Guest guest Posted March 30, 2010 Report Share Posted March 30, 2010 Lottie is quite right - seeing an ever increasing list of 10+ ers gives those of us not quite 1+ hope, encouragement and confidence. I'm 42 and intend to live a good and I hope useful life for some time yet. If I've been given the second chance to do that I plan to grab it with both hands.   I want to be on this list in 2019 - along with many, many others. Willoughby Dx may 09 Gleevec 400mg May 09 PCRU Nov 09 ________________________________ From: Lottie Duthu <lotajam@...> CML < > Sent: Tue, March 30, 2010 6:25:13 AM Subject: [ ] More 10+ CML Vets  Thank you to those who wrote in and asked to be added to the list. We don't want anyone to be left out, you give hope to all our bretheren. We have 20 listed here, where are the others? In 2001, I'm sure there will be a lot more because it was then that Gleevec began doing the work it was designed for - to save lives and promote longevity. Please don't let the power of this list die down. Skip Duffie - 12/77 Judy Telford - 3/92 Bobby Doyle - 5/95 Len Paschal - 7/96 Lottie Duthu 7/96 Bob - 5/97 Virginia Garner - 8/97 Margot Menfee - 3/98 Cogan - 9/98 Sue Armour - 12/98 Gay Bratton - ?/99 Zavie - 8/99 Orenstein - 8/99 Beverly Blair - 9/99 Chelsea Chamness - 1/00 McLeod - 3/00 Gale Bacon - 3/00 Giora Scharf - 3/00 Ruth Marcon - 4/00 - 6/00 Bartlett - 7/00 FYI, Lottie Duthu P. S. I am collecting names of our members who had a BMT. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2010 Report Share Posted March 30, 2010 Hi Lottie, hope you are feeling well. Ellen Somerville 8/98 > > Thank you to those who wrote in and asked to be added to the list. We don't want anyone to be left out, you give hope to all our bretheren. We have 20 listed here, where are the others? In 2001, I'm sure there will be a lot more because it was then that Gleevec began doing the work it was designed for - to save lives and promote longevity. > Please don't let the power of this list die down. > > Skip Duffie - 12/77 > Judy Telford - 3/92 > Bobby Doyle - 5/95 > Len Paschal - 7/96 > Lottie Duthu 7/96 > Bob - 5/97 > Virginia Garner - 8/97 > Margot Menfee - 3/98 > Cogan - 9/98 > Sue Armour - 12/98 > Gay Bratton - ?/99 > Zavie - 8/99 > Orenstein - 8/99 > Beverly Blair - 9/99 > Chelsea Chamness - 1/00 > McLeod - 3/00 > Gale Bacon - 3/00 > Giora Scharf - 3/00 > Ruth Marcon - 4/00 > - 6/00 > Bartlett - 7/00 > > FYI, > Lottie Duthu > > P. S. I am collecting names of our members who had a BMT. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2010 Report Share Posted March 30, 2010 Hi Lottie, Hope you are doing well. I had a Stem Cell Transplant (sister donor) on October 5th, 2004 at MD. Had a relapse 18 months later and have been on Sprycel since. Tell Jimmy I said hi. Warmest Regards, Done > > Thank you to those who wrote in and asked to be added to the list. We don't want anyone to be left out, you give hope to all our bretheren. We have 20 listed here, where are the others? In 2001, I'm sure there will be a lot more because it was then that Gleevec began doing the work it was designed for - to save lives and promote longevity. > Please don't let the power of this list die down. > > Skip Duffie - 12/77 > Judy Telford - 3/92 > Bobby Doyle - 5/95 > Len Paschal - 7/96 > Lottie Duthu 7/96 > Bob - 5/97 > Virginia Garner - 8/97 > Margot Menfee - 3/98 > Cogan - 9/98 > Sue Armour - 12/98 > Gay Bratton - ?/99 > Zavie - 8/99 > Orenstein - 8/99 > Beverly Blair - 9/99 > Chelsea Chamness - 1/00 > McLeod - 3/00 > Gale Bacon - 3/00 > Giora Scharf - 3/00 > Ruth Marcon - 4/00 > - 6/00 > Bartlett - 7/00 > > FYI, > Lottie Duthu > > P. S. I am collecting names of our members who had a BMT. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2010 Report Share Posted March 30, 2010 I also put up my hand !! Save me a Place - only 7 years to go !! Sue (Aussie) xxx __________ Information from ESET NOD32 Antivirus, version of virus signature database 4986 (20100330) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 I am also a 10+ survivor--#23 in Zavie's Zero Club. It's so great to hear from the old timers and see the numbers growing. I was diagnosed in May 1999, entered a PEG Interferon and Ara C trial almost a year later and went into CCR on that trial, but with debilitating side effects. As soon as Gleevec was approved by the FDA, I switched to Gleevec. On the tenth anniversary of my disagnosis, I started a bicycle ride down the east coast of Florida. It doesn't get much better than that! Thanks to all on this list who have supported us and continue to support the newbies through this journey. Living well with CML Fran Maiuri, Anchorage, Alaska dx 5/99 > > > > Thank you to those who wrote in and asked to be added to the list. We don't want anyone to be left out, you give hope to all our bretheren. We have 20 listed here, where are the others? In 2001, I'm sure there will be a lot more because it was then that Gleevec began doing the work it was designed for - to save lives and promote longevity. > > Please don't let the power of this list die down. > > > > Skip Duffie - 12/77 > > Judy Telford - 3/92 > > Bobby Doyle - 5/95 > > Len Paschal - 7/96 > > Lottie Duthu 7/96 > > Bob - 5/97 > > Virginia Garner - 8/97 > > Margot Menfee - 3/98 > > Cogan - 9/98 > > Sue Armour - 12/98 > > Gay Bratton - ?/99 > > Zavie - 8/99 > > Orenstein - 8/99 > > Beverly Blair - 9/99 > > Chelsea Chamness - 1/00 > > McLeod - 3/00 > > Gale Bacon - 3/00 > > Giora Scharf - 3/00 > > Ruth Marcon - 4/00 > > - 6/00 > > Bartlett - 7/00 > > > > FYI, > > Lottie Duthu > > > > P. S. I am collecting names of our members who had a BMT. > > > > > > Quote Link to comment Share on other sites More sharing options...
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