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My dear friend (CML) - was diagnosed while pregnant (8 weeks) - she did not

terminate as was suggested,

however her CML condition was getting out of control very quickly.

She had the most courageous pregnancy - she put her life on the line for her

babys successful presence in our world

Pregnancy for those with CML are not for the faint hearted.

Her pregnancy was over whelmingly tricky

The outcome of success or not - was that she had a CML Specialist (who by the

way wanted her to terminate)

- a top notch bubby specialist - who cared shared with her CML specialist - and

a number of other specialists

who also cared for her and above all her extreme faith as she is a very

spiritual and religous young woman.

It was not easy at all.

She also had interferon - which is not a great drug even if not pregnant - for

its side effects - the side effects from pregnancy

on top of that - and an early delivery - and then the next day - on glivec.

Two years later her levels have not come down as low as one would hope - and as

quickly as others. Had second opinion

from one of the CML Foundation Specialists of the next step.

Having a baby was the trade-off for perhaps a different type of CML management -

time will tell - but not all pregnancy

and like every other pregnancy are individual

She had a little girl - who is pretty special - laughs and squeals alot - loves

playing rough with her brothers and is pretty competitive

- she is the youngest of 4 - so there has been no consequences for the little

gal from interferon - and a normal loving little person

The example - from this - is once the decision was made to continue with the

pregnancy - you need a top team - not the second best team

of medical doctors who will share care your management of both CML - its side

effects in early diagnosis - and that of pregnancy.

Her had first hand witness to this pregnancy and great that others have had

great pregnancy with CML but others had have a very difficult path

for the success of a baby.

Do not forget also - that many others - have been PCRU before they have become

pregnant which is a completely different scenerio than if you are not.

Keep Well just thought I would share anothers story of pregnancy with CML

Sue (Aussie)

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