Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Dearest Lottie, You truly are wind beneath my wings...along with so many of you in our community. Let me say this first; this work (formerly Carolyn's Hope) is about US, not me, or Carolyn, or my family. It is much bigger than any of us could have ever imagined. I have been working silently behind the scenes to make sure a lot of the infrastructure was in place first, before " letting the cat out of the bag " so to speak! ;-) I will be sharing with our list owners all the details of the work, prior to our big announcements, but here's a sneak peek into where things are heading.... First off, to clarify - this work does NOT compete, replace, or circumvent ANYTHING that we have here on , the Asian CML List, Jerry's list, etc. Rather, think of it as a place where we can take the many things we discuss all across the community and send it into the streets (ground-based). It is simply a conduit that can be used to bring all of the wonderful things we talk about right down to the neighborhoods in which we live. The services are focused and provided SOLELY for our CML community. Made up by CML families. Over the past two years, I suppose you could say I have been a CML miner, digging up as much information as possible and making as many contacts into the world of all things Social Security, Patient Assistance, etc. We have lots of great CML " issues " related stuff on the boards here, so I've focused a lot on establishing contacts within the agencies that we all have to work with and navigate through in order to find assistance. Of course, we will continue to add to our CML Educational information too! We are also recognized by the IRS as a 501©(3) non-profit organization so any contributions/bequests, etc are tax deductible and go right back into providing these services to our community. Some has said, " why are you still here " . Meaning, why are you still active in the CML community since Carolyn is gone. Well, it's hard to pu into words, but I have a deep, deep LOVE AND RESPECT for each one of you. I hope that everyone will " understand my heart " on this and that it is motivated by the love of and for this community and nothing more. I suppose with the messages of the past 24 hours that the " cat is indeed OUT OF THE BAG " lol! My DEEPEST thanks to each one of you that have talked to me personally and privately about what you would like to see in a ground-based work. I hope that you will feel free to browse the site (it's not in its final version so overlook my " webwork " ), take a look at the services we hope to provide, and let me know how we can get you plugged in! Before I post the link, I want to chat a tiny bit with our moderators so Lottie, feel free to share that link or you can email me. After I've talked to T & Z, we will post it! ;-) With much love, heartfelt thanks and deep admiration, Greg Carolyn's Son " from something formerly known as Carolyn's Hope " ;-) > > Hooray, Greg, your dream of getting your new website is going to take off like a missle on the cape. If Dr. Druker is a participant, it must be truly worthy. I know how long and hard you have worked on this project and I hope you get so many participants, you have to turn some away. This is a truly worthy project you have prepared, one which I hope draws national attention for its worthiness. > My best to you and Dawn, and little Tyler, too, or should I say Tippercanoe & Tyler, too??? > Lottie > > Quote Link to comment Share on other sites More sharing options...
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