Our appt with Dr. Demuth....Help

[Guest guest]

Well things started out fine. Now, after 8 years of being told by Dr.

that my daughter has selective antibody deficiency, Dr. Demuth has decided that

she does not.

The recent pneumonia that she had was serotype 14. Dr. Demuth has the

pneumococcal antibody results from the lab in South Carolina and says that she

is making antibodies to 8 out 12, based on her numbers. Therefore she does not

have an antibody deficiency, and she doesn't need to do any pre and post

vaccination levels. Also, therefore she doesn't need to be on any type of

medication. NONE. When I tried to question her on this she insisted that because

she had numbers over 2 ug that she was fine.

Well, I got home and have started digging up old records. I have found that

in 2005 she also was making more than 2ug to 7 out of 12 ...............but her

post vaccination numbers did not show that she responded to the vaccination and

therefore was antibody nonresponsive and therefore deficient.

I don't know what to do now. Dr. is in retirement faze and is also

fixing to have back surgery in the next week .......so I can't get to him.

This is just unbelieveable. I don't know what to do.

Jerri

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[Guest guest]

Send the #s into Dr. Demuth that you have and tell her that you did not know if

she had these reports and that you would like to discuss them with her.

BARBIE

Our appt with Dr. Demuth....Help

Well things started out fine. Now, after 8 years of being told by Dr.

that my daughter has selective antibody deficiency, Dr. Demuth has decided that

she does not.

The recent pneumonia that she had was serotype 14. Dr. Demuth has the

pneumococcal antibody results from the lab in South Carolina and says that she

is making antibodies to 8 out 12, based on her numbers. Therefore she does not

have an antibody deficiency, and she doesn't need to do any pre and post

vaccination levels. Also, therefore she doesn't need to be on any type of

medication. NONE. When I tried to question her on this she insisted that because

she had numbers over 2 ug that she was fine.

Well, I got home and have started digging up old records. I have found that in

2005 she also was making more than 2ug to 7 out of 12 ............ ...but her

post vaccination numbers did not show that she responded to the vaccination and

therefore was antibody nonresponsive and therefore deficient.

I don't know what to do now. Dr. is in retirement faze and is also

fixing to have back surgery in the next week .......so I can't get to him.

This is just unbelieveable. I don't know what to do.

Jerri

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