Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 In a message dated 9/2/2006 1:45:14 AM Central Daylight Time, kanga2@... writes: >One of the worst sounds in the world is a child saying "oh-oh". Thanks for the fun stuff. I needed that! I'm 75. I was one of those unexpecting persons who got Hep C by blood transfusion about 30 years ago. I've gone through the interferon process once, several years ago, but, as my doctor put it, I failed. (First F I ever had, Ha!) About a month ago my doctor, who is not a specialist, told me I should go to a specialist because my ALT reading is getting steadily higher, and has for the past two years. I have an appointment with a doctor with a great reputation for Sept. 11, and I'm scared he will think I'm too old for him to help, and I'm scared he won't. lol. I know that everyone has the option of getting eternal life, but that scares me, too. I'm one of the ornierest people I know, and would like to wait until I have the Bible memorized. lol Just wanted to say hi, and I'm glad to read the things you say. That encourages me a bunch! Dar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 hahaha,, thanks anne for the good belly laugh,, I needed THAT today! love ya hon jaxanne <kanga2@...> wrote: > One of the worst sounds in the world is a child saying "oh-oh".> > Air-fresheners cannot compete with a cat which has eaten curry.> > When your Boss enters the room and says "I have had an idea" or "I've > been thinking..." , you know you are doomed.> > The minute you think things could be worse, they get worse.> > Good-looking people suffer from memory loss and something else but I > cant remember what it is.> > Love anne> > ps. latest news. A ship carrying 50,000 tons of red paint has collided > with a ship carrying 50,000 tons of brown paint. 150 sailors have been > marooned. lol. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Pat, I couldn't agree with you more... well said! in Los Angeles On Wed, May 12, 2010 at 3:38 PM, phoenixpat <phoenixpat@...> wrote: > > > Hi all - When I went to the lab today I was asked if I was on the " magic > pill " that was on Dr. Oz last night? I was able to turn the question into an > opportunity to educate others. You see, at this point, Gleevec isn't working > for me, and what I need more than anything is straight information. I think > other patients deserve the same. > > Last night's program was a great example of branding Gleevec as a leading > drug in cancer care. As a public relations professional I have to > congratulate the Novartis team for a job well done on behalf of their > product, and appreciate the fact that Dr. Druker was credited and included. > > As a CML patient, however, I would have preferred a less dramatic and more > factual segment that I could have used to educate others. What I/we got is > an entertaining segment that can still be used to educate others by > addressing the key points that were left out and why they matter. There is a > lot of value in having " America's Doctor " talk about CML and we can seize > this opportunity for the good of others if we want. I know that's what I'm > doing. > > Take care everyone, > Pat in Phoenix > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 You're right, Pat! This gives plenty of opportunity for us to educate on our disease. With this reply, I am moving on to doing just that. Let's all take what we've seen, share our concerns in a non-threatening way, and help the general public understand how glad we are to have Gleevec, but to also realize that there is still much to be done! Thanks, Pat! > > Hi all - When I went to the lab today I was asked if I was on the " magic pill " that was on Dr. Oz last night? I was able to turn the question into an opportunity to educate others. You see, at this point, Gleevec isn't working for me, and what I need more than anything is straight information. I think other patients deserve the same. > > Last night's program was a great example of branding Gleevec as a leading drug in cancer care. As a public relations professional I have to congratulate the Novartis team for a job well done on behalf of their product, and appreciate the fact that Dr. Druker was credited and included. > > As a CML patient, however, I would have preferred a less dramatic and more factual segment that I could have used to educate others. What I/we got is an entertaining segment that can still be used to educate others by addressing the key points that were left out and why they matter. There is a lot of value in having " America's Doctor " talk about CML and we can seize this opportunity for the good of others if we want. I know that's what I'm doing. > > Take care everyone, > Pat in Phoenix > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 I have a question. Are Sprycel and Tasigna the same as Gleevec? I have been on all three and I do not understand what one (gleevec) has that the other two do not. Why are then not discussed as a miracle pill also? Sharon Re: [ ] A few thoughts Pat, I couldn't agree with you more... well said! in Los Angeles On Wed, May 12, 2010 at 3:38 PM, phoenixpat <phoenixpat@...> wrote: > > > Hi all - When I went to the lab today I was asked if I was on the " magic > pill " that was on Dr. Oz last night? I was able to turn the question into an > opportunity to educate others. You see, at this point, Gleevec isn't working > for me, and what I need more than anything is straight information. I think > other patients deserve the same. > > Last night's program was a great example of branding Gleevec as a leading > drug in cancer care. As a public relations professional I have to > congratulate the Novartis team for a job well done on behalf of their > product, and appreciate the fact that Dr. Druker was credited and included. > > As a CML patient, however, I would have preferred a less dramatic and more > factual segment that I could have used to educate others. What I/we got is > an entertaining segment that can still be used to educate others by > addressing the key points that were left out and why they matter. There is a > lot of value in having " America's Doctor " talk about CML and we can seize > this opportunity for the good of others if we want. I know that's what I'm > doing. > > Take care everyone, > Pat in Phoenix > > > Quote Link to comment Share on other sites More sharing options...
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