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Maybe the multiple orthos has to do with holiday craziness? It doesn't seem like the norm. We've only ever seen one woman and we really like her. I'd ask them about it.

I agree with Holly on going back to what you used to use and see if that helps. So many soaps that work without issue normally can irritate them in that helmet.

Elaine (twin A) palgio & tort, 7mos 1 week in 2nd helmet

On Fri, Jan 9, 2009 at 2:43 PM, Holly <hollyloo@...> wrote:

if it was me, i'd go back to his normal shampoo and run a cool-mist humidifier (plus the dreaded saline + bulb sucker) for congestion and see if that rash goes away.i'd still call ct as well.as for so many orthotists working on his helmet, i'm not sure i'd like that too much. we haven't had an adjustment yet, but i hope it'll be the same person we saw for the scan and the initial fit.

On Fri, Jan 9, 2009 at 2:13 PM, Knapp <knapp1307@...> wrote:

The past few days I have been using s Soothing Vapor Baby bath since he has been very congested. Other than that he did get an adjustment on monday from his third orthotist at CT. Is it normal to have so many different people working on his helmet?

Thanks,

From: Holly <hollyloo@...>Plagiocephaly

Sent: Friday, January 9, 2009 12:00:27 PMSubject: Re: rash

Is anything different? New soap? New shampoo? I would definitely call and see what they say. Please keep us posted!

On Fri, Jan 9, 2009 at 1:43 PM, Knapp <knapp1307 (DOT) com> wrote:

Hi all, i know this question has been brought up millions of times already but over the past couple days Cole has been getting a rash that looks like heat rash in his eyebrows and on his forehead. The helmet covers his eyebrows most of the time so thats why they are involved in the rash as well. It was looking pretty bad this morning so I took it off, cleaned it with alcohol and am sitting it outside to UV ray the thing to death. I also put hydrocortisone cream on my guys rash and am letting him go without the helmet till it clears up. Is this the right thing to do? Should I be waiting to put the helmet back on till the rash goes away? Is there something else I could do to prevent this from happening again? Should I call CT? Whats weird is he has been in the helmet since 12/1/08 and is just now getting a rash.

Thanks, COLE - 7 months - DOCband since 12/1/08

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Hi -

Right after Christmas Lucy got a terrible rash to the left side of head and

also to her neck

- she also developed swelling at the base of her neck and the helmet stunk worse

than it

ever has. This all really developed in about 12 hours - we take her band off 2

times a day

to clean it and wash her head because she is a sweater! So we took off her

helmet, put 1%

cortisone on all the areas and left the helmet off until the next morning when

we could

get in to see our ortho - they made a few adjustments and we went to the ped who

prescribed some 2.5% cortisone - since then we have been back to 23 hours a day

wear

without a problem - we just put the cortisone on at night if it is looking red

and irritated.

And the stink is gone! She has been in it 12/1 too without having any other

problems. So

who knows, maybe she just grew in those areas so there was new irritation??

I would leave the helmet off and call CT to get in ASAP for an adjustment and

keep up

with the cortisone once a day - if it looks a lot better before you get back

into CT, try the

helmet again for short periods to see how it goes.

Hope this helps! - Meg

>

> Hi all, i know this question has been brought up millions of times already but

over the

past couple days Cole has been getting a rash that looks like heat rash in his

eyebrows

and on his forehead. The helmet covers his eyebrows most of the time so thats

why they

are involved in the rash as well. It was looking pretty bad this morning so I

took it off,

cleaned it with alcohol and am sitting it outside to UV ray the thing to death.

I also put

hydrocortisone cream on my guys rash and am letting him go without the helmet

till it

clears up. Is this the right thing to do? Should I be waiting to put the helmet

back on till

the rash goes away? Is there something else I could do to prevent this from

happening

again? Should I call CT? Whats weird is he has been in the helmet since 12/1/08

and is

just now getting a rash.

> Thanks,

>

> COLE - 7 months - DOCband since 12/1/08

>

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I called CT and they suggested the cortisone once a day and leave the helmet off for 24 hours. If the rash persists after 24 hours though Ill have to get him in forst thing on Monday. Too bad we are entering the weekend as I would get him in sooner if the rash is still here by tomorrow. Im hoping it wont be! We just had an adjustment on monday so Im hoping it had nothing to do with that. Thanks for all your responses!- From: Meg

<mdrewapnp@...>Plagiocephaly Sent: Friday, January 9, 2009 3:01:49 PMSubject: Re: rash

Hi -

Right after Christmas Lucy got a terrible rash to the left side of head and also to her neck

- she also developed swelling at the base of her neck and the helmet stunk worse than it

ever has. This all really developed in about 12 hours - we take her band off 2 times a day

to clean it and wash her head because she is a sweater! So we took off her helmet, put 1%

cortisone on all the areas and left the helmet off until the next morning when we could

get in to see our ortho - they made a few adjustments and we went to the ped who

prescribed some 2.5% cortisone - since then we have been back to 23 hours a day wear

without a problem - we just put the cortisone on at night if it is looking red and irritated.

And the stink is gone! She has been in it 12/1 too without having any other problems. So

who knows, maybe she just grew in those areas so there was new irritation??

I would leave the helmet off and call CT to get in ASAP for an adjustment and keep up

with the cortisone once a day - if it looks a lot better before you get back into CT, try the

helmet again for short periods to see how it goes.

Hope this helps! - Meg

>

> Hi all, i know this question has been brought up millions of times already but over the

past couple days Cole has been getting a rash that looks like heat rash in his eyebrows

and on his forehead. The helmet covers his eyebrows most of the time so thats why they

are involved in the rash as well. It was looking pretty bad this morning so I took it off,

cleaned it with alcohol and am sitting it outside to UV ray the thing to death. I also put

hydrocortisone cream on my guys rash and am letting him go without the helmet till it

clears up. Is this the right thing to do? Should I be waiting to put the helmet back on till

the rash goes away? Is there something else I could do to prevent this from happening

again? Should I call CT? Whats weird is he has been in the helmet since 12/1/08 and is

just now getting a rash.

> Thanks,

>

> COLE - 7 months - DOCband since 12/1/08

>

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  • 1 month later...

After 3+y, I have begun reacting to ldn cream with a fine, diffuse,

very itchy rash. Plain emu oil remains fine so I know it is not that

component. My ASD daughter uses ldn too and has had no reactions. Any

ideas? Thanks,

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>

> After 3+y, I have begun reacting to ldn cream with a fine, diffuse,

> very itchy rash. Plain emu oil remains fine so I know it is not that

> component. My ASD daughter uses ldn too and has had no reactions. Any

> ideas? Thanks,

>=============

Do you have candida yeast? That might be the cause, also check to see

if pharmacy has changed manufaturers of any of the cream ingredients.

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  • 4 weeks later...
Guest guest

Hi there,

You don't have to be fearful of what might happen to you, because we have plenty

of women who have survived their implant experience and are doing well. It can

be frightening to go through the health disasters, for sure, and I do not want

to downplay the seriousness of those events. I was scared out of my mind when I

started getting sick. I didn't want to believe that the implants had to do

anything with my illness, because I wanted to keep them. But the more I talked

with women who had become sick like me, the more I realized that this was a very

real possibility.

Then I had to make a choice. Either I kept the implants and got on that awful

medical merry go round with doctors scratching their heads about why I was sick

and not offering many clues, or I could remove the implants and hope that I

could get back to my good health.

I chose to the most practical route I could think of. I've always heard that

when things get totally messed up in life, you go back to the place, the

situation when they weren't. It was pretty clear that if I wanted my health

back, the implants had to go. I just wanted to be happy and healthy again.

It was the best decision I could have made. It took alot of faith, time and

effort at detoxing to get better, but I did, and I am so thankful.

You don't have to be filled with fear. You just have to ask yourself what it is

you want. If you want health, then make the practical decisions that will get

you there. Be careful about listening to what doctors tell you because they can

lead you down a dark path. They don't really understand implant illness. Talk

to people who have been successful in getting better. Find out what they did.

Then make decisions for yourself about what you want to do.

That's what this group is for...it is to help women see that they can get

better, that life can be good again, that implants are not all they are cracked

up to be, and that you can have a successful explant, enjoy your body, find

answers to questions about healing and make progress in turning that corner in

your life. Breast implants can bring disaster, but it is not permanent. You

can survive it.

Let us know how we can help.

Patty

>

>

>

> I've developed a rash that I thought was ringworm I was treated for that and

eczema but the rash is reocurring

> At first I thought nothing about it but a thought came to my head what about

if the implants are doing this to me so I googled it and I found that some of

the symptoms of leakage or rupture start with that I have silicone imlants and I

have read all this stories and I'm really afraid that it will be me I cannot

begin to think what might happen to me. I haven't said anything to anyone about

my suspisions and that is eating me alive please give me some support

> Sent from my iPhone

>

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Guest guest

Yes, I had these acne type lesions myself.

They went away after proper explant.

Not sure what they are, but could be related to fungus, silicone, and something

going on in the immune system.

Patty

> Ive have a rash on my chest. Ive had it for awhile now. It doesnt look like

ringworm but at infection of sort. Its similar to acne but they never want to

heal completely. My one implant is now completely ruptured.

>

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  • 3 months later...
Guest guest

did you check candida

>

> Hi, this is my first post, I started LDN a week ago, have been fine but have

deleloped an itch and slight rash on lower face and neck. The prescription I

have been given is for 2 weeks on 3mg then onto 4.5mg, I am now wondering if I

should stay on the 3mg longer to allow my body to get used to it before going up

to 4.5mg. Would appreciate your advice on this so I can order more of the 3mg

before it runs out. Thanks,

>

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Guest guest

You may want to take some anti-fungals in case the LDN is stirring yeast through

the skin.

Q: Dr. JM or anyone- Does LDN cause candida?

A: LDN has been noted to aggravate yeast infections and other latent pathogens,

viruses, etc. as the immune system is making early adjustments. It is good to

have natural yeast remedies on board when LDN is started (grapefruit seed

extract, Candex, lauricidin, hi-potency probiotics, etc) to help offset this

possibility. (And of course a good dietary regime that does not encourage gut

inflammation which is usually the predecessor to pathogen invasion).

Dr. Jaquelyn McCandless

posted by

==============

>

> Hi, this is my first post, I started LDN a week ago, have been fine but have

deleloped an itch and slight rash on lower face and neck. The prescription I

have been given is for 2 weeks on 3mg then onto 4.5mg, I am now wondering if I

should stay on the 3mg longer to allow my body to get used to it before going up

to 4.5mg. Would appreciate your advice on this so I can order more of the 3mg

before it runs out. Thanks,

>

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  • 2 months later...

Any new insights about what could be contributing to an itchy rash at

application site? We're using the emu oil base from a recommended pharmacy; do

not have the same response to plain emu oil. Rash appeared after many months on

ldn and takes a couple of weeks to go away. Thanks,

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you better ask this question dr mccandless as she has experience.rarely it

happened and i think there is alternative for the oil.

>

> Any new insights about what could be contributing to an itchy rash at

application site? We're using the emu oil base from a recommended pharmacy; do

not have the same response to plain emu oil. Rash appeared after many months on

ldn and takes a couple of weeks to go away. Thanks,

>

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  • 6 months later...
Guest guest

Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am sure

someone has. What does it look like and how does it feel? Thanks,

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