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I have not been able to get onto for quite sometime. Lottie has been in my

thoughts and prayers. Sending good wishes to both Lottie and Jimmy!!!

Much love to all,

Genie

>

> From: Sue <hollieiinet (DOT) <mailto:hollie% 40iinet.net. au> net.au>

> Subject: [ ] Re: Lottie

> groups (DOT) <mailto:% 40groups. com> com

> Date: Tuesday, April 27, 2010, 3:28 AM

>

> Thanks Bobbie for info on Lottie

>

> How much can one person take - back problems are the pits

>

> Give her and JImmy my love

>

> Sue (Aussie)

>

> __________ Information from ESET NOD32 Antivirus, version of virus signature

> database 5063 (20100426) __________

>

> The message was checked by ESET NOD32 Antivirus.

>

> http://www.eset. com

>

>

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marketing@...

I went to the website for Terrebonne General Medical Center in Houma, LA:

http://www.tgmc.com/ and found this at the bottom of the page.

I got a nice note back saying they'd print out my message and take it to

Lottie.

On Tue, Apr 27, 2010 at 9:32 AM, Gay Bratton <ghbratton@...> wrote:

>

>

> I must be on the wrong page...cannot find an email address

> anywhere... What link did you use for the homepage?

>

> Thanks,

>

> Gay

> On Apr 27, 2010, at 10:26 AM, Rosen Lum wrote:

>

> > I sent an email message to the address at the bottom of the Terre

> > Bonne

> > hospital page. It worked! I believe that is the marketing department

> > but

> > they said they would print it out and run it over to her.

> >

> > On Tue, Apr 27, 2010 at 12:28 AM, Sue

<hollie@...<hollie%40iinet.net.au>>

> wrote:

> >

> >>

> >>

> >> Thanks Bobbie for info on Lottie

> >>

> >> How much can one person take - back problems are the pits

> >>

> >> Give her and JImmy my love

> >>

> >> Sue (Aussie)

> >>

> >> __________ Information from ESET NOD32 Antivirus, version of virus

> >> signature database 5063 (20100426) __________

> >>

> >> The message was checked by ESET NOD32 Antivirus.

> >>

> >> http://www.eset.com

> >>

> >>

> >>

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Any news from Lottie?

T

Sent from my Verizon Wireless BlackBerry

[ ] Re: Lottie

> groups (DOT) <mailto:% 40groups. com> com

> Date: Tuesday, April 27, 2010, 3:28 AM

>

> Thanks Bobbie for info on Lottie

>

> How much can one person take - back problems are the pits

>

> Give her and JImmy my love

>

> Sue (Aussie)

>

>__________ Information from ESET NOD32 Antivirus, version of virus signature

> database 5063 (20100426)__________

>

> The message was checked by ESET NOD32 Antivirus.

>

> http://www.eset. com

>

>

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  • 3 weeks later...
Guest guest

Hi All--

I got an email from Lottie and she is feeling just awful--she says it as

follows--I asked her how she is doing--I hope she doesn't mind that I posted it

here--but I know we are all concerned about her well-being. Keep her in your

prayers and send lots of love her way. She's hurting, for sure. TIA stands for

transient ischemic attack (which is sort of like a mini-stroke or reduction of

blood flow to the brain temporarily due to spasming of the blood vessels leading

to the brain).

Vicki

--------------------------------------------------------------------------------

Not well, my dear Vicki, I can only stay up long enough to go to the bathroom.

Home health care comes to bathe me until I can get around better. I had another

T.I.A. and congestive heart failure, along with renal failure just for starts.

I have a lot of thinking to do, my local internist said I have too much toxicity

to stay on SKI and should get out of it while I have the chance. He wants me to

go to the new oncologist I got a couple of months ago, but then I will have to

go where he practices, he doesn't have privileges here. The hospitals are so

damned envious of eath other and I have to think of where this is all going to

place me. If I stop going to MDACC, I have to get out of the trials, so there

will be the high costs of Tasigna to consider. I didn't get to see my doctor,

he was out of the country and things didn't go well, I just let them know I was

not happy with the statis quo. With my platelets at 25, I should not have to

wait another 2 weeks to go back to MDACC. I have been off SKI for over 3 weeks

and they lied to me and said they talked to MDACC every day. My nurse there

said that was a lie and I caught him in a few because he couldn't tell me the

name of anyone he spoke to. I can't stay up later, so will be in touch. Thanks

for the card and all the warm prayers.

xoxoxox

Lottie

> > > >

> > > > Hi everyone, it sure is dull around here without Lottie. I will call

> > > > tomorrow and see how she is, has anyone heard from her? Bobby

> > > >

> > > > --

> > > > a Doyle/dob 1929

> > > > DX /CML/1995/Interferon/hydrea

> > > > 2/00 - Gleevec Trial, OHSU, Dr. Druker

> > > > 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

> > > > 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

> > > > 7/04 - Sprycel Trial, MDACC, Dr. Talpaz

> > > > 3/05 - CCR

> > > > 12/07 - Ended trial due to Pleural Effusion

> > > > 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

> > > > 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

> > > > #840 Zavie's Zero Club #840

> > > >

> > > >

> > > >

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Vicki,

Thanks for posting Lottie's email. We are all worried about her. I

will certainly pray for her.

Gay

On May 23, 2010, at 11:27 PM, Vicki wrote:

>

> Hi All--

> I got an email from Lottie and she is feeling just awful--she says

> it as follows--I asked her how she is doing--I hope she doesn't mind

> that I posted it here--but I know we are all concerned about her

> well-being. Keep her in your prayers and send lots of love her way.

> She's hurting, for sure. TIA stands for transient ischemic attack

> (which is sort of like a mini-stroke or reduction of blood flow to

> the brain temporarily due to spasming of the blood vessels leading

> to the brain).

>

> Vicki

>

> ----------------------------------------------------------

>

> Not well, my dear Vicki, I can only stay up long enough to go to the

> bathroom. Home health care comes to bathe me until I can get around

> better. I had another T.I.A. and congestive heart failure, along

> with renal failure just for starts. I have a lot of thinking to do,

> my local internist said I have too much toxicity to stay on SKI and

> should get out of it while I have the chance. He wants me to go to

> the new oncologist I got a couple of months ago, but then I will

> have to go where he practices, he doesn't have privileges here. The

> hospitals are so damned envious of eath other and I have to think of

> where this is all going to place me. If I stop going to MDACC, I

> have to get out of the trials, so there will be the high costs of

> Tasigna to consider. I didn't get to see my doctor, he was out of

> the country and things didn't go well, I just let them know I was

> not happy with the statis quo. With my platelets at 25, I should not

> have to wait another 2 weeks to go back to MDACC. I have been off

> SKI for over 3 weeks and they lied to me and said they talked to

> MDACC every day. My nurse there said that was a lie and I caught him

> in a few because he couldn't tell me the name of anyone he spoke to.

> I can't stay up later, so will be in touch. Thanks for the card and

> all the warm prayers.

> xoxoxox

> Lottie

>

>

> > > > >

> > > > > Hi everyone, it sure is dull around here without Lottie. I

> will call

> > > > > tomorrow and see how she is, has anyone heard from her? Bobby

> > > > >

> > > > > --

> > > > > a Doyle/dob 1929

> > > > > DX /CML/1995/Interferon/hydrea

> > > > > 2/00 - Gleevec Trial, OHSU, Dr. Druker

> > > > > 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

> > > > > 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

> > > > > 7/04 - Sprycel Trial, MDACC, Dr. Talpaz

> > > > > 3/05 - CCR

> > > > > 12/07 - Ended trial due to Pleural Effusion

> > > > > 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

> > > > > 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

> > > > > #840 Zavie's Zero Club #840

> > > > >

> > > > >

> > > > >

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Oh yikes--this is scary. I will double my prayers and good wishes.

Beth

[ ] Re: LOTTIE

 

Hi All--

I got an email from Lottie and she is feeling just awful--she says it as

follows--I asked her how she is doing--I hope she doesn't mind that I posted it

here--but I know we are all concerned about her well-being. Keep her in your

prayers and send lots of love her way. She's hurting, for sure. TIA stands for

transient ischemic attack (which is sort of like a mini-stroke or reduction of

blood flow to the brain temporarily due to spasming of the blood vessels leading

to the brain).

Vicki

----------------------------------------------------------

Not well, my dear Vicki, I can only stay up long enough to go to the bathroom.

Home health care comes to bathe me until I can get around better. I had another

T.I.A. and congestive heart failure, along with renal failure just for starts. I

have a lot of thinking to do, my local internist said I have too much toxicity

to stay on SKI and should get out of it while I have the chance. He wants me to

go to the new oncologist I got a couple of months ago, but then I will have to

go where he practices, he doesn't have privileges here. The hospitals are so

damned envious of eath other and I have to think of where this is all going to

place me. If I stop going to MDACC, I have to get out of the trials, so there

will be the high costs of Tasigna to consider. I didn't get to see my doctor, he

was out of the country and things didn't go well, I just let them know I was not

happy with the statis quo. With my platelets at 25, I should not have to wait

another 2 weeks to go back to MDACC. I have been off SKI for over 3 weeks and

they lied to me and said they talked to MDACC every day. My nurse there said

that was a lie and I caught him in a few because he couldn't tell me the name of

anyone he spoke to. I can't stay up later, so will be in touch. Thanks for the

card and all the warm prayers.

xoxoxox

Lottie

> > > >

> > > > Hi everyone, it sure is dull around here without Lottie. I will call

> > > > tomorrow and see how she is, has anyone heard from her? Bobby

> > > >

> > > > --

> > > > a Doyle/dob 1929

> > > > DX /CML/1995/Interferon/hydrea

> > > > 2/00 - Gleevec Trial, OHSU, Dr. Druker

> > > > 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

> > > > 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

> > > > 7/04 - Sprycel Trial, MDACC, Dr. Talpaz

> > > > 3/05 - CCR

> > > > 12/07 - Ended trial due to Pleural Effusion

> > > > 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

> > > > 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

> > > > #840 Zavie's Zero Club #840

> > > >

> > > >

> > > >

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  • 4 weeks later...
Guest guest

Hey! Lottie!  how are you, life is dull and boring without your posts!  Hurry

and get well enough to say " HI " , everyone misses you.....Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

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Hi a:  Is Lottie still in the hospital, or is she back home?  I just

told my husband over dinner tonight that I had to check on her.  I have had so

much going on with other matters, and have not been on much.

A

From: ROBERTA DOYLE <rcd1929@...>

Subject: [ ] Lottie

" " < >

Date: Wednesday, June 16, 2010, 10:50 AM

 

Hey! Lottie!  how are you, life is dull and boring without your posts!  Hurry

and get well enough to say " HI " , everyone misses you.....Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

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Have you heard from Lottie,I pray for her to feel better soon. I missed her

post.

T

Sent from my Verizon Wireless BlackBerry

[ ] Lottie

" " < <mailto:%40> >

Date: Wednesday, June 16, 2010, 10:50 AM

Hey! Lottie! how are you, life is dull and boring without your posts!

Hurry and get well enough to say " HI " , everyone misses you.....Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

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