Finding out

[Guest guest]

Hi, I am sorry to here that you found out you have hcv.I was told in 1995 that

I have it . Mine has sense developed into cirhhrosis of the liver. You can find

a lot of inforation about hcv on the web. Just type in hepatitis c and chose

which web site you want , and don " t worry it is not a death sentence. Hcv is a

very slow chronic disease that over a long peroid of time causes damage to the

liver. The best advice I can give is get a good doctor that specializes in liver

diseases,and kept the faith.

Best Regards

Art

Finding out

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>Hello everyone. I just found out That I have both the hepatitis c

>virus, and the B virus. Could somebody, anybody please enlighten me

>on this disease? I was too upset to ask the DR. many questions.

>Thankyou!!! PamelaG.

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[Guest guest]

I just recently found out my mom has CML, and I'm not exactly sure what is it

and what I should be in store for. How do I help her with this, and what are the

usual outcomes with this cancer? My mom had cervical cancer in 2003 can this

make it worse for her?

[Guest guest]

Hi, sorry your mom has been diagnosed with CML.  First thing , she needs to go

to a CML specialist, not just an oncologist.  Many cancer doctors do not treat

enough CML patients to know enough about it, as it is a rare  leukemia. I have

had it for 15 years, and with the medication they have today, it is usually no

different than treating any other chronic disease.  We used to be given about 5

years to live, today they don't give us  a time, one of our list members has

had it over 33 years.  There are so many people on this site that can help you

with any questions you may have, feel free to ask.  The usual treatment today

is Gleevec, it  has some side effects for some people, none for others.  But

you should find an expert to help  you get the right care right up front. 

Good luck, Bobby

a ( Bobby ) Doyle, dob 12/17/29

Brecksville, Ohio, USA

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.017

11/2009 PCR 0.034

#840 Zavie's Zero Club

From: mellory92 <mellory92@...>

Subject: [ ] Finding out

Date: Friday, April 16, 2010, 12:25 PM

 

I just recently found out my mom has CML, and I'm not exactly sure what is

it and what I should be in store for. How do I help her with this, and what are

the usual outcomes with this cancer? My mom had cervical cancer in 2003 can this

make it worse for her?

[Guest guest]

HI: This is a lot for you and your Mom to take in if she was just recently

diagnosed. Just take one day at a time, and I would tell you exactly what

a just said. Your Mom needs a specialist who is experienced in all

aspects of treating CML. I have had CML for 11 years now, and I am doing very

well as there are many others here who are doing good.

Just post any questions you have at anytime, and ask anything you want.

There is usually someone on here who has experienced whatever your Mom is

experiencing. The more information you give, the more we can be of some help.

Hope we hear from you or even your Mom herself if she can get on the

computer.

>

> I just recently found out my mom has CML, and I'm not exactly sure what is it

and what I should be in store for. How do I help her with this, and what are the

usual outcomes with this cancer? My mom had cervical cancer in 2003 can this

make it worse for her?

>