Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Hi - my name is Cheryl K.(yes - another Cheryl) and I've been lurking for a couple of years. My CML was diagnosed in March of 2007. I've been in and out of remission as my onc and I try to figure out the maximum dosage of Gleevec vs. side effects. Right now I taking 500 mg over all by taking 400 mg one day and 600 mg (a pill and a half) the next day. I can live with the 400 mg - side effects wise (except maybe the fatigue), but not so good on 600 mg. As of May 4th, I was undetectable per my latest fish test. So I'm back into remission once again. Zavie - may I have a number please? Next week I have an appointment at the Mayo Clinic in Rochester, MN to consult with a specialist. I am seeing Dr. Hogan. I hope to learn more about my CML and how to cope with it. I know I have an unusual mutation of the Phildelphia chromosone(at least one that U of MN labs hadn't seen before). So I hope to learn more about that. Also at 61, I bring a host of other medical issues to the table so it will be good, I think, to look at the whole picture. Has anyone been to the Mayo? If so, what was your experience? Quote Link to comment Share on other sites More sharing options...
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