Dr. Oz

April 20, 2010

Thanks for posting, Lottie! Pat in Phoenix has heard from a Novartis Rep that

the show will air on May 11th. I will post again when I get word from the

producers. I'm going to go ahead and set my DVR! :-)

>

> Here is a Dr. Oz podcast on rashes. I called the number for tickets and they

could not give me any information about when the Dr. Druker program will air.

They advised to keep watching for his website at www.dr.oz.com.

>

> http://www.doctoroz.com/videos/rash-remedies

> FYI,

> Lottie Duthu

>

May 12, 2010

I'm sitting here in tears...how incredible that the drive of one person can

change the world for all of us! I am so grateful for the intelligence and

perserverance of Dr. Druker and for the first patients who took the chance on an

unknown drug....thank you all.

______________________________________

About the show....I was not disappointed.

If you watch Dr. Oz at all....each story segment is a small piece of the show,

to keep the show interesting....and the show is NOT technical, so that it

appeals to many people and is stated in ways that they will remember. I think

Dr. Oz is doing a great job and service to the general population, encouraging

people to get more knowledgeable and healthier.

Leukemia was mentioned....the young girl was a leukemia survivor because of

Gleevec. The general public does not care about what kind of leukemia.

I think the big emphasis was on how Gleevec changed the picture about cancer

treatment and the future of it. The general public will remember about the

smashed doll house and how this treatment is so much different (just turn off

the light). For people who knew nothing about Gleevec and treating cancer with a

pill....this show was about the 'big picture'...not the details. How many people

would be tuning into a dry program of medical details?

I think Dr. Druker's achievement was well showcased to the general public....and

he deserves this type of recognition.

C. (his patient since 2000)

May 12, 2010

Hi ,

I don't think anyone will disagree with you on that! Dr. Druker deserves much

praise and admiration for his work with Gleevec. I Was hoping that HE would

have been able talk more about it, which could have really made for an

interesting program. It would have been nice to let all the patients express

their thanks to him. I agree that the show was geared to a more general

audience. My only concern would be that the general public might read

" curative " into it, not understanding that it really is, like you say, more like

" turning off the light " and not removing the wiring and bulb. For example, his

interview with 11Alive in Atlanta:

http://www.11alive.com/video/default.aspx?bctid=84589435001 In this interview,

he says that it has " Cured a number of leukemias " .

One thing about it, Dr. Druker made sure Dr. Oz knew that his motivation came

from his role as a physician treating patients more so than that of researcher.

His passion for his work and compassion for people really shows!

Thank you Dr. Druker for all you've done and continue to do for our

community!!!!

How are things going with you?

>

> I'm sitting here in tears...how incredible that the drive of one person can

change the world for all of us! I am so grateful for the intelligence and

perserverance of Dr. Druker and for the first patients who took the chance on an

unknown drug....thank you all.

> ______________________________________

>

> About the show....I was not disappointed.

> If you watch Dr. Oz at all....each story segment is a small piece of the show,

to keep the show interesting....and the show is NOT technical, so that it

appeals to many people and is stated in ways that they will remember. I think

Dr. Oz is doing a great job and service to the general population, encouraging

people to get more knowledgeable and healthier.

>

> Leukemia was mentioned....the young girl was a leukemia survivor because of

Gleevec. The general public does not care about what kind of leukemia.

>

> I think the big emphasis was on how Gleevec changed the picture about cancer

treatment and the future of it. The general public will remember about the

smashed doll house and how this treatment is so much different (just turn off

the light). For people who knew nothing about Gleevec and treating cancer with a

pill....this show was about the 'big picture'...not the details. How many people

would be tuning into a dry program of medical details?

>

> I think Dr. Druker's achievement was well showcased to the general

public....and he deserves this type of recognition.

>

> C. (his patient since 2000)

>

May 12, 2010

Hi Beth - You and I were doing the same thing!! How strange is that. I have a

sinus cold. What do you have? I went to see the dr at 5:00, he prescribed

antibiotics but the pharmacy was already closed so I have to wait until

tomorrow. Now I am running a low grade fever 99.6! I have some amoxy on hand

that I started earlier today which I'm glad I have. I didn't think of watching

Dr Oz.

How are you? Feeling better? Are your counts low?

Talk to you soon,

Jackie S.

________________________________

From: " bethgalliart@... " <bethgalliart@...>

Sent: Tue, May 11, 2010 11:17:11 AM

Subject: Re: [ ] Dr. oz

Have to say that I'm having a rare bad day today, so I'm home sick from work and

I just watched the segment and I'm sitting here in tears...how incredible that

the drive of one person can change the world for all of us! I am so grateful for

the intelligence and perserverance of Dr. Druker and for the first patients who

took the chance on an unknown drug....thank you all.

Beth

[ ] Dr. oz

>

> Hi, I taped his show today, it did not show the cml segment. I get Dr. Oz

> on ABC, does he have different shows? Bobby

>

> --

> a Doyle/dob 1929

> DX /CML/1995/Interfero n/hydrea

> 2/00 - Gleevec Trial, OHSU, Dr. Druker

> 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

> 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

> 7/04 - Sprycel Trial, MDACC, Dr. Talpaz

> 3/05 - CCR

> 12/07 - Ended trial due to Pleural Effusion

> 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

> 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

> #840 Zavie's Zero Club #840

>

May 12, 2010

>

> Hi ,

>

> I don't think anyone will disagree with you on that! Dr. Druker deserves much

praise and admiration for his work with Gleevec. I Was hoping that HE would

have been able talk more about it, which could have really made for an

interesting program. It would have been nice to let all the patients express

their thanks to him. I agree that the show was geared to a more general

audience. My only concern would be that the general public might read

" curative " into it, not understanding that it really is, like you say, more like

" turning off the light " and not removing the wiring and bulb. For example, his

interview with 11Alive in Atlanta:

http://www.11alive.com/video/default.aspx?bctid=84589435001 In this interview,

he says that it has " Cured a number of leukemias " .

>

> One thing about it, Dr. Druker made sure Dr. Oz knew that his motivation came

from his role as a physician treating patients more so than that of researcher.

His passion for his work and compassion for people really shows!

>

> Thank you Dr. Druker for all you've done and continue to do for our

community!!!!

>

> How are things going with you?

__________________________________________

Hi Greg,

I think the purpose of all the cmlers on stage (and maybe some other cancers,

like GIST) was to show that there is a relatively large group of people who have

benefitted....and they flashed through a series of photos of people who's lives

have been changed by this pill. This was not a technical show....but these

people's lives have been saved! I think that is more important to the story.

Then the producers took what they thought would be the most compelling story, of

the young girl.....and her dad expressing his gratitude to Dr. Druker.....and he

was applauded by all on stage and the audience.

Those of you who were NOT diagnosed before Gleevec were probably never told that

you only have 3-5 years to live.....this pill changed all that. And they had the

second ? resercher in the audience say that this changed cancer treatment (she

used the word paridigm, and I am sure people watching did not know what that

meant). The show was about changing cancer treatment....and I know (personally)

that Dr. Druker knows that the significance of Gleevec is more than treating

CML....it changed the way researchers think about cancer treatment.

Dr. Oz tries to keep people's attention by making medical information fun and

interesting.......and he covers a lot of ground each show.

He usually does most things visually....like his schematic for leukemia....that

was probably new information for a lot of his audience...the marrow, the white

cells becoming sociopaths!

For a short segment, I think they did a good job.

---------------

You asked about me Greg.....I am one of Dr. Druker's few patients to now be on

my 3rd drug....being one of those slow responders (I went from Gleevec, to

Sprycel with effusions and now Tasigna x 2 months). I am doing well, these drugs

are saving me....I don't expect to die from CML.

I think the work you are doing is great. I still have a punk computer but I will

have to venture onto your site one of these days.

PS It would be interesting to know who the CMLers were on the show. I looked at

faces (and the photos) and tried to see if I knew anyone. If you were on the

show it would be fun to hear about your experience.

C.

May 12, 2010

lol, we are sisters in spirit aren't we? I'm not sure what is going on. My

counts were normal last week. I broke out in a rash under both arms on Thursday

last week and I've been feeling nauseous and tired and headachy ever since. I

ended up sleeping about 20 hours on Monday and yesterday I was still low energy.

Still under the weather, but need to drag myself into work (if only for my own

sanity). I was wondering if I have shingles, but the rash is on both sides and

doesn't really hurt. The one thing I can think of is the increased dose is

making my body work harder to process and I just needed to crash? Who knows. But

it did make me a teeny bit depressed about being sick. You should see my

house--it is a mess at the moment. Can't even bring myself to clean it

up--although I will force myself to do so today. :-)

Sorry to hear about your fever and sinus infection! Hopefully the antibiotics

are kicking in by today and you are feeling better. We must patch ourselves up

so we can experience the joy of the BMB next week...

Take care and feel better!

Beth

[ ] Dr. oz

>

> Hi, I taped his show today, it did not show the cml segment. I get Dr. Oz

> on ABC, does he have different shows? Bobby

>

> --

> a Doyle/dob 1929

> DX /CML/1995/Interfero n/hydrea

> 2/00 - Gleevec Trial, OHSU, Dr. Druker

> 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

> 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

> 7/04 - Sprycel Trial, MDACC, Dr. Talpaz

> 3/05 - CCR

> 12/07 - Ended trial due to Pleural Effusion

> 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

> 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

> #840 Zavie's Zero Club #840

>

May 12, 2010

I can't believe they never mentioned CML! They didn't really acknowledge

the people on the stage, barely mentioned that they were helped by Gleevec.

I'm glad to see Dr. Druker and hear him speak, but wish he could have

said more. It was misleading to the general public. It sounds like all

leukemia can be " cured " by a pill. No mention of difficulties taking the drug.

The young girl's story never even mentioned her type of leukemia either.

Also, no mention of two other drugs now approved that make use of targeted

therapy as well. At least it was something, but I don't think it gave

enough information.

in NY

May 12, 2010

Thanks . And, I agree with your thoughts. I think the biggest thing for

me is that during the early conversations regarding the episode, I was under the

impression that it was going to be much more in depth. Who knows how much

incredible stuff ended up on the cutting room floor. Yes, Dr. Oz has to keep it

" light " and more upbeat in order to maintain the viewing audience. This is

certainly understandible when you consider the media outlet he has to work

within.

So, now on to more important things, right?

Yes, I am aware that you are now on Tasigna and I have been very interested in

reading your posts and hearing your thoughts on how the drug is working for you.

As we've talked in the past, your story is of particular interest because, as

you say, you've been one of the " turtles " in the bunch and have experienced slow

responses. I would really love to hear your comparison of the three drugs

across a timeline...for example, with you now on Tasigna for 2 months, how has

this first two months compared with the others. Your comment " I'm doing well,

these drugs are saving me..... " has whet my appetite to hear more! As always, I

am wishing you well with every hurdle and look forward to more good reports!

Thank you for your kind words regarding the work we're trying to accomplish. As

I shared with the group, this work is about us, not any one person. It is much

larger than that. I hope that it will be able to put into place many

ground-based things we've all talked about. I am always open to ideas,

thoughts, and suggestions.

Look forward to talking more sometime soon. And hey, I promise I am going to be

out in your area sometime and I definitely owe you lunch! :-)

> >

> > Hi ,

> >

> > I don't think anyone will disagree with you on that! Dr. Druker deserves

much praise and admiration for his work with Gleevec. I Was hoping that HE

would have been able talk more about it, which could have really made for an

interesting program. It would have been nice to let all the patients express

their thanks to him. I agree that the show was geared to a more general

audience. My only concern would be that the general public might read

" curative " into it, not understanding that it really is, like you say, more like

" turning off the light " and not removing the wiring and bulb. For example, his

interview with 11Alive in Atlanta:

http://www.11alive.com/video/default.aspx?bctid=84589435001 In this interview,

he says that it has " Cured a number of leukemias " .

> >

> > One thing about it, Dr. Druker made sure Dr. Oz knew that his motivation

came from his role as a physician treating patients more so than that of

researcher. His passion for his work and compassion for people really shows!

> >

> > Thank you Dr. Druker for all you've done and continue to do for our

community!!!!

> >

> > How are things going with you?

> __________________________________________

>

> Hi Greg,

> I think the purpose of all the cmlers on stage (and maybe some other cancers,

like GIST) was to show that there is a relatively large group of people who have

benefitted....and they flashed through a series of photos of people who's lives

have been changed by this pill. This was not a technical show....but these

people's lives have been saved! I think that is more important to the story.

Then the producers took what they thought would be the most compelling story, of

the young girl.....and her dad expressing his gratitude to Dr. Druker.....and he

was applauded by all on stage and the audience.

>

> Those of you who were NOT diagnosed before Gleevec were probably never told

that you only have 3-5 years to live.....this pill changed all that. And they

had the second ? resercher in the audience say that this changed cancer

treatment (she used the word paridigm, and I am sure people watching did not

know what that meant). The show was about changing cancer treatment....and I

know (personally) that Dr. Druker knows that the significance of Gleevec is more

than treating CML....it changed the way researchers think about cancer

treatment.

>

> Dr. Oz tries to keep people's attention by making medical information fun and

interesting.......and he covers a lot of ground each show.

> He usually does most things visually....like his schematic for

leukemia....that was probably new information for a lot of his audience...the

marrow, the white cells becoming sociopaths!

> For a short segment, I think they did a good job.

> ---------------

>

> You asked about me Greg.....I am one of Dr. Druker's few patients to now be on

my 3rd drug....being one of those slow responders (I went from Gleevec, to

Sprycel with effusions and now Tasigna x 2 months). I am doing well, these drugs

are saving me....I don't expect to die from CML.

>

> I think the work you are doing is great. I still have a punk computer but I

will have to venture onto your site one of these days.

>

> PS It would be interesting to know who the CMLers were on the show. I looked

at faces (and the photos) and tried to see if I knew anyone. If you were on the

show it would be fun to hear about your experience.

>

> C.

>

May 12, 2010

Hi :Â You are so right.Â The picture was not clear, and he made it sound

like a walk in the park.Â I think this should not have been on the Dr. Oz

show.Â Its just not the right program.Â He always trys to put too many issues

on one program.Â I am sure half of the viewers did not understand or got the

wrong idea.Â I also wish Dr. Druker got to speak more, and the people in the

audience got to tell more of their story.

A

From: nchando@... <nchando@...>

Subject: [ ] Dr. Oz

Date: Wednesday, May 12, 2010, 1:28 PM

Â