Re: Re: Hip Problems-Bobby

[Guest guest]

Ha Ha!, I have tried to add PCRU to the list, but unless I remember it every

time I send a post, and put it there, I can't add it.  I think my list is too

long?  Maybe I'll leave out something, like where I live.    I think a

therapist may be a good idea, also a nutritionist, I need to take off some

pounds. I started Vicaden today, I fell right asleep, woke up and still have the

pain, it's only 3 1/2 hours, I can;t take another until 6. The entire lower

quarter of my body hurts, which is all butt!! If my butt were smaller, would I

have less pain???/

a ( Bobby ) Doyle, dob 12/17/29

Brecksville, Ohio, USA

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra

Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.017

11/2009 PCR 0.034

#840 Zavie's Zero Club

02/2010 PCRU

From: hey00nanc <ncogan@...>

Subject: [ ] Re: Hip Problems-Bobby

Date: Wednesday, April 21, 2010, 1:44 PM

 

>

> I am taking the tramadol for a particular problem, not arthritis.  He said it

is the muscle behind the gluteous maxis ( do not know how to spell those words),

and I am in great pain because of it.  I take tylenol for arthritis for

arthritis, but not often as my dr. does not like it, he prefers Aleve, which

does not to too much for me.  Bobby

>

> a ( Bobby ) Doyle, dob 12/17/29

____________ _________ _________ _

Hi Bobby,

Aleve is a pain reliever and an anti-inflammatory, which is why it should be

good for joint type pain....but no anti-inflammatory works for everyone. This is

what Dr. Druker also recommends for TKI pain problems.

It would probably be helpful if you could learn some specific stretches to do

for your hip (and your low back, because any thightness there is probably

connected). This might prevent recurrent episodes. You could ask for a referral

to a physical therapist just to learn some stretches (they would pick the best

ones for you to do).

ALSO LADY.......I KEEP waiting to see your newest achievement in your

signature... ..PCRU!!! Each time I read a note from you, I want to see that

and smile and think that maybe by the time I have had cml for 15 years I will

get there also!

Best to you,

C.

[Guest guest]

Hi a

I ask the same thing.....actually about my whole body. I find alieve works the

best. On a bad day I seem to take up to 12 a day. My doctors know it and I have

done this for many years and all seems to be ok, but when I double up, it helps

me. But I must say, I am much large than most people.

Hope you feel better

Walt

________________________________

From: ROBERTA DOYLE <rcd1929@...>

Sent: Wed, April 21, 2010 3:45:09 PM

Subject: Re: [ ] Re: Hip Problems-Bobby

Ha Ha!, I have tried to add PCRU to the list, but unless I remember it every

time I send a post, and put it there, I can't add it. I think my list is too

long? Maybe I'll leave out something, like where I live. I think a therapist

may be a good idea, also a nutritionist, I need to take off some pounds. I

started Vicaden today, I fell right asleep, woke up and still have the pain,

it's only 3 1/2 hours, I can;t take another until 6. The entire lower quarter of

my body hurts, which is all butt!! If my butt were smaller, would I have less

pain???/

a ( Bobby ) Doyle, dob 12/17/29

Brecksville, Ohio, USA

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra

Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.017

11/2009 PCR 0.034

#840 Zavie's Zero Club

02/2010 PCRU

From: hey00nanc <ncoganuoregon (DOT) edu>

Subject: [ ] Re: Hip Problems-Bobby

groups (DOT) com

Date: Wednesday, April 21, 2010, 1:44 PM

>

> I am taking the tramadol for a particular problem, not arthritis. He said it

is the muscle behind the gluteous maxis ( do not know how to spell those words),

and I am in great pain because of it. I take tylenol for arthritis for

arthritis, but not often as my dr. does not like it, he prefers Aleve, which

does not to too much for me. Bobby

>

> a ( Bobby ) Doyle, dob 12/17/29

____________ _________ _________ _

Hi Bobby,

Aleve is a pain reliever and an anti-inflammatory, which is why it should be

good for joint type pain....but no anti-inflammatory works for everyone. This is

what Dr. Druker also recommends for TKI pain problems.

It would probably be helpful if you could learn some specific stretches to do

for your hip (and your low back, because any thightness there is probably

connected). This might prevent recurrent episodes. You could ask for a referral

to a physical therapist just to learn some stretches (they would pick the best

ones for you to do).

ALSO LADY.......I KEEP waiting to see your newest achievement in your

signature... ..PCRU!!! Each time I read a note from you, I want to see that

and smile and think that maybe by the time I have had cml for 15 years I will

get there also!

Best to you,

C.

[Guest guest]

Hi Bobby:  Yea I am still having pain also.  Had a bad night.  My other

problem is when I try to stand or walk my leg just gives out on me.  I need to

lose a lot of weight, and before I start thinking about any type of surgery etc.

I want to lose some weight to see if it helps at all.  Maybe warmer weather

will help all of us suffering with this Arthritic pain.

    I know some people will blame everything on their Gleevec or whatever

they are taking, but this is just arthritis setting into all the bones and

joints.  I was told years ago that I had started with Arthritis in my neck and

back.

From: hey00nanc <ncoganuoregon (DOT) edu>

Subject: [ ] Re: Hip Problems-Bobby

groups (DOT) com

Date: Wednesday, April 21, 2010, 1:44 PM

 

>

> I am taking the tramadol for a particular problem, not arthritis.  He said it

is the muscle behind the gluteous maxis ( do not know how to spell those words),

and I am in great pain because of it.  I take tylenol for arthritis for

arthritis, but not often as my dr. does not like it, he prefers Aleve, which

does not to too much for me.  Bobby

>

> a ( Bobby ) Doyle, dob 12/17/29

____________ _________ _________ _

Hi Bobby,

Aleve is a pain reliever and an anti-inflammatory, which is why it should be

good for joint type pain....but no anti-inflammatory works for everyone. This is

what Dr. Druker also recommends for TKI pain problems.

It would probably be helpful if you could learn some specific stretches to do

for your hip (and your low back, because any thightness there is probably

connected). This might prevent recurrent episodes. You could ask for a referral

to a physical therapist just to learn some stretches (they would pick the best

ones for you to do).

ALSO LADY.......I KEEP waiting to see your newest achievement in your

signature... ..PCRU!!! Each time I read a note from you, I want to see that and

smile and think that maybe by the time I have had cml for 15 years I will get

there also!

Best to you,

C.