Re: Stomach Cramping

[Guest guest]

I would be happy to answer anything I can. I started having trouble

at 7 or 8 yrs old. I played soccer and every time I kicked the ball I

fell down. The said I had arthritis in my knees. That was about the

age my legs stopped getting bigger muscle wise. I ran cross country

track in middle school and could run the mile but I wasn't very fast.

In high school I was in band carried triples (drums) they were heavy

and sometimes my lower back would just about give out but I did ok. I

can never remember being able to squat down and stand up without

using my arms. When I was 19 I was in a car wreck and broke my right

femur tore up my right knee broke my back in (2) places and had some

internal injuries. I haven't run since because of my knee. When I

fall it hurts. I have always been skinny I am 6' and weigh 135#. I am

32 and I still walk fine I do fall a lot and my back, legs, stomach

and triceps are very weak. I do use a scooter if I go to a big place

like Disney but I will walk through the flea market. I do have a lot

of pain in my lower back from breaking it and in my upper and mid

back I have bad trigger points that cause a lot of pain. The doctor

says is because the muscle wasting is putting stress everywhere else.

I was miss diagnosed several times and found out with a DNA test 2

yrs ago. I hope this helps I have led a pretty normal life I am

married to a beautiful women and have 4 kids. I would be happy to

answer any questions you or your Son might have just ask.

Thanks

Terry

, but have a few questions if you don't mind. My son is 7.5 years

old type ? one doc says 3 another said 2. Anyway's he can still walk

some.

I was wondering what are your abilities now and when were you

diagnosed? If you don't mind your age now also. I am just wondering

for I guess that exta boost of hope I need right now.

> > >

>

>

>

[Guest guest]

,

 

I also had bad stomach cramps. Also tests, CT and ultra sound.  Eventually the

cramping went away.  The weight decided to stick around. I think what I eat

impacts the cramping. I've hung on through a lot of side effects but quality of

life is also important.  I think it is important to get the tests because

sometimes the problems aren't caused by gleevec.  Better to rule them out.

 

Chi

From: A <suzzienovember@...>

Subject: [ ] Stomach Cramping

Date: Friday, February 19, 2010, 4:38 PM

 

Hi: I have not been on due to not feeling good. Has anyone had bad stomach

cramping from their Gleevec. Its a constant problem for me.

I do have Diverticulosis, but I have had a few bad weeks with pain.

I even thought maybe Gallbladder.

I am so tired of running for every kind of test they can think of, and was just

hoping I would feel better.

I am sure others have felt like this too. I saw the weight gain issue being

brought up too. Yes, I have had that with the Gleevec.

Also emotional eating. Now sick and not eating, and still not losing weight.

I have to get back on here and follow topics more closely.

A.

[Guest guest]

I am on Sprycel and would notice if I do not drink enough water/fluids during

the day I have severe stomach cramping shortly after eating.

Anita

________________________________

From: A <suzzienovember@...>

Sent: Fri, February 19, 2010 6:38:34 PM

Subject: [ ] Stomach Cramping

Hi: I have not been on due to not feeling good. Has anyone had bad stomach

cramping from their Gleevec. Its a constant problem for me.

I do have Diverticulosis, but I have had a few bad weeks with pain.

I even thought maybe Gallbladder.

I am so tired of running for every kind of test they can think of, and was just

hoping I would feel better.

I am sure others have felt like this too. I saw the weight gain issue being

brought up too. Yes, I have had that with the Gleevec.

Also emotional eating. Now sick and not eating, and still not losing weight.

I have to get back on here and follow topics more closely.

A.

[Guest guest]

Hi A.

I had stomach cramps when I was on the gleevec/zarnestra combo. My dr put me on

Prevacid and an anti-depressant thinking that I could be suffering from

depression symptons. The combination of the two helped me. The ski-606 drug gave

me gallbladder troubles and eventually I had to have it (gallbladder) removed.

These drugs are very hard on our GI. So maybe you could try an acid reducer of

some kind for a couple weeks and see what happens. But be careful when you take

it. Some of those drugs interact with Gleevec.

I'm sending prayers your way in hope that you are feeling better.

God's Blessings,

Jackie S.

________________________________

From: A <suzzienovember@...>

Sent: Fri, February 19, 2010 6:38:34 PM

Subject: [ ] Stomach Cramping

Hi: I have not been on due to not feeling good. Has anyone had bad stomach

cramping from their Gleevec. Its a constant problem for me.

I do have Diverticulosis, but I have had a few bad weeks with pain.

I even thought maybe Gallbladder.

I am so tired of running for every kind of test they can think of, and was just

hoping I would feel better.

I am sure others have felt like this too. I saw the weight gain issue being

brought up too. Yes, I have had that with the Gleevec.

Also emotional eating. Now sick and not eating, and still not losing weight.

I have to get back on here and follow topics more closely.

A.

[Guest guest]

I was on protonix for acid while on gleevec. I had lots of gi problems on

gleevec I am now on sprycel with fewer gi problems. I occasionally have acid

reflux now, but I have also added a daily serving of Activia. I really believe

it helps.

Sent from my iPhone

On Feb 20, 2010, at 9:25 AM, jackie schneider <jschneider008@...> wrote:

Hi A.

I had stomach cramps when I was on the gleevec/zarnestra combo. My dr put me on

Prevacid and an anti-depressant thinking that I could be suffering from

depression symptons. The combination of the two helped me. The ski-606 drug gave

me gallbladder troubles and eventually I had to have it (gallbladder) removed.

These drugs are very hard on our GI. So maybe you could try an acid reducer of

some kind for a couple weeks and see what happens. But be careful when you take

it. Some of those drugs interact with Gleevec.

I'm sending prayers your way in hope that you are feeling better.

God's Blessings,

Jackie S.

________________________________

From: A <suzzienovember@...>

Sent: Fri, February 19, 2010 6:38:34 PM

Subject: [ ] Stomach Cramping

Hi: I have not been on due to not feeling good. Has anyone had bad stomach

cramping from their Gleevec. Its a constant problem for me.

I do have Diverticulosis, but I have had a few bad weeks with pain.

I even thought maybe Gallbladder.

I am so tired of running for every kind of test they can think of, and was just

hoping I would feel better.

I am sure others have felt like this too. I saw the weight gain issue being

brought up too. Yes, I have had that with the Gleevec.

Also emotional eating. Now sick and not eating, and still not losing weight.

I have to get back on here and follow topics more closely.

A.

[Guest guest]

Hello,

My Gi problems have improved since adding Probiotics twice a day..I take

Pearls.

Helping with my IBS w/constipation and Diverticulosis as well.

Good luck

SharonS

>

> I was on protonix for acid while on gleevec. I had lots of gi problems on

gleevec I am now on sprycel with fewer gi problems. I occasionally have acid

reflux now, but I have also added a daily serving of Activia. I really believe

it helps.

>

> Sent from my iPhone

>

[Guest guest]

Hi: I would like to Thank Everyone for their response, and if it continues then

I will go for further testing.

I know I have a Hiatal Hernia, Diverticulosis, IBS, so it could be a

multitude of things. I am already on Nexium for the GERD. This has just been

so frustrating because it has lingered for so long. I am sure if it were

serious I would have gotten worse by now.

I also just had a colonoscopy recently. Maybe I need a Endoscopy, but I know I

can always count on everyone to try to help with any type of issues. I never

blame everything on the Gleevec, but I do know its strong enough to give us many

different problems.

A.

>

> Hi: I have not been on due to not feeling good. Has anyone had bad stomach

cramping from their Gleevec. Its a constant problem for me.

> I do have Diverticulosis, but I have had a few bad weeks with pain.

> I even thought maybe Gallbladder.

> I am so tired of running for every kind of test they can think of, and was

just hoping I would feel better.

> I am sure others have felt like this too. I saw the weight gain issue being

brought up too. Yes, I have had that with the Gleevec.

> Also emotional eating. Now sick and not eating, and still not losing weight.

> I have to get back on here and follow topics more closely.

> A.

>