Re: Getting BMB when you are PCRU

[Guest guest]

Hi , would he be angry if you suggested he contact Dr. Druker or Dr. Talpaz

for their opinion?  If he got angry, then you don't need or want him. It seems

to me neither of these doctors keep doing bma/bmb's once you are pcru, unless

you are in a trial.  Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: A <suzzienovember@...>

Subject: [ ] Getting BMB when you are PCRU

Date: Tuesday, May 25, 2010, 1:55 PM

 

HI: I am bit frustrated right now, due to a new Oncologist who took over

my former Oncologists Practice due to his retirement. I have been PCRU for

quite a few years now, and have been monitored with the PCR Testing and routine

blood work. I saw this new doctor one time, and he wants a BMB. He has no

reason to put me through this at this time, and I am refusing it. He will

probably drop me from his care when I see him. I would like to know what others

are doing if they are PCRU.

My former Oncologist told me he could monitor me through my blood work, and he

would know if a BMB would be needed.

A

[Guest guest]

I have not had a BMA for almost three years. Once I reached PCRU I did not

ever have one. Thank Goodness!!!

Stick to your guns

Sharon T

_____

From: [mailto: ] On Behalf Of

ROBERTA DOYLE

Sent: Tuesday, May 25, 2010 3:04 PM

Subject: Re: [ ] Getting BMB when you are PCRU

Hi , would he be angry if you suggested he contact Dr. Druker or Dr.

Talpaz for their opinion? If he got angry, then you don't need or want him.

It seems to me neither of these doctors keep doing bma/bmb's once you are

pcru, unless you are in a trial. Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: A <suzzienovember@... <mailto:suzzienovember%40> >

Subject: [ ] Getting BMB when you are PCRU

<mailto:%40>

Date: Tuesday, May 25, 2010, 1:55 PM

HI: I am bit frustrated right now, due to a new Oncologist who took over my

former Oncologists Practice due to his retirement. I have been PCRU for

quite a few years now, and have been monitored with the PCR Testing and

routine blood work. I saw this new doctor one time, and he wants a BMB. He

has no reason to put me through this at this time, and I am refusing it. He

will probably drop me from his care when I see him. I would like to know

what others are doing if they are PCRU.

My former Oncologist told me he could monitor me through my blood work, and

he would know if a BMB would be needed.

A

[Guest guest]

Thanks Sharon:  If you read what I wrote back to Zavie's question it makes it

all that much clearer.

From: A <suzzienovember@... <mailto:suzzienovember%40> >

Subject: [ ] Getting BMB when you are PCRU

<mailto:%40>

Date: Tuesday, May 25, 2010, 1:55 PM

HI: I am bit frustrated right now, due to a new Oncologist who took over my

former Oncologists Practice due to his retirement. I have been PCRU for

quite a few years now, and have been monitored with the PCR Testing and

routine blood work. I saw this new doctor one time, and he wants a BMB. He

has no reason to put me through this at this time, and I am refusing it. He

will probably drop me from his care when I see him. I would like to know

what others are doing if they are PCRU.

My former Oncologist told me he could monitor me through my blood work, and

he would know if a BMB would be needed.

A

[Guest guest]

Hi Bobby:  Read my reply to Zavie.  I already contacted Dr. Druker.

From: A <suzzienovember@...>

Subject: [ ] Getting BMB when you are PCRU

Date: Tuesday, May 25, 2010, 1:55 PM

 

HI: I am bit frustrated right now, due to a new Oncologist who took over my

former Oncologists Practice due to his retirement. I have been PCRU for quite a

few years now, and have been monitored with the PCR Testing and routine blood

work. I saw this new doctor one time, and he wants a BMB. He has no reason to

put me through this at this time, and I am refusing it. He will probably drop me

from his care when I see him. I would like to know what others are doing if they

are PCRU.

My former Oncologist told me he could monitor me through my blood work, and he

would know if a BMB would be needed.

A

[Guest guest]

Hi Bobby: I lose some of my messages that I return, but basically I already

contacted Dr. Druker myself, and he told me if I was PCRU that I could be

monitored in my PCR and Blood Work Testing. He said exactly what my old

Oncologist said. He said there would be some changes showing in my counts to

give a warning of something going on.

He said he would not put me through a BMB if I was stable.

This new doctor is trying to prove something with rushing me into a BMB after

just meeting me for the first time.

I think my mind is made up to switch after I get this next PCR Test.

Thank You for your response.

A.

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> From: A <suzzienovember@...>

> Subject: [ ] Getting BMB when you are PCRU

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> Date: Tuesday, May 25, 2010, 1:55 PM

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> HI: I am bit frustrated right now, due to a new Oncologist who took

over my former Oncologists Practice due to his retirement. I have been PCRU for

quite a few years now, and have been monitored with the PCR Testing and routine

blood work. I saw this new doctor one time, and he wants a BMB. He has no

reason to put me through this at this time, and I am refusing it. He will

probably drop me from his care when I see him. I would like to know what others

are doing if they are PCRU.

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> My former Oncologist told me he could monitor me through my blood work, and he

would know if a BMB would be needed.

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[Guest guest]

> He said he would not put me through a BMB if I was stable.

> This new doctor is trying to prove something with rushing me into a BMB after

just meeting me for the first time.

> I think my mind is made up to switch after I get this next PCR Test.

> Thank You for your response.

> A.

_________________________

Hi A.,

Your new oncologist sounds like a rookie.

He does not know standard protocol for following a stable cml patient. Either

that or he wants to practice doing BMBs....and he thinks you give him that

opportunity.

Either way....I would not stay with him. When you know more than your

oncologist, what does he bring to the table for you? I would look for someone

with more experience, and someone who would be open to hearing what you

know....you are more experienced in cml than most local oncs will be.

C.