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Anyone heard of or have info on IPEX?

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My son was just seen at CHOP and they are suspecting IPEX. In the meantime, we

are waiting

to hear from Immunology to bring us in for testing. In reading the info, I am

terrified. They

think my 3yr old is mild but I am 7mo pregnant. I am hoping they will be

sensitive and get

us in as soon as possible, as there is in utero testing for it. Any info or

hearing from other

parents would help me right now! Kim

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