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> What happens to iron levels during chelation? Is it taken out of the

system

> together with the other metals?

Iron is not chelated to a physiologically significant extent by DMSA

or ALA.

In a lot of people who were low to start with, iron levels go up to

more healthy values naturally as detox progresses.

>

> TIA,

>

> Katarina, Ore

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  • 1 year later...
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Sudden excessive intake of iron in children is a medical emergency and can

result in death hence the warning on children's vitamins with iron that they

be kept out of reach of children. Chronic storage of excess iron can result

in damage to the spleen, liver, lymph, pancreas or heart. This would be found

in a condition such as Thalassemia, and I think that you can sometimes have

excess stores in Sickle Cell. There is no relationship to autism. Kathy

-NNY

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  • 7 years later...

hi barb/phil, when i was in tennessee my onco there was always watching my

" iron storage " # suggesting i take iron. i was in ny before i went to tn and

when i was there an iron storage, (ferrous)level wasn't taken.why aren't these

drs on the same page? i quit taking iron several months ago because it was

making me upset.i take procrit about once every 5/6 weeks to keep my

hemo/hemacrit up because i don't want to take a transfusion. the dr in tn told

me procrit doesn't help iron storage.the explanation is too long to go in to but

she did explain it. confusing???????????? hugs jean

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Oops. That didn'r come out quite the way I intended.

Most people on Glivec will be fine. Most people who get anaemia with the Glivec

early on won't really be helped by taking extra iron as iron deficiency isn't

causing the anaemia - they'll generally have plenty in their system it's just

the general suppression of their counts causing the anaemia.

That still lives a goodly chunk of people (most of whom seem to be on here :@)

)who'se anaemia is something more than just that early general suppression or

who have iron uptake problems that are combining with the ongoing suppression or

any number of other reasons why their doctors would want to get more iron into

them and for these people iron supplements of varying kinds are quite rightly

prescribed.

As a general principal though unless a specific problem has been identified and

prescribed for, then the iron in a normal diet plus the iron in Glivec should be

plenty for most patients and there is no general recommendation to take further

iron as we are already taking one iron supplement.

> >

> > Hi Barbara,

> > Anyone on Gleevec is already getting plenty of Iron - that's what gives the

tablet the orange colour. We are advised not to take further iron supplements

on top of that as too much isn't good for you in many ways

> > Phil

> ******************************************

>

> Hi Phil,

>

> This actually isn't the case. I know of several CML specialists who prescribe

iron supplements for patients who are iron deficient.

>

> Dr. Talpaz and Dr. Lipton are just two who I know have prescribed it. A

ferritin test is needed in order to determine if a patient is iron deficient.

>

> I have taken iron supplements (in addition to Gleevec) for years and yet

continue to be severely iron deficient.

>

> You know the saying, everyone is different. I would definitely not recommend

iron for anyone who isn't shown to be deficient but for those who are, it can

actually save their lives.

>

> Tracey

>

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I'm a 65 y/o man. HGB/HMT counts too high for procrit... very low ferritin

even when my diet is rich in iron. So I take a daily pill and that seems to

take care of it. I feel much better on the iron than not. I also have

pernicious anemia, meaning my body will not process dietary vitamin B-12. I

have a B-12 injection every four weeks... from now until that day! I don't

know how much of these issues, if any, are related to Gleevec/CML or just

old age! LOL

Troxel

Dx 2/2003

Gleevec 3/2003 400mg

Gleevec 5/2009 800mg

Zavie's club member

On Fri, Jan 29, 2010 at 7:07 AM, <jmcallister411@...> wrote:

>

>

> hi barb/phil, when i was in tennessee my onco there was always watching my

> " iron storage " # suggesting i take iron. i was in ny before i went to tn and

> when i was there an iron storage, (ferrous)level wasn't taken.why aren't

> these drs on the same page? i quit taking iron several months ago because it

> was making me upset.i take procrit about once every 5/6 weeks to keep my

> hemo/hemacrit up because i don't want to take a transfusion. the dr in tn

> told me procrit doesn't help iron storage.the explanation is too long to go

> in to but she did explain it. confusing???????????? hugs jean

>

>

>

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  • 3 months later...
Guest guest

Beets are high in iron. Too much iron is bad too...I forget exactly but

something to do with infections. I was anemic for a long time. I started taking

liqiud hydroxy B12 by Interplexus, 2 forms of folic acid, sublingual methyl B12

& a B12 complex high in B12 ... & I'm not anemic anymore. I get them from

needs.com (NFI)

item #'s

INP 5001-0.6 liquid B12

MET 6484 060 Folapro by Metagenics (5 methyl folate)

KIR 5212 060 Kirkman (5 formyl tetra hydro folate [THF] )

JAR 5129 100 Jarrow methyl B12 lozenge

THO 515o 060 Thorne B Complex #12

About a year ago I had gentic testing done by Holistic Health Consultants - full

methyl panel I think it's called. It has to do with the methylation cycle of the

liver. It was worth every penny. The last tweak on my healthcare. The brains

behind the science is Dr Amy Yasko. She specializes in Autism but many of the

same genetic defects bring about a low immune system. I happen to have a rough

time converting folic acid into 5 methyl THF & am lacking in " methyl groups " .

Downstream I don't convert it into 5 formyl THF. Plus I use up B12 fast. That's

why the anemia. I also take tri methyl glycine (a methyl donor that gives me

energy) & phosphatidyl serine to feed another enzyme system to sort of bypass

the defects a bit & get the job done via another pathway.

I tried to figure out my defects w/o the testing based on symptoms. Some of the

same symptoms appear in different defects so it was difficult. I carefully

researched the suggested supplements - most of which would be no harm to take if

you didn't have defects. The big exceptions are if you need methyl donors or

have an overload of them, if folic acic/folate is toxic to you and if you should

avoid sulphur- which is good for the liver if you don't have a defect. Milk

Thistle is high in sulphur & is good for the liver unless you produce too much

on your own. I do, & the remedy for that ( & many forms of detoxing at that) is

molybdenum.

>

> Anyone have low iron levels and what do you take? My Iron level is low and

> started to take some OTC tablets that really made my stomach ache and felt

> awful. Pharmacist told me to try the slow release type but they made me

> feel the same way. I would appreciate any suggestions or advice.

> Thanks, Sue R.

>

>

>

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Guest guest

Thanks, my family Dr. gave me an Rx this AM which I hope will not make me

feel so sick.

Maybe try a high iron diet. Maybe your body would accept it better. Also

your doctor can give you Rx for iron. I don't know if it is better in any

way though.

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Guest guest

,

Just wanted to share this. Our doctor feels that the most therapeutic type of

B-12 are in the form of hydroxocobalamin. I see you mentioned methylization

which I'm only learning about. It is not widely made,

Sam

--- On Fri, 5/28/10, safersmilesdentallab <safersmilesdentallab@...>

wrote:

 

Beets are high in iron. Too much iron is bad too...I forget exactly but

something to do with infections. I was anemic for a long time. I started taking

liqiud hydroxy B12 by Interplexus, 2 forms of folic acid, sublingual methyl B12

& a B12 complex high in B12 ... & I'm not anemic anymore. I get them from

needs.com (NFI)

item #'s

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Guest guest

When I was exposed at my school, it took several months for me to become

anemic...after a while, I began craving either steak or hamburg, each morning

(yes, breakfast) with a green salad. It gave my morning a boost. I did not

know I was anemic at the time, but my body was telling me to eat red meat. It

helped. Hope you feel better.

>

>

> Thanks, my family Dr. gave me an Rx this AM which I hope will not make me

> feel so sick.

>

> Maybe try a high iron diet. Maybe your body would accept it better. Also

> your doctor can give you Rx for iron. I don't know if it is better in any

> way though.

>

>

>

>

>

>

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Guest guest

useing cast iron skillet to cook with is supposed to give you all the iron you

need.

>

>

> Thanks, my family Dr. gave me an Rx this AM which I hope will not make me

> feel so sick.

>

> Maybe try a high iron diet. Maybe your body would accept it better. Also

> your doctor can give you Rx for iron. I don't know if it is better in any

> way though.

>

>

>

>

>

>

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Guest guest

I heard this before. I had one years ago but got rid of it because it was

so heavy.

useing cast iron skillet to cook with is supposed to give you all the iron

you need.

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Guest guest

I've been out of my school for 6 yrs. and have felt fine. The low iron has

me stumped. I eat lots of veggies, red meat about one to three times a

week. Chicken and seafood. Hemoglobin, RBC and hematocrit are all normal. Began

the Iron Rx this afternoon but plan to go to the homopathic health store

next week to see what they suggest.

When I was exposed at my school, it took several months for me to become

anemic...after a while, I began craving either steak or hamburg, each

morning (yes, breakfast) with a green salad. It gave my morning a boost. I did

not know I was anemic at the time, but my body was telling me to eat red

meat. It helped. Hope you feel better

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