IgA deficiency and IgG infusions

[Guest guest]

Hi! My daughter, 11 in a few weeks, is currently diagnosed with only

selective IgA deficiency. We were at children's hospital in Boston

yesterday and had all the labs repeated, but her health is declining,

she has never developed protective titers to any vaccination, and we

are running out of options. The immunologist suggested trying Gamma

gobulin treatments, assuming we can persuade insurance to pay even

though it is an atypical treatment for her immune deficiency.

I have tons of questions, of course, but the most important right now are:

Do any of you have insurance paying for this treatment for a kid or

kids with IgA deficiency? How did you get them to pay?

Did any of you see improvement in your child's health after starting

this treatment? Any side effects? Words of caution?

Any thoughts on IV vs. sub-q? (I've been reading the threads on this

for a while.....)

Have any of your kids gone from strictly IgA deficiency diagnosis to a

broader immune deficiency? Or, if your child shows up as only having

IgA deficiency, do you believe something additional is wrong or does

your child seem much more ill than kids with only IgA deficiency?

I don't write often, but this group means so much to me. I have IgA

deficiency and multiple sclerosis. Both kids have IgA deficiency and

my son has Asperger's......We count on all of you for support and

information. Many, many thanks!

Betty and family