labs

May 30, 2001

Is it possible to have a herx if you aren't on any meds? I just started my Minocycline today but have felt like #%@* & #* ever since that rotation diet and adding all the supplements. A lot weaker for sure and the weight loss is concerning.

I hope the Minocycline is enough to knock some of this horrible stuff out!

Bev

May 30, 2001

YES YOUR LABS CAN BE JUST FINE AND YOU CAN FEEL LIKE CRAP!!!!

That's me right now! Well, at least they say all of my labs are fine

though some of them show differences to my regular results when I feel

well, but they don't pay much attention to that as long as the numbers

are somewhere in the normal range. So they just tell me all my labs

look fine, and look at me crosseyed when my complaints don't magically

go away just because my labs are fine.I know it is very frustrating,

and sometimes I feel crazy but we just have to hang in there. I know

that all of the people on this group have definately helped me keep my

sanity because I am having a herx from hell, but the Dr's won't

acknowledge that...they just say hmmm...we don't know...your labs look

fine (and hey...they even did that to me when I would have a flare

sometimes just because my symptoms (ie swelling) weren't visible during

the office visit) Anyway.... So I have had to figure out most of this

on my own. But I really believe AP will work, and I just try to keep in

mind that it is a slow road and I have to take charge of my health and

not allow the Dr's to try and tell me how I should feel. I know how I

feel, and I tell you if they felt like this for a half a day they would

probably be doing more or at least be nicer. But anyway...I'm rambling

now. Thanks for listening to my gripe session, and hang in there! I'm

rooting for you and I know we have had a lot of similar symptoms so

stay in touch! Take care sweetie! Youre a survivor!!

>

> Just got a call from my doctor that up to now, my labs are fine. He hasn't

> got the 's test back yet though. Could your labs be fine and you

> still feel like crap. And could your illness be marching on despite good

> labs??

> Also, my gp read over Dr. Armstrong's notes she sent him on IV's and he is

> going to get advice from Dr. Pope in London, my RD. I'm not holding out too

> much hope as she doesn't even like Minocycline.

> I guess I'll have to go to Ottawa after all. Poopey!!!

> Haven't got a lot of energy. Started my Minocycline 50 mg every day

> according to my gp and started an anti inflammatory last night.

> Wish me luck, guys!!

>

> Bev

June 1, 2001

Bev, my guess is that it is a flare, not a herx. I would think your disease is progressing - especially with the symptom of the weight loss. One of the concerns in the beginning of my problem when I was having the stomach distress was that my body was not processing my foods properly. I was told to do: l-glutamine for the stomach lining, liquid predigested collagen PROTEIN - this brand is Solgar - containing supplemental protein with essential amino acids. I was already doing super enzymes and continued to do so but adding this to my aloevera juice intake daily, becoming more disciplined in doing my juice/lemon kidney/liver drink every morning and doubling my intake of acidolphalis (I know I misspelled that one) brought me out of this. Everything returned to normal. Oh, yes, I also followed instructions and take !

the l-glutathione (two pills broken and the powder distributed under the tongue to dissolve - to protect the liver. I also take adrenal gland support in the way of supplements.

When everything came to a crisis here with Sommer's depression, I neglected me and were I to have had tests run again, I am not sure it would have shown my disease to be at a complete halt at that time like before. However, that said, the greatest gift is that I have been taught now how to take care of myself and I realized that not sleeping, not taking my supplements and becoming really sloppy on the diet was turning the clock back. Knowing how I have turned around again, I would definitely suggest you try all of this.

Of course, having said that, I am praying that you will get the clindy iv's also. And Bev, don't forget all that water to drink and make absolutely sure you are taking a BUNCH of the supplements to prevent the yeast from getting worse. I have a feeling you are still floating in it. I say that from all I read from the other group battling SD who are just eaten up with yeast and they are not doing the AP.

Are you having a lot of gas, indigestion or diarrhea? Love,

Is it possible to have a herx if you aren't on any meds? I just started my Minocycline today but have felt like #%@* & #* ever since that rotation diet and adding all the supplements. A lot weaker for sure and the weight loss is concerning. I hope the Minocycline is enough to knock some of this horrible stuff out! Bev

April 9, 2003

C3 and C4 are called Complements, which are proteins that are used by the

immune system. During inflammation C3 & C4 are usually decreased since the

immune system uses them up. An increase can occur in cancer and ulcerative

colitis.

CRP is another way to measure inflammation, but is more accurate than the

sed rate. It is manufactured by the liver and is released during episodes of

inflammation.

http://uwcme.org/courses/rheumatology/rheumlab/crp.html

http://www.nlm.nih.gov/medlineplus/ency/article/003456.htm

a

> Hi...I got this in the mail just now:

>

> C3 - 192 (96-185)

> C4 - 72 (18-53)

> C Reactive Protein - 3.3 (0.0-1.8)

> Sed Rate - 91 (0 - 20)

>

> I'm not as familiar with the first three values as I am the sed rate.

>

> Love...

>

> Tess

>

June 9, 2005

You can do this and it is a low cut back I post to your post on how to use a

half a tube.

Phil

Greg Kevorkian <grekkevork@...> wrote:

Just got my labs back. On 2 Tubes of Testim

Total T 830 241-827

Free 274 34-194

T Bio 549 84-502

I want to cut down to 1 1/2 instead of 2.

Thoughts

Greg

---------------------------------

June 12, 2005

On Thu, 09 Jun 2005 01:43:50 -0000, you wrote:

>Just got my labs back. On 2 Tubes of Testim

>

>Total T 830 241-827

>Free 274 34-194

>T Bio 549 84-502

>

>I want to cut down to 1 1/2 instead of 2.

>

>Thoughts

>

>Greg

>

Good idea. I shoot for about 700 to 750. But having had levels as high

as these make sure you are getting E2 tested also.

- - - -

Just another albino black sheep

July 13, 2005

On Wed, 13 Jul 2005 12:24:54 -0000, you wrote:

>Test was done before gel in the am.

>

>Do you think based on a Total T of 398

If that's your lowest value after 24 hours you may not be that bad

off. It may be as high as 750 or so in the AM and be tapering.

I'd be interested in knowing what your level is 2 hours after the gel

for comparison.

>Free T of 114 on 1 Testim, that the doc will raise me to 1 1/2?

>

>I was on 2 Testim and that was over the top on all the levels and E2

>was 49 top range 50.

>

>waiting for the latest E2 lab.

>

>Thanks

- - - -

Just another albino black sheep

July 13, 2005

>

> >

He wants me to do 1 1/4 Testim. That's pretty difficult. Can I do 1

tube one day and 1 1/2 the next?

Greg

Test was done before gel in the am.

> >

> >Do you think based on a Total T of 398

>

> If that's your lowest value after 24 hours you may not be that bad

> off. It may be as high as 750 or so in the AM and be tapering.

>

> I'd be interested in knowing what your level is 2 hours after the

gel

> for comparison.

>

> >Free T of 114 on 1 Testim, that the doc will raise me to 1 1/2?

> >

> >I was on 2 Testim and that was over the top on all the levels and

E2

> >was 49 top range 50.

> >

> >waiting for the latest E2 lab.

> >

> >Thanks

>

> - - - -

> Just another albino black sheep

July 13, 2005

Yes.

Phil

Greg Kevorkian <grekkevork@...> wrote:

>

> >

He wants me to do 1 1/4 Testim. That's pretty difficult. Can I do 1

tube one day and 1 1/2 the next?

Greg

Test was done before gel in the am.

> >

> >Do you think based on a Total T of 398

>

> If that's your lowest value after 24 hours you may not be that bad

> off. It may be as high as 750 or so in the AM and be tapering.

>

> I'd be interested in knowing what your level is 2 hours after the

gel

> for comparison.

>

> >Free T of 114 on 1 Testim, that the doc will raise me to 1 1/2?

> >

> >I was on 2 Testim and that was over the top on all the levels and

E2

> >was 49 top range 50.

> >

> >waiting for the latest E2 lab.

> >

> >Thanks

>

> - - - -

> Just another albino black sheep

July 13, 2005

On Wed, 13 Jul 2005 20:27:06 -0000, you wrote:

>

>>

>> >

>

>He wants me to do 1 1/4 Testim. That's pretty difficult. Can I do 1

>tube one day and 1 1/2 the next?

I'm doing one packet one day and two the next to average 1 1/2 on

Androgel.

- - - -

Just another albino black sheep

August 11, 2005

On Thu, 11 Aug 2005 17:32:43 -0000, you wrote:

>Tot T 522 Range 241 - 827

>Free T 159 34 - 194

>E2 47 10-50

>

>Where should I get my E 2 down to

25 to 35 is what I shoot for.

- - - -

Just another albino black sheep

April 10, 2006

Hi ,

That's wonderful news Thankyou for letting us all know

Chris.

On 10/04/2006, at 11:20 AM, julie wrote:

> I don't generally post since I've been doing well and didn't have

> anything to say, but I just got my last labs back and after testing

> positive for RA since 1998, I now test negative. I was lucky and was

> diagnoses early and got on AP right off and I have little damage. I've

> been pretty much symptom free for a couple of years, my RA factor has

> ranged from 1:8 to 1:16. I had been taking minocin MWF twice aday, my

> dr wanted to be more proactive so I started taking Clindamycin 1200mg

> Tuesday and Thursdays. That was 6 months ago and my factor dropped

> from

> 1:8 to negative. I am staying on my current meds to find out if it

> stays negative and then I'll have to decide what to do. It's hard to

> believe that it could be gone.

>

April 11, 2006

Begin forwarded message:

> From: Marie Mayberry <msmabrry@...>

> Date: 11 April 2006 5:09:54 AM

> Adlard <cadlard@...>

> Subject: Re: rheumatic labs

>

> This is such wonderful news. May I ask, Is your Dr. a Rhuemtologist.

> Marie

> On 10/04/2006, at 11:20 AM, julie wrote:

>

> > I don't generally post since I've been doing well and didn't have

> > anything to say, but I just got my last labs back and after testing

> > positive for RA since 1998, I now test negative. I was lucky and was

> > diagnoses early and got on AP right off and I have little damage.

> I've

> > been pretty much symptom free for a couple of years, my RA factor has

> > ranged from 1:8 to 1:16. I had been taking minocin MWF twice aday,

> my

> > dr wanted to be more proactive so I started taking Clindamycin 1200mg

> > Tuesday and Thursdays. That was 6 months ago and my factor dropped

> > from

> > 1:8 to negative. I am staying on my current meds to find out if it

> > stays negative and then I'll have to decide what to do. It's hard to

> > believe that it could be gone.

> >

April 11, 2006

......So glad things have gone well for you. A suggestion as to what

to do now. Perhaps consider staying on a mon-wed-Friday 100 mg minocin

schedule for maintenance. It has been my experience that the bacteria will

hide

and go dormant while waiting for an opportune time to reappear. I stay on the

three day schedule and it seems to keep things in remission. My daughter,

who hates to stay on meds, opted to go off entirely when she reached remission.

It lasted a few months and then all the aches and pains started to

reappear. She is now back on the twice a tablet, everyday schedule. I told

her the

remission might have lasted longer if she had stayed on the maintanance

dose. Its just a thought. Martha

August 10, 2006

Which enzyme is elevated? By how much?

What is your TRT treatment?

Tennis elbow resolved?

Is your activity level pretty high?

Brad

>

> My primary care doctor has found the optimal TRT treatment program

> for me, and my last labs showed a testosterone level of 730, which is

> a good level for me. The problem is that I also showed elevated liver

> enzymes about six weeks ago, and my doctor became concerned. I had

> never had this problem before. I was also taking Lodine (anti-

> inflamatory meds) for some tennis elbow. I had a liver scan and hep

> tests and both were negative.

> I have taken some natural herbs to clense my liver, and I stopped the

> Lodine. My latest labs showed that the enzymes were much improved,

> but one was still a little elevated. My doctor is still concerned and

> will not drop this liver issue. He has mentioned that we may have to

> discuss my TRT treatment further because of the elevated enzymes. I

> have been on TRT for some time now, and have had no other problems. I

> disagree with the doctor that testosterone may be what is causing the

> enzyme elevation.I believe it was caused by the other medication. I

> need this treatment because without it, I feel terrible. I also know

> that stopping treatment will send my entire system into chaos. I am

> afraid he will try to stop my treatment and I will have to find

> another doctor.

> Has anyone on here had this problem with their doctor? Has anyone had

> any liver problems?

> Please help!! Does anyone know of a knowledgeable, AFFORDABLE doctor

> I can contact to continue my treatment if necessary?

>

> Thanks

> I

>

August 10, 2006

Here is a link to some info I found read page 9.

http://www.wyeth.com/content/ShowLabeling.asp?id=115

Phil

intel_ice <intel_ice@...> wrote:

My primary care doctor has found the optimal TRT treatment program

for me, and my last labs showed a testosterone level of 730, which is

a good level for me. The problem is that I also showed elevated liver

enzymes about six weeks ago, and my doctor became concerned. I had

never had this problem before. I was also taking Lodine (anti-

inflamatory meds) for some tennis elbow. I had a liver scan and hep

tests and both were negative.

I have taken some natural herbs to clense my liver, and I stopped the

Lodine. My latest labs showed that the enzymes were much improved,

but one was still a little elevated. My doctor is still concerned and

will not drop this liver issue. He has mentioned that we may have to

discuss my TRT treatment further because of the elevated enzymes. I

have been on TRT for some time now, and have had no other problems. I

disagree with the doctor that testosterone may be what is causing the

enzyme elevation.I believe it was caused by the other medication. I

need this treatment because without it, I feel terrible. I also know

that stopping treatment will send my entire system into chaos. I am

afraid he will try to stop my treatment and I will have to find

another doctor.

Has anyone on here had this problem with their doctor? Has anyone had

any liver problems?

Please help!! Does anyone know of a knowledgeable, AFFORDABLE doctor

I can contact to continue my treatment if necessary?

Thanks

I

August 10, 2006

Phil,

Thanks a million for this article. I will show it to my doctor. Hopefully,

this will dispel any problem he has with continuing my therapy. I feel really

good now with the therapy I am on and do not want to go back to feeling like I

was before TRT. Also, I see Dr. mentioned quite a bit. Does he accept out

of state patients? I may consider contacting him if my PC does not feel

comfortable with continuing my therapy.

Thanks,

I

philip georgian <pmgamer18@...> wrote: Here is a link to some

info I found read page 9.