I really am a special case LOL

[Guest guest]

Dear Cheryl,

Yeaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa!!!! That is great news. Dr Cortes is out of

the country until Tuesday, but rest assured he will get back to your doctor as

soon as he can. He is very prompt on email replies. This is exciting for you

and I am so happy. You have been through a terrible scare. At least you have

the necessary steps done if a BMT is needed. It always pays to be prepared.

God Bless you,

Jackie S.

________________________________

From: thornton_cheryl <thornton_cheryl@...>

Sent: Fri, March 19, 2010 3:25:40 PM

Subject: [ ] I really am a " special case " LOL

Hello All!

I met with the transplant Dr. in Hamilton and my local Dr. this week and wanted

to give you an update...

Transplant Dr. is thinking that I was diagnosed incorrectly in blast crisis and

is not convinced I need to go to transplant.. when I met with the local Dr.

today and told her this she said maybe it's time to get some really experienced

eyes looking at your case...she is emailing Dr. Cortes to get a consultation on

this as she has never had anyone present in blast crisis - and neither has Dr.

Lipton in Toronto who I saw back in January...I had some questions for her

regarding my case and she really couldn't answer them...she also told me that

she was going to do a write up on my case and present it at the European

Hematological conference coming up soon, in the hopes that someone somewhere has

dealt with a case like this...

However, in the meantime I received the results of my PCR test done on Feb.11th

- I have had a 2.82 log reduction (in only 2 months on Gleevec) and my local Dr.

was very pleased with this - as was I...she said I was probably at a 3 log

reduction by now - and she is petitioning for approval to have my pcr tests done

every 6 weeks instead of every 3 months since my case is so " special "

I am grateful that the Gleevec continues to work its miracles and pray that it

continues... I am doing well, feeling good, and have lost almost 30 pounds so

far on my new diet and exercise regimen...

Hoping all is well with everyone!

Cheryl