to collapse. They still don't know why she > does this but they think it's related to her underlying immune > deficiency that they haven't quite put their finger on yet. But, they > want to avoid testing because they would have to take her off the IVIG > to do so. Basically, it's going to be a long winter . I just hope > we're able to be at home for the holidays. We spent every holiday in > the hospital last year...hopefully this won't be a repeat. > Kymberlie > Quote Link to comment Share on other sites More sharing options...
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