Off study - leaving Gleevec - starting Tasigna

[Guest guest]

Hi all. I know I don't post often, but I read. I was on a study with

interferon and Gleevec, but my body apparently cannot handle the interferon.

Too much bone pain. So, doc is switching me to Tasigna starting next week. I

excitedly asked if I was going to get a 2 week vacation like Donna. he

laughed and said you don't need to. I said bummer. He says, okay, how about

compromising one week vacation. I'll take it!! We went over all the

differences between the meds, and he's thinking after some big meeting next

week Gleevec will no longer be the first line med.

I've read pretty good things about the other 2 meds. One question, how is

" thinking " on Tasigna? Better than Gleevec?

Thanks,

Tammy

PS. Lottie. prayers are being said for ya lady!

[Guest guest]

My doc said the same thing about Gleevec ... it's about to lose its position

in line!

p.s. I like Tasigna.

On Mon, May 24, 2010 at 5:40 PM, Tammy Ferns <tammy@...>wrote:

>

>

> Hi all. I know I don't post often, but I read. I was on a study with

> interferon and Gleevec, but my body apparently cannot handle the

> interferon.

> Too much bone pain. So, doc is switching me to Tasigna starting next week.

> I

> excitedly asked if I was going to get a 2 week vacation like Donna. he

> laughed and said you don't need to. I said bummer. He says, okay, how about

> compromising one week vacation. I'll take it!! We went over all the

> differences between the meds, and he's thinking after some big meeting next

> week Gleevec will no longer be the first line med.

>

> I've read pretty good things about the other 2 meds. One question, how is

> " thinking " on Tasigna? Better than Gleevec?

>

> Thanks,

>

> Tammy

>

> PS. Lottie. prayers are being said for ya lady!

>

>

[Guest guest]

I must be missing something here. Why are you taking both interferon and

Gleevec? This, I think, is highly unusual. I've been on Gleevec for over

seven years... so far, GREAT! Minimal side effects and still PCRU. PTL

Using both medications together sounds very odd. Maybe the others can chime

in on this.

Troxel

dx 2/2003

gleevec 3/2003

On Mon, May 24, 2010 at 5:40 PM, Tammy Ferns <tammy@...>wrote:

>

>

> Hi all. I know I don't post often, but I read. I was on a study with

> interferon and Gleevec, but my body apparently cannot handle the

> interferon.

> Too much bone pain. So, doc is switching me to Tasigna starting next week.

> I

> excitedly asked if I was going to get a 2 week vacation like Donna. he

> laughed and said you don't need to. I said bummer. He says, okay, how about

> compromising one week vacation. I'll take it!! We went over all the

> differences between the meds, and he's thinking after some big meeting next

> week Gleevec will no longer be the first line med.

>

> I've read pretty good things about the other 2 meds. One question, how is

> " thinking " on Tasigna? Better than Gleevec?

>

> Thanks,

>

> Tammy

>

> PS. Lottie. prayers are being said for ya lady!

>

>

[Guest guest]

Hi : I have been Gleevec for 9 years, and also achieved PRCU.

I think this combination is for people who have not gotten a good response with

the Gleevec alone. I could never do it, because I am on Gleevec due to toxicity

of the Interferon. I did read somewhere that the Interferon is not a strong dose

like when you just took Interferon by itself. I hope Tammy does well with the

Tasigna, and anyone else who has to switch. Maybe someone else has something

more on this.

A.

>

> I must be missing something here. Why are you taking both interferon and

> Gleevec? This, I think, is highly unusual. I've been on Gleevec for over

> seven years... so far, GREAT! Minimal side effects and still PCRU. PTL

>

> Using both medications together sounds very odd. Maybe the others can chime

> in on this.

>

> Troxel

> dx 2/2003

> gleevec 3/2003

>

> On Mon, May 24, 2010 at 5:40 PM, Tammy Ferns <tammy@...>wrote:

>

> >

> >

> > Hi all. I know I don't post often, but I read. I was on a study with

> > interferon and Gleevec, but my body apparently cannot handle the

> > interferon.

> > Too much bone pain. So, doc is switching me to Tasigna starting next week.

> > I

> > excitedly asked if I was going to get a 2 week vacation like Donna. he

> > laughed and said you don't need to. I said bummer. He says, okay, how about

> > compromising one week vacation. I'll take it!! We went over all the

> > differences between the meds, and he's thinking after some big meeting next

> > week Gleevec will no longer be the first line med.

> >

> > I've read pretty good things about the other 2 meds. One question, how is

> > " thinking " on Tasigna? Better than Gleevec?

> >

> > Thanks,

> >

> > Tammy

> >

> > PS. Lottie. prayers are being said for ya lady!

> >

> >

[Guest guest]

Thank you for the clarification. I too hope Tammy does well on the

Tasigna! Obviously there are a few holes in my medical knowledge.

On Tue, May 25, 2010 at 10:50 AM, A <suzzienovember@...> wrote:

>

>

> Hi : I have been Gleevec for 9 years, and also achieved PRCU.

> I think this combination is for people who have not gotten a good response

> with the Gleevec alone. I could never do it, because I am on Gleevec due to

> toxicity of the Interferon. I did read somewhere that the Interferon is not

> a strong dose like when you just took Interferon by itself. I hope Tammy

> does well with the Tasigna, and anyone else who has to switch. Maybe someone

> else has something more on this.

> A.

>

>

> >

> > I must be missing something here. Why are you taking both interferon and

> > Gleevec? This, I think, is highly unusual. I've been on Gleevec for over

> > seven years... so far, GREAT! Minimal side effects and still PCRU. PTL

> >

> > Using both medications together sounds very odd. Maybe the others can

> chime

> > in on this.

> >

> > Troxel

> > dx 2/2003

> > gleevec 3/2003

> >

> > On Mon, May 24, 2010 at 5:40 PM, Tammy Ferns <tammy@...>wrote:

> >

> > >

> > >

> > > Hi all. I know I don't post often, but I read. I was on a study with

> > > interferon and Gleevec, but my body apparently cannot handle the

> > > interferon.

> > > Too much bone pain. So, doc is switching me to Tasigna starting next

> week.

> > > I

> > > excitedly asked if I was going to get a 2 week vacation like Donna. he

> > > laughed and said you don't need to. I said bummer. He says, okay, how

> about

> > > compromising one week vacation. I'll take it!! We went over all the

> > > differences between the meds, and he's thinking after some big meeting

> next

> > > week Gleevec will no longer be the first line med.

> > >

> > > I've read pretty good things about the other 2 meds. One question, how

> is

> > > " thinking " on Tasigna? Better than Gleevec?

> > >

> > > Thanks,

> > >

> > > Tammy

> > >

> > > PS. Lottie. prayers are being said for ya lady!

> > >

> > >

[Guest guest]

,

Sorry, I replied, it is in my sent items, somehow it never made it here.

I was on a study to see if the combination of Gleevec and Interferon

together would " cure " CML. Studies in Germany were leaning that direction.

But, Interferon was not for me.

Tammy

Re: [ ] Off study - leaving Gleevec - starting Tasigna

Thank you for the clarification. I too hope Tammy does well on the

Tasigna! Obviously there are a few holes in my medical knowledge.

On Tue, May 25, 2010 at 10:50 AM, A <suzzienovember@...> wrote:

>

>

> Hi : I have been Gleevec for 9 years, and also achieved PRCU.

> I think this combination is for people who have not gotten a good response

> with the Gleevec alone. I could never do it, because I am on Gleevec due

to

> toxicity of the Interferon. I did read somewhere that the Interferon is

not

> a strong dose like when you just took Interferon by itself. I hope Tammy

> does well with the Tasigna, and anyone else who has to switch. Maybe

someone

> else has something more on this.

> A.

>

>

> >

> > I must be missing something here. Why are you taking both interferon and

> > Gleevec? This, I think, is highly unusual. I've been on Gleevec for over

> > seven years... so far, GREAT! Minimal side effects and still PCRU. PTL

> >

> > Using both medications together sounds very odd. Maybe the others can

> chime

> > in on this.

> >

> > Troxel

> > dx 2/2003

> > gleevec 3/2003

> >

> > On Mon, May 24, 2010 at 5:40 PM, Tammy Ferns <tammy@...>wrote:

> >

> > >

> > >

> > > Hi all. I know I don't post often, but I read. I was on a study with

> > > interferon and Gleevec, but my body apparently cannot handle the

> > > interferon.

> > > Too much bone pain. So, doc is switching me to Tasigna starting next

> week.

> > > I

> > > excitedly asked if I was going to get a 2 week vacation like Donna. he

> > > laughed and said you don't need to. I said bummer. He says, okay, how

> about

> > > compromising one week vacation. I'll take it!! We went over all the

> > > differences between the meds, and he's thinking after some big meeting

> next

> > > week Gleevec will no longer be the first line med.

> > >

> > > I've read pretty good things about the other 2 meds. One question, how

> is

> > > " thinking " on Tasigna? Better than Gleevec?

> > >

> > > Thanks,

> > >

> > > Tammy

> > >

> > > PS. Lottie. prayers are being said for ya lady!

> > >

> > >

[Guest guest]

Hi Tammy . I have been trying to catch up with my emails and find your post. I

also after 7 years of gleevec side effect I am switching to Tasigna in a week. I

am so happy as I feel I am cured as gleevec was taken my life away and was about

to quit my job and rest home. Please post us how you are doing with Tasigna. I

also want to thank everyone who been posting and educating us with a lot of

information. This group is awesome. Wish you all a good summer.

T

Zero club #764

Sent from my Verizon Wireless BlackBerry

Re: [ ] Off study - leaving Gleevec - starting Tasigna

My doc said the same thing about Gleevec ... it's about to lose its position

in line!

p.s. I like Tasigna.

On Mon, May 24, 2010 at 5:40 PM, Tammy Ferns <tammy@...>wrote:

>

>

> Hi all. I know I don't post often, but I read. I was on a study with

> interferon and Gleevec, but my body apparently cannot handle the

> interferon.

> Too much bone pain. So, doc is switching me to Tasigna starting next week.

> I

> excitedly asked if I was going to get a 2 week vacation like Donna. he

> laughed and said you don't need to. I said bummer. He says, okay, how about

> compromising one week vacation. I'll take it!! We went over all the

> differences between the meds, and he's thinking after some big meeting next

> week Gleevec will no longer be the first line med.

>

> I've read pretty good things about the other 2 meds. One question, how is

> " thinking " on Tasigna? Better than Gleevec?

>

> Thanks,

>

> Tammy

>

> PS. Lottie. prayers are being said for ya lady!

>

>