Re: Re: Have you heard of Boost Juice?

[Guest guest]

Did he have a modified barium swallow? Macey has had 2 ph probes with both

showing no acid reflux. But when she had the swallow study it showed that she

was refluxing all the way up into her sinuses. Her ENT and GI were always good

about working on meds to keep throat and sinus infections away. what she had

was bile reflux. It does not cause the carosiveness that acid does but does

cause damage in its own way. Plus the burning is there because it is bringing

up a fluid into an area that shouldn't have any.

Ursula - mom to (16) and Macey (13,CVID)

http://www.caringbridge.org/visit/maceyholleman

@...: stina5997@...: Mon, 8 Dec 2008

01:57:12 +0000Subject: Re: Have you heard of Boost Juice?

We have been in Food Therapy since March with no real success. The therapist is

puzzled because sometimes he will eat and other times he won't. When he eats it

consists of about 3 - 4 bites of something. I know what he likes, like french

fries and yogurt are 2 of his favorites and on bad days I try to offer that, but

he still refuses.He does have the laryngo and tracheomalacia pretty severly so

that could be one part but not the whole story according to the ENT. The other

part we haven't conquered yet....we are leaning towards that he has very bad

stomach pains when he has a bowel movement about 2 weeks of each month

unexplained/diagnosed, his is sick with a virus about every 2 weeks

unexplained/diagnosed, or there is another medical problem we haven't found yet.

We are trying everything to entice him and praise him, but he doesn't seem to

care much. The therapist is the one who told me to start adding a bit of

pediasure to his milk to add teh calories and extra nutrition. So I would put

about 2 - 3 ounces of pediasure in 5 oz of milk.We are also seeing a Gastro

since May who tells me it is acid reflux for the eating and his stomach

pains....but he has had a ph probe test that showed no acid reflux and the 2

meds he is on Prevacid and Axid have made no improvements or changes with him.

This doc will only see use every 4 - 6 months and gives me the same answer when

I call when is in extreme pain....must be something he ate or he needs

stool softner (which is not the case either! he has regular bowel movements even

when sick and he hardly eats) He did run a bunch of allergy tests and is

negative to all of that. So no food allergies to date. I guess that having to

thicken his liquids still is helping a bit....I use Simply Thick alot but also

try to use pudding, applesauce and rice cereal when he isn't watching me. He

doesn't like it when he knows I put that in...but he needs the calories and

nutrition. He recent aversion to milk during the day has been happening for the

last month....We are at least forcing him to drink a cup in the morning and one

in the evening (milk) and he is giving in for the time being. THanks for the

heads up on the water intoxification. I will bring that up on Tuesday with the

food therapist and make sure I am avoiding it at all costs.A>> > Do they know

why he is not wanting any food? Are there allergies involved? Could he have

sores in his mouth that make it painful to eat? Remember too much water can

dilute his blood and cause water intoxification. One of the worst things I've

ever seen is a toddler that had a stroke from it. I would ask the doctor to

delve into why he isn't wanting to eat. Unless there is a virus onboard or

something acute then you don't want this to become a situation. His relying on

supplements could start a bad food aversion that could take years to get away

from.> > Again I hope this is only a temporary situation but you might want to

try to work with his diet before starting supplements.> Ursula - mom to

(16) and Macey (13,CVID) http://www.caringbridge.org/visit/maceyholleman> > To:

@...: stina5997@...: Sun, 7 Dec 2008 21:51:20 +0000Subject: Have

you heard of Boost Juice?> > > > I was just wondering if anyone has heard of

Boost coming in a juice form? (2 years)does not eat much and lately has

shyed away from milk. He has been requesting water or apple juice. Our Dr said

to go to the store and pick up the Boost Juice Drink (she said it was the

equivalent of pediasure but in juice form). I have tried 2 stores/pharmacies and

no one has ever heard of it (walmart and riteaid). I am just wondering if this

is something I will need to order or possibly find a recipe and make myself. Or

even if the product exists....because when I look up BOOST or any other

supplemental drink product online I only see the milk based products.ThanksChris

A > > > > > > >

[Guest guest]

What is his weight doing? I know that many 2 and 3 year olds do not eat very

much . Many kids just get through these years. I know we stopped focusing on

eating and it made a huge difference. It can become a huge power struggle again

causing other issues. Milk is not essential in the diet. There are other forms

of protein including soy, almond milk and others. Also if he will try to eat

other kinds of foods like fresh fruits and veggies. I know it is hard but you

might even try making a themed meal with dippers. My kids loved dippers of any

kind. Making eating fun can go a very LONG way. The dipping increases calories.

Range dressing, BBQ sauce, Cheese sauces etc. Also using cookie cutters or

making shaped pancakes and waffles with protein powder that you dip in real

maple syrup and butter. Get him involved with cooking with you. My son was

making scrambled eggs at 2. My son had many gastric issues and we went the

furthest with starting probiotics to

regulate the gut flora so he has MUCH less cramping and discomfort. We have

never found a GI doctor to be very helpful because unless they can find a

specific medical issue they think there is nothing they can do. My son has lots

of allergies and has had Eosinophylic gastroenteritis as an infant and bloody

stools until he was about 4. We got better when we started IVIg and the eating

problems went away. I believe part of it was all the infections and feeling

rotten all the time. It is a hard time but my advice would be to add as much fun

and socialization around eating rather than insisting that he eat certain

things. I personally believe and experience is that things do improve with a

positive spin on eating.

BARBIE

________________________________

From: A <stina5997@...>

Sent: Sunday, December 7, 2008 7:57:12 PM

Subject: Re: Have you heard of Boost Juice?

We have been in Food Therapy since March with no real success. The

therapist is puzzled because sometimes he will eat and other times he

won't. When he eats it consists of about 3 - 4 bites of something. I

know what he likes, like french fries and yogurt are 2 of his

favorites and on bad days I try to offer that, but he still refuses.

He does have the laryngo and tracheomalacia pretty severly so that

could be one part but not the whole story according to the ENT. The

other part we haven't conquered yet....we are leaning towards that he

has very bad stomach pains when he has a bowel movement about 2 weeks

of each month unexplained/ diagnosed, his is sick with a virus about

every 2 weeks unexplained/ diagnosed, or there is another medical

problem we haven't found yet.

We are trying everything to entice him and praise him, but he doesn't

seem to care much. The therapist is the one who told me to start

adding a bit of pediasure to his milk to add teh calories and extra

nutrition. So I would put about 2 - 3 ounces of pediasure in 5 oz of

milk.

We are also seeing a Gastro since May who tells me it is acid reflux

for the eating and his stomach pains....but he has had a ph probe

test that showed no acid reflux and the 2 meds he is on Prevacid and

Axid have made no improvements or changes with him. This doc will

only see use every 4 - 6 months and gives me the same answer when I

call when is in extreme pain....must be something he ate or he

needs stool softner (which is not the case either! he has regular

bowel movements even when sick and he hardly eats) He did run a

bunch of allergy tests and is negative to all of that. So no

food allergies to date.

I guess that having to thicken his liquids still is helping a

bit....I use Simply Thick alot but also try to use pudding,

applesauce and rice cereal when he isn't watching me. He doesn't

like it when he knows I put that in...but he needs the calories and

nutrition. He recent aversion to milk during the day has been

happening for the last month....We are at least forcing him to drink

a cup in the morning and one in the evening (milk) and he is giving

in for the time being.

THanks for the heads up on the water intoxification. I will bring

that up on Tuesday with the food therapist and make sure I am

avoiding it at all costs.

A

>

>

> Do they know why he is not wanting any food? Are there allergies

involved? Could he have sores in his mouth that make it painful to

eat? Remember too much water can dilute his blood and cause water

intoxification. One of the worst things I've ever seen is a toddler

that had a stroke from it. I would ask the doctor to delve into why

he isn't wanting to eat. Unless there is a virus onboard or

something acute then you don't want this to become a situation. His

relying on supplements could start a bad food aversion that could

take years to get away from.

>

> Again I hope this is only a temporary situation but you might want

to try to work with his diet before starting supplements.

> Ursula - mom to (16) and Macey (13,CVID)

http://www.caringbr idge.org/ visit/maceyholle man

>

> @...: stina5997@.. .: Sun, 7 Dec 2008 21:51:20

+0000Subject: Have you heard of Boost Juice?

>

>

>

> I was just wondering if anyone has heard of Boost coming in a juice

form? (2 years)does not eat much and lately has shyed away from

milk. He has been requesting water or apple juice. Our Dr said to go

to the store and pick up the Boost Juice Drink (she said it was the

equivalent of pediasure but in juice form). I have tried 2

stores/pharmacies and no one has ever heard of it (walmart and

riteaid). I am just wondering if this is something I will need to

order or possibly find a recipe and make myself. Or even if the

product exists....because when I look up BOOST or any other

supplemental drink product online I only see the milk based

products.ThanksChri s A

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