Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 Hi All, I talked to Lottie this morning, she was in a hurry to go to the doctors. She said for being in the hospital for 10 days they did not do to much for her, she is on oxygen, and no one seems to know what is wrong. Her address is: Lottie Duthu, 1805 Bamboo Ln., Houma, LA 70363 if you want to drop her a line, I know she would love to hear from you. She is going to MDACC Mon., maybe they can help her with her pain. Bobby -- a Doyle/dob 1929 DX /CML/1995/Interferon/hydrea 2/00 - Gleevec Trial, OHSU, Dr. Druker 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " " 7/04 - Sprycel Trial, MDACC, Dr. Talpaz 3/05 - CCR 12/07 - Ended trial due to Pleural Effusion 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz #840 Zavie's Zero Club #840 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 Thank you Bobby fort the update T Sent from my Verizon Wireless BlackBerry [ ] Lottie Hi All, I talked to Lottie this morning, she was in a hurry to go to the doctors. She said for being in the hospital for 10 days they did not do to much for her, she is on oxygen, and no one seems to know what is wrong. Her address is: Lottie Duthu, 1805 Bamboo Ln., Houma, LA 70363 if you want to drop her a line, I know she would love to hear from you. She is going to MDACC Mon., maybe they can help her with her pain. Bobby -- a Doyle/dob 1929 DX /CML/1995/Interferon/hydrea 2/00 - Gleevec Trial, OHSU, Dr. Druker 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " " 7/04 - Sprycel Trial, MDACC, Dr. Talpaz 3/05 - CCR 12/07 - Ended trial due to Pleural Effusion 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz #840 Zavie's Zero Club #840 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 Hi Bobby: I got to talk to Lottie on the phone before she left for the hospital on Monday. Even with all her problems, she was so concerned with mine. God Love Her. So sorry to hear that trip was not what she expected. Lets just keep praying for her, as she is always praying for all of us. From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Lottie " " < > Date: Thursday, May 20, 2010, 11:46 AM  Well, I thought I sent this email about Lottie, but my " sent " information says I did not..... So, I called Lottie, she is not a happy camper. She is on oxygen 24/7, her legs are swollen and red and burn. She had an apt. at MDACC Mon., but did not see her own dr. she saw someone that gave her one minute of his time. That is a long ride for her and Jimmy, I wish someone could have helped her. She said she got lots of cards from you all, and thanks you, they made her feel better. She also said " HI " and will post when she is up to it. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 So sorry to hear about Lottie's continuing problems. I will pray for her right now. She always worries about others. Gay On May 20, 2010, at 11:24 AM, Armour wrote: > Hi Bobby: I got to talk to Lottie on the phone before she left for > the hospital on Monday. Even with all her problems, she was so > concerned with mine. God Love Her. > So sorry to hear that trip was not what she expected. Lets just > keep praying for her, as she is always praying for all of us. > > > > > From: ROBERTA DOYLE <rcd1929@...> > Subject: [ ] Lottie > " " < > > Date: Thursday, May 20, 2010, 11:46 AM > > > > Well, I thought I sent this email about Lottie, but my " sent " > information says I did not..... > So, I called Lottie, she is not a happy camper. She is on oxygen > 24/7, her legs are swollen and red and burn. She had an apt. at > MDACC Mon., but did not see her own dr. she saw someone that gave > her one minute of his time. That is a long ride for her and Jimmy, > I wish someone could have helped her. She said she got lots of > cards from you all, and thanks you, they made her feel better. She > also said " HI " and will post when she is up to it. Bobby > > a ( Bobby ) Doyle, dob 12/17/29 > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.01 > 11/2009 PCR 0.034 > 02/2010 PCRU > #840 Zavie's Zero Club > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Yes--I miss her too--please give her my best wishes and tell her she's in my prayers! She is so strong and always so up--I know it is hard for her to be sick. I haven't been here for a few days--what exactly is the deal with her? Is she having difficulty with her meds, or is it something else altogether? Give her a hug from Vicki up in Seattle when you talk to her! Vicki > > > > Hi everyone, it sure is dull around here without Lottie. I will call > > tomorrow and see how she is, has anyone heard from her? Bobby > > > > -- > > a Doyle/dob 1929 > > DX /CML/1995/Interferon/hydrea > > 2/00 - Gleevec Trial, OHSU, Dr. Druker > > 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker > > 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " " > > 7/04 - Sprycel Trial, MDACC, Dr. Talpaz > > 3/05 - CCR > > 12/07 - Ended trial due to Pleural Effusion > > 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz > > 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz > > #840 Zavie's Zero Club #840 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Vicki, I don't know what is wrong with Lottie, and neither do all the doctors she sees. She has severe back pain, is on oxygen so must find it hard to breathe, she has severe leg pain and they are swollen. She seems to go to enough doctors, one would think one of them could find out the problems. If she were going to U of Mich, Dr. Talpaz would make damn sure she was taken care of, he is that kind of a doctor. He does not let anything escape him, and is concerned over every little thing. If Lottie does not feel well enough to post, she is one sick cookie!! Hopefully she will get better by sheer determination, she is that kind of gal...Bobby On Fri, May 21, 2010 at 1:16 AM, Vicki <vickistu@...> wrote: > > > Yes--I miss her too--please give her my best wishes and tell her she's in > my prayers! She is so strong and always so up--I know it is hard for her to > be sick. I haven't been here for a few days--what exactly is the deal with > her? Is she having difficulty with her meds, or is it something else > altogether? > > Give her a hug from Vicki up in Seattle when you talk to her! > > Vicki > > > > > > > > > Hi everyone, it sure is dull around here without Lottie. I will call > > > tomorrow and see how she is, has anyone heard from her? Bobby > > > > > > -- > > > a Doyle/dob 1929 > > > DX /CML/1995/Interferon/hydrea > > > 2/00 - Gleevec Trial, OHSU, Dr. Druker > > > 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker > > > 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " " > > > 7/04 - Sprycel Trial, MDACC, Dr. Talpaz > > > 3/05 - CCR > > > 12/07 - Ended trial due to Pleural Effusion > > > 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz > > > 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz > > > #840 Zavie's Zero Club #840 > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Hi Greg, I really don't like to correct others, but I do believe it is either a bong or a pipe??? I tried to register on your new website, but for some reason it did not accept my user ID or my password? I'll try again. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: gregscmlhope <gstephens@...> Subject: [ ] Re: LOTTIE Date: Friday, May 21, 2010, 10:42 AM  Hi Everyone, Gotta join in and say I'm missing our friend Lottie as well! She is very special to all of us and I can tell you, she's walked with me through the good, bad, and the ugly and is such a faithful and beloved friend. Lottie, if you're reading this, I'm sending you my best wishes and prayers for comfort and that you will be feeling much better soon! Can't wait to get back down to your area and enjoy sometime with you and Jimmy. We'll have to enjoy more Beingets and Cafe Au Lait! Lottie was kind enough to allow me to share her story on our website and as you read, you'll realize that since our story she has achieved an all new level along her CML journey. If you want to read it, you can follow this link. www.nationalcmlsociety.org/Celebrate_My_Life_April2010.html Bobby, look forward to your updates. And, how's that bong pipe? ;-) Take care everyone! > > > > Hi everyone, it sure is dull around here without Lottie. I will call > > tomorrow and see how she is, has anyone heard from her? Bobby > > > > -- > > a Doyle/dob 1929 > > DX /CML/1995/Interferon/hydrea > > 2/00 - Gleevec Trial, OHSU, Dr. Druker > > 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker > > 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " " > > 7/04 - Sprycel Trial, MDACC, Dr. Talpaz > > 3/05 - CCR > > 12/07 - Ended trial due to Pleural Effusion > > 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz > > 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz > > #840 Zavie's Zero Club #840 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 LOL!!! Yep, I've got my paraphenalia mixed up, huh? Heheheh! I've got to tell you that I laugh everytime I think of you telling me that story! It is too funny! I always love your comments when it comes up! I'm sure others will chime in soon! :-) Give it another try...it shouldn't require you to log in or register. Not sure what happened. You might just try going straight to nationalcmlsociety.org and then clicking on Celebrate My Life Spotlight down on the right hand side. Let me know if it continues to ask you to do that! > > > > > > > > Hi everyone, it sure is dull around here without Lottie. I will call > > > > tomorrow and see how she is, has anyone heard from her? Bobby > > > > > > > > -- > > > > a Doyle/dob 1929 > > > > DX /CML/1995/Interferon/hydrea > > > > 2/00 - Gleevec Trial, OHSU, Dr. Druker > > > > 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker > > > > 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " " > > > > 7/04 - Sprycel Trial, MDACC, Dr. Talpaz > > > > 3/05 - CCR > > > > 12/07 - Ended trial due to Pleural Effusion > > > > 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz > > > > 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz > > > > #840 Zavie's Zero Club #840 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Now I'm laughing at me, maybe I wasn't even on your website!!! a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: gregscmlhope <gstephens@...> Subject: [ ] Re: LOTTIE Date: Friday, May 21, 2010, 11:21 AM Â LOL!!! Yep, I've got my paraphenalia mixed up, huh? Heheheh! I've got to tell you that I laugh everytime I think of you telling me that story! It is too funny! I always love your comments when it comes up! I'm sure others will chime in soon! :-) Give it another try...it shouldn't require you to log in or register. Not sure what happened. You might just try going straight to nationalcmlsociety.org and then clicking on Celebrate My Life Spotlight down on the right hand side. Let me know if it continues to ask you to do that! > > > > > > > > Hi everyone, it sure is dull around here without Lottie. I will call > > > > tomorrow and see how she is, has anyone heard from her? Bobby > > > > > > > > -- > > > > a Doyle/dob 1929 > > > > DX /CML/1995/Interferon/hydrea > > > > 2/00 - Gleevec Trial, OHSU, Dr. Druker > > > > 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker > > > > 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " " > > > > 7/04 - Sprycel Trial, MDACC, Dr. Talpaz > > > > 3/05 - CCR > > > > 12/07 - Ended trial due to Pleural Effusion > > > > 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz > > > > 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz > > > > #840 Zavie's Zero Club #840 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Dear Lottie Please get well so we can have you back!!! We miss you so much Thinking about you every day! Sharon T _____ From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: Friday, May 21, 2010 2:19 PM Subject: [ ] Lottie I had a brief message from Lottie, she was tired and had to go lie down. In essence, here is what she said: her back hurts from; Here it is, scoliosis, spinal stenosis for my back. When I went to the hospital the last time, I had another stroke and heart failure along with the renal failure. I just can't even remember everything. The heart failure is the reason for needing the oxygen So there it is, direct from the lady herself. She needs lots of rest and some chicken soup!!! Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
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