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Right...as long as there is antibody attack...there is a problem.

And even if the antibodies disappear...there is still

an " autoimmune " situation in the body that bears careful monitoring

and keeping the body stable. This is one reason why I wouldn't

choose explant surgery now. Too risky for my own autoimmune

situation...that could cascade into a world of trouble. I can see

that this would be a personal decision for someone with no physical

problems....but for me, the lesser of two known evils..is not rock

the boat. some might thing the risk of what hasn't happened is so

great they are willing to take a present risk. I'm not.

I had dental work done that caused me to look my stability for a

while..dental work is tough on adrenals...and adrenals and thyroid

work hand in hand...so...i just know my own body well enough to know

what not to do at times.

With Hashi's...for perhaps those in the middle/later stages of the

disease, I'd say the best way to stop antibody attack is suppressive

TSH therapy...just go ahead and take full replacement thyroid

hormone..and antibodies will drop to nothing ordinarily. they no

longer need to attack.

However if I had known about my Hashi's way way earlier in the

beginning stages...there are many things I could have done to

promote good thyroid function and slowed down the progression of the

disease.

RAI is a terrible thing..and usually never necessary..but they

rarely give folks options...like anti-thyroid meds. or block and

replace with thyroid meds.

cindi

.. --- In , " mikat828 " <mikat828@...>

wrote:

>

>

> Cindi

> Great post. Thanks. Also, many people don't realize that an

> autoimmune condition is at work in your body that is affecting the

> ability of the thyroid to do its job properly. Even with

> supplemental hormone, that does not make the autoimmune part of

the

> condition go away anymore than taking insulin makes diabetes go

> away. It helps control the symptoms which as you pointed out is

> extremely important.

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  • 7 months later...

Hi Meg,

I am exactly the same age and recently diagnoised with the same thing. My pain

seems to be the worst in the middle of my cycle maybe around ovulation, however

I have only noticed this the last 3 months, and haven't actually documentated

it. I think I will start to keep a diary so I can really keep track. I will

let you know how I go.

Hope you're having a pain free day.

Pennie

[ ] Hormones

Dear Pennie,

It's funny you mention this. I am a recently diagnosed individual

with RA/inflammatory polyarthritis. I have noticed that my symptoms

are worst right at the end of my period for about four to five days,

probably when my hormone levels are at their lowest. I thought I

might just be imagining this, but your letter prompted me to write to

see if your experience is similar. Thanks for bringing it up. By the

way, I am 40 years old, so probably entering " perimenopause. " Anyone

else notice this pattern?

Meg

Send instant messages to your online friends http://au.messenger.

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>

> Dear Pennie,

>

> It's funny you mention this. I am a recently diagnosed individual

> with RA/inflammatory polyarthritis. I have noticed that my symptoms

> are worst right at the end of my period for about four to five days,

> probably when my hormone levels are at their lowest. I thought I

> might just be imagining this, but your letter prompted me to write

to

> see if your experience is similar. Thanks for bringing it up. By

the

> way, I am 40 years old, so probably entering " perimenopause. "

Anyone

> else notice this pattern?

>

> Meg

>

dear meg...i am 41 and have never been diagnosed with anything... i

cant find a dr. to listen long enough to figure me out... anyways.. i

do however see a pattern with my cycle and my pain but before my cycle

is worse.. i cant sleep at nite.. and my legs are in so much pain.. i

thought it was RLS but i dont know... im just researching an still

figuring things out myself. just thought it may help..

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>

> Hi Meg,

> I am exactly the same age and recently diagnoised with the same

thing. My pain seems to be the worst in the middle of my cycle

maybe around ovulation, however I have only noticed this the last 3

months, and haven't actually documentated it. I think I will start

to keep a diary so I can really keep track. I will let you know how

I go.

> Hope you're having a pain free day.

>

> Pennie

>

>

> [ ]

Hormones

dear pennie..... keeping a diary is great but i find it

easier to blog it... i can always scroll back thru and even use a

tag to show my bad days...blogging is a great way to keep track and

you can even make it private so no one else can see it..... ps add

me to your 360 and see how i blog it

>

> Dear Pennie,

>

> It's funny you mention this. I am a recently diagnosed individual

> with RA/inflammatory polyarthritis. I have noticed that my

symptoms

> are worst right at the end of my period for about four to five

days,

> probably when my hormone levels are at their lowest. I thought I

> might just be imagining this, but your letter prompted me to write

to

> see if your experience is similar. Thanks for bringing it up. By

the

> way, I am 40 years old, so probably entering " perimenopause. "

Anyone

> else notice this pattern?

>

> Meg

>

>

>

>

> Send instant messages to your online friends

http://au.messenger.

>

>

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Dear Meg

I was diagnosed with RA and also osteo-arthritis (bad luck to have the 2 I

know !!) when I was aged 27 years old just after the birth of my third child. I

had suffered problems though since I was 9 years old. Through sheer

determination I was able to get by with various drugs and support from family

and at age 39 years had to have hysterectomy and one of my ovaries removed.

Following on from this it was all downhill for me. I am now aged 58 years and

virtually crippled with both RA and OA. Here in the UK where I live I am afraid

we do not have a fraction of the care that you enjoy in USA, and we cannot

always obtain the drugs that we need - so it's a bit of a lottery what care we

receive and also which drugs we can obtain on our National Health Service.

I was unable to take HRT because of my high blood pressure, and since my

hysterectomy I know that my RA worsened dramatically. I had a very long and

difficult menopause, and only in the last 12 months have the hot flushes

andother symptoms disappeared so I suppose I was menopausal for nearly 20 years

!! I am struggling so much now. My mobility is so bad I have to use wheelchair

most of the time, cannot climb stairs, dress myself unaided.

I cannot hardly sleep with the pain, cannot even turn over in bed without my

husband's help.

I don't think that enough research is going on regarding women and oestrogen

levels regarding RA and OA. I think that HRT does improve things, but then of

course it also has serious implications on other health issues.

I have now been diagnosed with diabetes, and of course this is worsened by the

fact that I am virtually unable to exercise, so I now have something else to

cope with. But I have to say that compared to RA and OA - diabetes is easier to

deal with, although the drugs I have been prescribed (metformin) have only made

my pain levels worse. So the battle goes on, I am lucky I have a very

supportive husband who has now retired and is able to help me. Also a wonderful

daughter who lives nearby - who also helps me look after my hair and tries to

cheer me up and I am very grateful for that.

Best wishes to everyone - from Lynda

carla <roz6592002@...> wrote:

--- In , " cubreportr " <cubreportr@...>

wrote:

>

> Dear Pennie,

>

> It's funny you mention this. I am a recently diagnosed individual

> with RA/inflammatory polyarthritis. I have noticed that my symptoms

> are worst right at the end of my period for about four to five days,

> probably when my hormone levels are at their lowest. I thought I

> might just be imagining this, but your letter prompted me to write

to

> see if your experience is similar. Thanks for bringing it up. By

the

> way, I am 40 years old, so probably entering " perimenopause. "

Anyone

> else notice this pattern?

>

> Meg

>

dear meg...i am 41 and have never been diagnosed with anything... i

cant find a dr. to listen long enough to figure me out... anyways.. i

do however see a pattern with my cycle and my pain but before my cycle

is worse.. i cant sleep at nite.. and my legs are in so much pain.. i

thought it was RLS but i dont know... im just researching an still

figuring things out myself. just thought it may help..

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  • 2 months later...
Guest guest

Lynn, Have you tried iodine drops? It seems to be important to the endrocrine system. Pattyspinkscl <spinkscl@...> wrote: Good evening ladies,I have been feeling horrible the past two nights. I had a Lupron shot in Oct to stop my period and throw my body into menopause for three months in hopes to help me with my endometriosis. Well I was suppose to get my period back in January, we are coming up on April and I am still without. Anyhow, went to a

OB/GYN last week and they ran tests on my hormones and my estrogen levels and FSH hormones are normal and they say there is no reason I shouldn't be having my period. In the meantime they have put me on progesterone (Prometrium) one pill vaginally once a day. I am on day 7 (12 day RX). Nothing! I actually feel like it is making me feel worse. I typically take it at 5:00 p.m. During the day, while at work I am fine. I come home and insert the pill and in about an hour I feel horrible. I am having difficulty breathing. Can't tell if it is my thyroid acting up or what? Right now I it hurts to swallow (last night too). I went to bed so dang depressed thinking how am I going to live like this?? I am pretty sure I feel this way because they are manipulating my hormones levels again. Hot tea seems to help but it is getting pretty hard to handle this... I might call the doctor tomorrow and ask if I should stop

taking the pill. I really want my period back but I don't want to feel this horrible anymore. Lynn

Food fight? Enjoy some healthy debatein the Answers Food Drink Q&A.

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Lynn, Please check on the ingredients in that suppository . . . Ask the pharmacist if it contains any silicone dioxide, other silica/silicon materials. You might be hypersensitive to silicone. One of our SiliconeKid moms reported that a medication containing silicone dioxide put her son in the hospital with a class five poisoning event. Hugs, Rogene

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Rogene,

This is what I found:

The inactive ingredients for PROMETRIUM Capsules 200 mg include:

peanut oil NF, gelatin NF, glycerin USP, lecithin NF, titanium

dioxide USP, D & C Yellow No. 10, and FD & C Yellow No.

Doesn't look like silicone but I'm not too sure what some of these

ingredients are?

Lynn

>

> Lynn,

>

> Please check on the ingredients in that suppository . . . Ask the

pharmacist if it contains any silicone dioxide, other silica/silicon

materials. You might be hypersensitive to silicone.

>

> One of our SiliconeKid moms reported that a medication containing

silicone dioxide put her son in the hospital with a class five

poisoning event.

>

> Hugs,

>

> Rogene

>

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Lynn, I'm curious . . . some implants have titanium coatings. . . Is there anyway you can find out the exact ingredients of YOUR implants? http://www.theorganicmakeupcompany.com/CA/titaniumdioxide.asp http://www.mhra.gov.uk/home/idcplg?IdcService=SS_GET_PAGE & nodeId=739 Or, are you possibly allergic to peanuts? http://www.medicinenet.com/script/main/art.asp?articlekey=15618 I can't believe they would use peanut oil in a medication! . .. Too many people have horrible allergies to them. Rogene spinkscl <spinkscl@...> wrote: Rogene,This is what I found:The inactive ingredients for PROMETRIUM Capsules 200 mg include: peanut oil NF, gelatin NF, glycerin USP, lecithin NF, titanium dioxide USP, D & C Yellow No. 10, and FD & C Yellow No.Doesn't look like silicone but I'm not too sure what some of these ingredients are?Lynn>> Lynn,> > Please check on the ingredients in that suppository . . . Ask the pharmacist if it contains any silicone dioxide, other silica/silicon materials. You might be hypersensitive to silicone.> > One of our SiliconeKid moms reported that a medication containing silicone dioxide put her son in the hospital with a class five poisoning event.> > Hugs,> > Rogene>

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Guest guest

I will have to do further research but I believe they are McGhan

textured (saline).

I am not allergic to peanuts. I did look on Askapatient.com and found

many woman who have had depression and anxiety when taking the

medication. I am going to call the doctor tomorrow and ask if I can

quit.

Lynn

> >

> > Lynn,

> >

> > Please check on the ingredients in that suppository . . . Ask the

> pharmacist if it contains any silicone dioxide, other

silica/silicon

> materials. You might be hypersensitive to silicone.

> >

> > One of our SiliconeKid moms reported that a medication containing

> silicone dioxide put her son in the hospital with a class five

> poisoning event.

> >

> > Hugs,

> >

> > Rogene

> >

>

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Lynn ~

I am so sorry you feel so badly. Dealing with the hormones can make you feel so badly, so can the endometriosis. Have you had some thyroid testing done? God bless you, Lynn, you are in my prayers. I pray you wake up feeling better today. Hugs~Prayers~DAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

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Also, when your body is having auto-immune reaction, things that have never bothered you, can during that time. You can test yourself by doing process of elimination. I hope they take you off hormones, especially since your hormone tests showed you have plenty right now. Maybe your body just needs a rest from hormones. My father took lupron to shrink his prostate before his ca surgery, and he went through manopause. He had the hot flashes and everything. I hope you feel better soon and they get you off those hormones ! ! Sending feel good energy, hugs, and blessings ~ DAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

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Oh God bless you . You and all the women on this site are in my

prayers each night.

I have had a thyroid test and my TPO was elevated, which means my auto-

immune system is attacking my thyroid. Just another of many auto-

immune issue my body is experiencing. Only about 3 week until explant.

I can't wait to get these toxic implants out of my body.

Take care,

Lynn

>

> Lynn ~

> I am so sorry you feel so badly. Dealing with the hormones can

make you

> feel so badly, so can the endometriosis. Have you had some

thyroid testing

> done? God bless you, Lynn, you are in my prayers. I pray you wake

up feeling

> better today. Hugs~Prayers~D

>

>

>

> ************************************** AOL now offers free email to

everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

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Hi D,

The doctor said I should stop taking them. AMEN! I never did get to

talk to his nurse but the message I got said to stop taking the

prometrium and we'll talk about a new med next month. I am having my

explant surgery on 4/13, so I hope that my period will come back

naturally after my surgery.

Thanks for the caring words,

Lynn

>

> Also, when your body is having auto-immune reaction, things that

have never

> bothered you, can during that time. You can test yourself by

doing process

> of elimination. I hope they take you off hormones, especially

since your

> hormone tests showed you have plenty right now. Maybe your body

just needs a

> rest from hormones. My father took lupron to shrink his prostate

before his ca

> surgery, and he went through manopause. He had the hot flashes

and

> everything. I hope you feel better soon and they get you off

those hormones ! !

> Sending feel good energy, hugs, and blessings ~ D

>

>

>

> ************************************** AOL now offers free email to

everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

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Guest guest

Lynn ~

I know you will feel much better after explant. Your period may be delayed because of illness and stress. I am sorry you have endometriosis. I worked OB/GYN for 6 1/2 years, and saw alot of that. Remember it is a painful thing to have. I am so glad you got to get off that hormone. Ya never know, things just may change alot after you get those implants out. You are in my prayers, April 13will be here before you know it ! Hugs and prayers ~ DedeAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

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Lynn,

When I had implants I started my period faithfully Twice a Month..... Wow what a nightmare.... Went to get checked and all, they found and did nothing for it.....They were like if not better soon, come back, you may need birth control? OMG

But anyway the good news, since explant my periods are normal again.....

God Bless

~AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

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Hi Dede,

We have something in common, I too worked in a OB/GYNs office as a

Medical Assistant.

I have had 3 surgeries to remove the endo but it comes back after

about 2 years. I have never wished for a period more in my life than

I do right now. My hormones are in such flux that I know it is

adding to my health issues.

Right now I can tell my thyroid is inflammed because it is difficult

to swallow. Last time I had these symptoms my TPO was elevated, they

thought I had Hashimotos (SP?). I am also feeling the

costochondritis creeping back in. I just want to feel normal so

badly. I am getting so very depressed, my thoughts are always that I

have cancer.

Well I am heading to bed. Sleeping seems to be the only time I am

not in pain.

God Bless and talk to you soon,

Lynn

>

> Lynn ~

> I know you will feel much better after explant. Your period may

be delayed

> because of illness and stress. I am sorry you have

endometriosis. I worked

> OB/GYN for 6 1/2 years, and saw alot of that. Remember it is a

painful

> thing to have. I am so glad you got to get off that hormone. Ya

never know,

> things just may change alot after you get those implants out. You

are in my

> prayers, April 13will be here before you know it ! Hugs and

prayers ~ Dede

>

>

>

> ************************************** AOL now offers free email to

everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

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Guest guest

Lynn, Oh look I got the answer in the very next post:) Katy:)spinkscl <spinkscl@...> wrote: Hi D,The doctor said I should stop taking them. AMEN! I never did get to talk to his nurse but the message I got said to stop taking the prometrium and we'll talk about a new med next month. I am having my explant surgery on 4/13, so I hope that my period will come back naturally after my surgery.Thanks for the caring

words,Lynn>> Also, when your body is having auto-immune reaction, things that have never > bothered you, can during that time. You can test yourself by doing process > of elimination. I hope they take you off hormones, especially since your > hormone tests showed you have plenty right now. Maybe your body just needs a > rest from hormones. My father took lupron to shrink his prostate before his ca > surgery, and he went through manopause. He had the hot flashes and > everything. I hope you feel better soon and they get you off those hormones ! ! > Sending feel good energy, hugs, and blessings ~ D> > > > ************************************** AOL now offers free email to everyone. > Find out more

about what's free from AOL at http://www.aol.com.>

Make free worldwide PC-to-PC calls. Try the new Canada Messenger with Voice

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Hello Lynn ~

I am sorry you are having so much going on right now. When I had my hyst, on my path report it said I had endometriosis too, I also had fibroid tumors, and when I had the hyst, I had cancer around my whole cervix, and it never showed up on any pap ! ! even the pap 6 weeks before the hyst ! ! ! This was all after being implanted with silicones. I bet that you are going to have a humongus change in how you feel once explanted and detoxed ! ! ! I pray your your quick and complete healing ! Blessings and Hugs ~ DedeAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

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-Lynn,

I wish you the best of Luck and a speedy recovery for your surgery,

I think it is Katy also having surgery then isn't it? Good luck sweet

Katy on your surgery as well.

Terri P

-- In , " spinkscl " <spinkscl@...> wrote:

>

> Hi D,

>

> The doctor said I should stop taking them. AMEN! I never did get

to

> talk to his nurse but the message I got said to stop taking the

> prometrium and we'll talk about a new med next month. I am having

my

> explant surgery on 4/13, so I hope that my period will come back

> naturally after my surgery.

>

> Thanks for the caring words,

>

> Lynn

>

>

> >

> > Also, when your body is having auto-immune reaction, things that

> have never

> > bothered you, can during that time. You can test yourself by

> doing process

> > of elimination. I hope they take you off hormones, especially

> since your

> > hormone tests showed you have plenty right now. Maybe your body

> just needs a

> > rest from hormones. My father took lupron to shrink his

prostate

> before his ca

> > surgery, and he went through manopause. He had the hot flashes

> and

> > everything. I hope you feel better soon and they get you off

> those hormones ! !

> > Sending feel good energy, hugs, and blessings ~ D

> >

> >

> >

> > ************************************** AOL now offers free email

to

> everyone.

> > Find out more about what's free from AOL at http://www.aol.com.

> >

>

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Guest guest

Thank you Terri - it can't come soon enough :)

> > >

> > > Also, when your body is having auto-immune reaction, things

that

> > have never

> > > bothered you, can during that time. You can test yourself by

> > doing process

> > > of elimination. I hope they take you off hormones, especially

> > since your

> > > hormone tests showed you have plenty right now. Maybe your

body

> > just needs a

> > > rest from hormones. My father took lupron to shrink his

> prostate

> > before his ca

> > > surgery, and he went through manopause. He had the hot

flashes

> > and

> > > everything. I hope you feel better soon and they get you

off

> > those hormones ! !

> > > Sending feel good energy, hugs, and blessings ~ D

> > >

> > >

> > >

> > > ************************************** AOL now offers free

email

> to

> > everyone.

> > > Find out more about what's free from AOL at http://www.aol.com.

> > >

> >

>

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Guest guest

Dear Terri, It isn't me that's having my surgery at that time; I am still in the process of finding a Dr to do it, so do not yet have a date. Thank you for the good wishes, I know its going to happen soon! There is someone else... and I am forgetful and confused about who just now... Oh wait, I think it is Deb on April 16! Imagine that, my memory came through! xo Katy:) Peake <peaketeresa@...> wrote: -Lynn,I wish you the best of Luck and a

speedy recovery for your surgery,I think it is Katy also having surgery then isn't it? Good luck sweet Katy on your surgery as well.Terri P-- In , "spinkscl" <spinkscl@...> wrote:>> Hi D,> > The doctor said I should stop taking them. AMEN! I never did get to > talk to his nurse but the message I got said to stop taking the > prometrium and we'll talk about a new med next month. I am having my > explant surgery on 4/13, so I hope that my period will come back > naturally after my surgery.> > Thanks for the caring words,> > Lynn> > > >> > Also, when your body is having auto-immune reaction, things that > have

never > > bothered you, can during that time. You can test yourself by > doing process > > of elimination. I hope they take you off hormones, especially > since your > > hormone tests showed you have plenty right now. Maybe your body > just needs a > > rest from hormones. My father took lupron to shrink his prostate > before his ca > > surgery, and he went through manopause. He had the hot flashes > and > > everything. I hope you feel better soon and they get you off > those hormones ! ! > > Sending feel good energy, hugs, and blessings ~ D> > > > > > > > ************************************** AOL now offers free email to > everyone. > > Find out more about what's free from AOL at http://www.aol.com.>

>>

Now you can have a huge leap forward in email: get the new .

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  • 3 months later...
Guest guest

Hello Sue ~

How are you doing? You can also have palpatations from thyroid and adrenal disorders. How did your doctor appointment go yesterday?

How are you feeling these days?

Hugs DedeGet a sneak peek of the all-new AOL.com.

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Sue, I honestly don't know how the hormones fully interact with each other. In this cascade, the adrenals affect how well the cells use thyroid hormones, estrogen affects the thyroid in a negative way while progesterone supports it, and all of these sex hormones including testosterone fluctuate during the month. Thyroid hormone fluctuations can cause palpitations....you see it's a finely tuned orchestra! Have you noticed anything different since being in menopause? Are you treating your DHEA situation (Supporting the adrenals) in any way? Don't stop looking for answers unless you are content with things the way they are. I've been impressed with the similarities I see in the treatment of any hormone--they all need titration, they all need several weeks to kick in, and the fluctuations require ongoing testing several

times a year. Whatever you do, I hope you feel well! PattySue Gibbens <susan.gibbens@...> wrote: All this talk of hormones has reminded me of my first cardiologist appointment. I noticed that when I first

started getting palpitations that it was always 7 days before my period. When I told the Dr he said that hormonal palpitations where more difficult to deal with, after picking up certain abnormalities in my heart monitor readings, It was decided that I needed no further treatment. The interesting thing is I seem to be going through the menopause and my palpitations are much less frequent. Sue.

Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

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Oh Dede,

More of the same I am afraid.

I told my Dr about the itching; she

examined me and said you have no lumps what would you like me to do?

Is it about the other business (meaning

implants) ok I will get you checked, I will write a letter for you to go

to the hospital.

She has this way of making me feel a total

idiot, like I am making the whole business up…I hate going to see her.

I have been very dizzy, it’s driving

me mad.

I cannot do a lot of things on my own as I

panic about being dizzy if I am out of the house.

My husband is getting a bit fed up with

me..I think. He doesn’t say much but he cannot understand how I can be

fine one minute then dizzy the next, that quick.

How are you feeling?

Lots of love Sue.

From: [mailto: ] On Behalf Of DGRAHAMA@...

Sent: 17 July 2007 14:01

Subject: Re:

hormones

Hello Sue ~

How are you

doing? You can also have palpatations from thyroid and

adrenal disorders. How did your doctor appointment go

yesterday?

How are you feeling

these days?

Hugs Dede

Get a sneak peek of the all-new AOL.com.

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