Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Hey all- I too had the gleevec rash while on gleevec. Mostly just really bad on both of my calves, Now, I have been on Sprycel for 2 1/2 years and have been fighting a rash for about the last 10 months or so. They did biopsy it about 6 moths ago but are unsure if its from the meds. The bad thing about this is it is on both sides of my face and all around my left eye. Its bright red, bumpy, itchy and burning. I try not to scratch it but it itches so bad. It is also all over my right hand. I am seeing a dermatologist and she gave me a cream for my hand but wont let me use anything on my face around my eye because that skin is so thin and brittle there. I am afraid its from the drug and that I may have to stop it..... She is having me see a specialist to do a " patch " test. Its a type of allergy test. (not the shots down the arm or back) but they put patches on your back on monday, remove them on Wednesday and then read it on Friday. It is supposed to tell you what chemicals in all kinds of products you are allergic too. I have never had allergies or anything. I wake myself up scratching it..... My hubby thinks that my PH is too acidic... My skin all over always itches. Any thoughts on this?? Any comments are greatly appreciated..... sprycel 100mg was on 800mg of Gleeve In a message dated 4/1/2010 9:57:36 P.M. Central Daylight Time, rcd1929@... writes: Hi , I got the rash about two months after starting Gleevec. It was a long time ago, but I well remember, it took prednisone pills and cortisone cream to get rid of, some of the rash ulcerated, and it lasted months. Get thee to a dermatologist ! Mine biopsied the rash and said it was definitely from the drug, so I was sure. I have terrible pictures of it, if you would like I will send them to you, but they are not nice! Bobby a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: Rosen Lum <_rrosenlum@..._ (mailto:rrosenlum@...) > Subject: Re: [ ] Rash _@..._ (mailto: ) Date: Thursday, April 1, 2010, 10:05 PM Awful! I used to get it inside my mouth on the right side and down the right side of my throat. Nothing seemed to ease it or speed it up. At first, right after it subsided I would get horrible pain in all my teeth. Then I started taking Acyclovir. It didn't seem to have much effect on the rash itself, but it would prevent that pain from following it. Since I've been off Gleevec, I haven't had that problem once! On Thu, Apr 1, 2010 at 6:24 PM, Murray <_mylifemyhappiness@mylifemyh_ (mailto:mylifemyhappiness@...) >wrote: > > > Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am > sure someone has. What does it look like and how does it feel? Thanks, > > > [Non-text portions of this message have been removed] > > > [Non-text portions of this message have been removed] ------------------------------------ Groups Links [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Aw -- I am so sorry to hear you've had to endure this. Especially around your eyes, it must be an utter misery. I will sure ask around about this. On Thu, Apr 1, 2010 at 8:54 PM, <vegasrnjen@...> wrote: > > > Hey all- > > I too had the gleevec rash while on gleevec. Mostly just really bad on > both of my calves, Now, I have been on Sprycel for 2 1/2 years and have > been > fighting a rash for about the last 10 months or so. They did biopsy it > about 6 moths ago but are unsure if its from the meds. The bad thing about > this is it is on both sides of my face and all around my left eye. Its > bright red, bumpy, itchy and burning. I try not to scratch it but it itches > so > bad. It is also all over my right hand. I am seeing a dermatologist and > she gave me a cream for my hand but wont let me use anything on my face > around my eye because that skin is so thin and brittle there. I am afraid > its > from the drug and that I may have to stop it..... She is having me see a > specialist to do a " patch " test. Its a type of allergy test. (not the > shots down the arm or back) but they put patches on your back on monday, > remove > them on Wednesday and then read it on Friday. It is supposed to tell you > what chemicals in all kinds of products you are allergic too. I have > never had allergies or anything. I wake myself up scratching it..... > My hubby thinks that my PH is too acidic... My skin all over always itches. > > Any thoughts on this?? Any comments are greatly appreciated..... > > > sprycel 100mg > was on 800mg of Gleeve > > > In a message dated 4/1/2010 9:57:36 P.M. Central Daylight Time, > rcd1929@... <rcd1929%40sbcglobal.net> writes: > > Hi , I got the rash about two months after starting Gleevec. It was > a long time ago, but I well remember, it took prednisone pills and > cortisone cream to get rid of, some of the rash ulcerated, and it lasted > months. > Get thee to a dermatologist ! Mine biopsied the rash and said it was > definitely from the drug, so I was sure. I have terrible pictures of it, if > you > would like I will send them to you, but they are not nice! Bobby > > a ( Bobby ) Doyle, dob 12/17/29 > Brecksville, Ohio, USA > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.017 > 11/2009 PCR 0.034 > #840 Zavie's Zero Club > > > > From: Rosen Lum <_rrosenlum@... <_rrosenlum%40gmail.rro>_ > (mailto:rrosenlum@... <rrosenlum%40gmail.com>) > > > Subject: Re: [ ] Rash > _@... <_%40groups.CML>_ (mailto: > <%40>) > Date: Thursday, April 1, 2010, 10:05 PM > > Awful! I used to get it inside my mouth on the right side and down the > right > side of my throat. Nothing seemed to ease it or speed it up. At first, > right > after it subsided I would get horrible pain in all my teeth. Then I started > taking Acyclovir. It didn't seem to have much effect on the rash itself, > but > it would prevent that pain from following it. > > Since I've been off Gleevec, I haven't had that problem once! > > On Thu, Apr 1, 2010 at 6:24 PM, Murray > <_mylifemyhappiness@mylifemyh_ (mailto:mylifemyhappiness@...<mylifemyhappiness%40>) > >wrote: > > > > > > > Hey everyone, I was just wondering if anyone has had the Gleevec rash? I > am > > sure someone has. What does it look like and how does it feel? Thanks, > > > > > > Quote Link to comment Share on other sites More sharing options...
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