Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 Good Morning all... well its been approx 5 months without any CML treatment, I must admit it feels good, I seem to feel so much better when I am without any treatment. I am still transfusion dependent, I receive HGB at least once week and platelets at least once week sometime twice a week. I just talked with Zavie and he laughs pretty hard when I told him I was down to Zero again this past week. Needed platelets Mon and Thurs to get me up a bit. All Zero platelets mean is that they could not get any up into the tube to count. I still navigate pretty well even with low blood counts. I think if I have close to normal count I would explode. As I have had all of the new drugs for CML, I am not sure what the next step is going to be. As I said I feel pretty good, not sure why my CML seems to react different to the standard type, As one doctor said its in my genes, so I went out and bought new pants which I am now trying LOL SkipD dxed 33 years ago.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 Skip, do you know how to tell a boy chromosome from a girl chromosome? pull down their genes!!! there is always Ariad out there in case you need it. It's working for me right now, but I never lose sight of the fact that so did Sprycel, for 1 1/2 years! How nice not to take drugs, a nice vacation. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: Skip Duffie <skipd_2002@...> Subject: [ ] update Date: Sunday, April 25, 2010, 10:59 AM  Good Morning all... well its been approx 5 months without any CML treatment, I must admit it feels good, I seem to feel so much better when I am without any treatment. I am still transfusion dependent, I receive HGB at least once week and platelets at least once week sometime twice a week. I just talked with Zavie and he laughs pretty hard when I told him I was down to Zero again this past week. Needed platelets Mon and Thurs to get me up a bit. All Zero platelets mean is that they could not get any up into the tube to count. I still navigate pretty well even with low blood counts. I think if I have close to normal count I would explode. As I have had all of the new drugs for CML, I am not sure what the next step is going to be. As I said I feel pretty good, not sure why my CML seems to react different to the standard type, As one doctor said its in my genes, so I went out and bought  new pants which I am now trying LOL SkipD dxed 33 years ago.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Hello, Slip, can you tell me why you stopped Gleevec please? > > Good Morning all... > well its been approx 5 months without any CML treatment, I must admit it feels good, I seem to feel so much better > when I am without any treatment. I am still transfusion dependent, I receive HGB at least once week and platelets > at least once week sometime twice a week. I just talked with Zavie and he laughs pretty hard when I told him I was > down to Zero again this past week. Needed platelets Mon and Thurs to get me up a bit. All Zero platelets mean > is that they could not get any up into the tube to count. I still navigate pretty well even with low blood counts. I > think if I have close to normal count I would explode. As I have had all of the new drugs for CML, I am not sure > what the next step is going to be. As I said I feel pretty good, not sure why my CML seems to react different to > the standard type, As one doctor said its in my genes, so I went out and bought new pants which I am now trying LOL > > SkipD dxed 33 years ago.... > Quote Link to comment Share on other sites More sharing options...
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