Were back to SCIG! Yippee!!!!

[Guest guest]

We got back from UCLA today and the nurse managed to blow the vein right off

the bat and kept trying to salvage it even though I told her its blown, it

was bubbled up, but she just had to try like 3 more times before giving up

then she wanted to do the other hand which was not exactly open to as

she's right handed. I insisted we try SCIG, they checked her and discovered

she has fat again! She sure didn't 2 weeks ago when we where there, my mom

had her all last week while I doing dealing with the surgery with the baby

and she said she ate like a pig and she ended up gaining exactly 1 lb:) Must

have all been in her stomach:) Then we had the fun of they only had the

needles on hand which don't work so well for rail thin kids but hey

mommy saved the day! I had our infusion bag in the car so we just used our

softsets and everything went off without a hitch, well minus the nurse

trying to figure out how to use the dang pump the pharmacy sent up. The Dr

hopes she will have gained a few more pounds before her next growth spurt.

I'm not holding my breath but for now it appears our access to IG is no

longer threatened since were back on home therapy which is really good since

I applied for an apt yesterday. I'm hoping we get it, its cheap and has

something we have never had, a yard!

[Guest guest]

Thinking of you !!!!! hope the apt comes through for you. Keep feeding

that girl!!!

 BARBIE 

Were back to SCIG! Yippee!!!!

We got back from UCLA today and the nurse managed to blow the vein right off

the bat and kept trying to salvage it even though I told her its blown, it

was bubbled up, but she just had to try like 3 more times before giving up

then she wanted to do the other hand which was not exactly open to as

she's right handed. I insisted we try SCIG, they checked her and discovered

she has fat again! She sure didn't 2 weeks ago when we where there, my mom

had her all last week while I doing dealing with the surgery with the baby

and she said she ate like a pig and she ended up gaining exactly 1 lb:) Must

have all been in her stomach:) Then we had the fun of they only had the

needles on hand which don't work so well for rail thin kids but hey

mommy saved the day! I had our infusion bag in the car so we just used our

softsets and everything went off without a hitch, well minus the nurse

trying to figure out how to use the dang pump the pharmacy sent up. The Dr

hopes she will have gained a few more pounds before her next growth spurt.

I'm not holding my breath but for now it appears our access to IG is no

longer threatened since were back on home therapy which is really good since

I applied for an apt yesterday. I'm hoping we get it, its cheap and has

something we have never had, a yard!

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[Guest guest]

Good for you !! Glad you finally caught a break!

, mom to Mark, 6, CVID

>

> We got back from UCLA today and the nurse managed to blow the vein

right off

> the bat and kept trying to salvage it even though I told her its

blown, it

> was bubbled up, but she just had to try like 3 more times before

giving up

> then she wanted to do the other hand which was not exactly

open to as

> she's right handed. I insisted we try SCIG, they checked her and

discovered

> she has fat again! She sure didn't 2 weeks ago when we where there,

my mom

> had her all last week while I doing dealing with the surgery with

the baby

> and she said she ate like a pig and she ended up gaining exactly 1

lb:) Must

> have all been in her stomach:) Then we had the fun of they only had

the

> needles on hand which don't work so well for rail thin kids

but hey

> mommy saved the day! I had our infusion bag in the car so we just

used our

> softsets and everything went off without a hitch, well minus the

nurse

> trying to figure out how to use the dang pump the pharmacy sent up.

The Dr

> hopes she will have gained a few more pounds before her next growth

spurt.

> I'm not holding my breath but for now it appears our access to IG

is no

> longer threatened since were back on home therapy which is really

good since

> I applied for an apt yesterday. I'm hoping we get it, its cheap and

has

> something we have never had, a yard!

>

>

>