ok ... wow, head still spinning! (but in a good way, I think!)

July 31, 2008

So, I went to a new pediatrician today ... to check it out. Our neighbor told us

about him b/c she uses him. I read up on him Monday night, and found out he was

from MI and had worked in the Children's Hospital up there... first plus!! So

we get there, he comes in, and I start talking to him about the kids. I mention

that they were just diagnosed with PIDD earlier this year and boy! off he goes

with the questions!! Are they being seen at Emory? Do they have an Infectious

Disease Dr? Have they checked this? Is it T-cell? Is is compound (or

something???) is it this? is it that? Have they checked this? With Jayden's

Asthma have they checked him for Cystic Fibrosis? I mentioned a few more

concerns and he was dead on them ... I LOVED him!!! He mentioned a few concerns

with the allergist treating them for this ... and I can see where he's coming

from. I told him that she's leaving the practice anyway, and that if he wanted

them to be seen at Emory, then that

was ok ... I could get a second opinion. I told him that she was just about to

start IVIG on Jayden and he said, welp, then I guess we need to hurry and get

him in Emory then! I want them here with me, and ASAP ... I want to be very

closely in touch with you, I want to be in touch with a team of Dr's about their

health ... if they run fevers, we need to see them. If this happens, this is our

plan ... I mean, WOW! I was HIGHLY impressed!!!! I am still just digesting

everything!!!!

Of course my husband is sitting here saying (I don't want my kids turned into

lab rats .... ) but ... he just doesn't get this stuff ... and what I have been

dealing with by myself over the last 7mos! But at any rate .... I am pleased!!!

Just thought I would update you guys ...

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