Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 > > Hello Fellow CML Sufferers, > > Let me introduce myself - Guy, an old guy. I have been treated with gleevec since 2005 when I was first diagnosed. Lots of problems at first but my body seemed to get used to the side effects. I would like to say to all those with rashes and itching that cortisone did no good at all for me. At one time it was feared I was allergic to gleevec. A friend advised me to ask my onc. if I could take atarax (an anti-histamine) and zantac (acid reducer - using it for itching is evidently well-known even though it is not the primary purpose.) This combination worked wonders for me and you can even buy zantac over-the-counter. A friend told me that atarax is even used on children. Please don't take this without asking your doc, I'm just telling you how I got rid of my rash and itching. > > One thing I don't see addressed much by the group is how you get help with the price of gleevec. I take 90 tablets a month and up to now Novartis has provided them. They have given me notice that they have a change of policy and they are going to discontinue providing them to me. I have applied to PSI and am anxiously waiting. I do have supplementary medicare ins. but I will have to pay 33% of the retail price. I just wondered if you have any suggestions. > > This is a great worry to my wife and to me. > > I have been reading your mail and am struck by the great kindness you show to each other. I don't know about any rules you have to join your group. Please let me know. I love Lottie's cheer-me-ups. Her joke about the " hearing " has gone to England and France and the little Chinese drummer boy will bring joy far and wide. > > Guy > Quote Link to comment Share on other sites More sharing options...
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